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Faith wrote:My husband didn't believe he's gluten sensitive either after the Enterolab testing. Now he has ulcerative colitis and is off the gluten. Now he believes.
I'm sorry to "hear" that. Was he symptomatic, when he had the Enterolab test, or was he just curious to see what it might show? Is the GF diet helping him? I'm curious, because we have several members with UC.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
My husband did the test on a lark, when I did my test. He really didn't think he was intolerant to gluten, but he did it just for the helluva it since I was doing it. He had proctitis and some stomach inflammation, but I think at least the proctitis may have been in remission at the time he did the test. Not sure.
He was positive for gluten sensitivity - his levels higher than mine - but he didn't stop eating gluten. He didn't necessarily gorge on it, but he didn't avoid it. He didn't have 100% confidence in the test, maybe because he never looked into it for himself.
That was almost three years ago. Since then he has some flares, which he thought was proctitis, which got better. But last year he had a really bad flare and got another colonoscopy which showed the pan-UC. Around the same time, he was going through his papers and found his Enterolab tests. When he read the results again, I guess in light of the newly discovered UC, a light bulb went on and he went gluten-free from that moment on. There was something about reading the results again that made it click for him.
He took Pentasa for about 3 months to help get the UC under control, and he's been gluten free since the day he re-read the results around the time of the dx. He's had no subsequent flares so far and it's been a year now. He also follows an ayurvedic pitta diet for inflammation, mostly vegetarian but he does eat some goat cheese. The doctor wanted him to take Pentasa for a year, but he didn't do that and didn't need to.
Since he didn't do just the gluten-free diet, we can't be certain that it was the key factor, but sure seems like it's helping.
That's very interesting, and it provides some rare insight into what can happen if we ignore gluten sensitivity. I hope his treatment program continues to work for him, it certainly sounds encouraging.
Many thanks for the insight and information.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.