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I am on my gluten, soy, diary, yeast, egg and corn free diet (my god what a list) for one and a halve week now. It looks like that it gets a little better, it is just a slight difference. At least I have no abdominal pain or cramps anymore. Also important, I have the feeling being a less bit tired. Getting some of my old energy back.
Like the fog in my head is clearing up and more in the mood of going out and doing things.
my diet update
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Your diet seems pretty similar to mine.
Hi Harma,
That sounds good. I'm glad to see that you're feeling better already. I hope that you continue to improve, so that before long you will be feeling as good as new.
Tex
That sounds good. I'm glad to see that you're feeling better already. I hope that you continue to improve, so that before long you will be feeling as good as new.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Yes I am still a bit surprised how well the diet works. Not that there any major changes yet, it are more the small things. Bit more energy and a clearer head. Great. Today I went on another shopping expedition, trying to find so more stuff I can eat. I must say, I was quite successful. Walnut oil, balsamic acid, walnuts, cashew nuts, mustard, rice wheat, rice flakes (but it is bit curious, it doesn't say gluten free, something like naturally "poor of gluten" (don't how to translate it in proper English). The only ingredient is rice, so I am not sure yet. But would be great for breakfast. A rice toast (even with topiaca starch instead of corn), some Japanese rice cracker.
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faithberry
- Adélie Penguin
- Posts: 246
- Joined: Wed Mar 04, 2009 7:40 am
Yes it looks like it is going up, mostly thanks to the diet is my opinion. Getting a bit back into life, which was on hold since may (when the MC all started). Today I had an app. with the GI doc and that went very well. I told him about this support group and about everybody's (well at least most of us here) diet, the enterolab testing and he was quite positive about it. His main attitude was, there is a lot that we (medicine) don't know about this disease, so it was a good idea to try out things and he encourage me to go on with it. He even said there probably was a link with gluten sensitivity (!!!!) and mc. We also agreed to continue with the bedusonide for well at least for another six months (than is my next app.). Mostly it my choice, if I want to continue that's fine and if I want to try and stop that's fine too. I am only on one a day, what seems to be save in the long term. Well I will see what I do. For now I stick to my routine of plain, simple sober (and very healthy) food and 1 pill a day.
I also ask for a bone scan to figure out if there is any signs of osteoporoses. Just to be sure about this. Thanks god no problem, I am scheduled in the end of January (Dutch health care he, waiting waiting waiting, but this time it is fine it is not in a hurry). Since milk and soy are of the menu I have started using calcium pills, together with a multi vitamin. I also asked for another blood test, just a general one, but was not needed, the last three ones (June, august and September) were all fine. vit B11, my folium acid (is it called like that in English?) was a bit too high. Probably due to all my vitamin pills I have been taking over the years. Well if I still want one, I will ask my general practitioner (they are very easy with it). So it looks like it is all going quite well, consider the idea I only now that I have this disease for two months.
But still the secret weapon, the magic against this disease in my opinion is the diet. Entocort also very useful, but does not solve or cure it, the diet does. With pills I only have no D, with the diet I actually feel better.
I also ask for a bone scan to figure out if there is any signs of osteoporoses. Just to be sure about this. Thanks god no problem, I am scheduled in the end of January (Dutch health care he, waiting waiting waiting, but this time it is fine it is not in a hurry). Since milk and soy are of the menu I have started using calcium pills, together with a multi vitamin. I also asked for another blood test, just a general one, but was not needed, the last three ones (June, august and September) were all fine. vit B11, my folium acid (is it called like that in English?) was a bit too high. Probably due to all my vitamin pills I have been taking over the years. Well if I still want one, I will ask my general practitioner (they are very easy with it). So it looks like it is all going quite well, consider the idea I only now that I have this disease for two months.
But still the secret weapon, the magic against this disease in my opinion is the diet. Entocort also very useful, but does not solve or cure it, the diet does. With pills I only have no D, with the diet I actually feel better.
Harma,
Wow! You have a truly great GI doctor. Most of us on this board would probably faint, if we were able to find a GI doc who was half as open-minded, considerate, and accommodating, as yours. Lucky you.
Yes, vitamin B11 is called folic acid, (or folate), in English, so you are close enough. It's kind of unusual to test high in folic acid, but taking all those vitamins may be why you are making such good progress with your treatment. You are doing very well, if only two months have passed since you were diagnosed. Most of us take much longer to get to where you are, in your recovery.
Tex
Wow! You have a truly great GI doctor. Most of us on this board would probably faint, if we were able to find a GI doc who was half as open-minded, considerate, and accommodating, as yours. Lucky you.
Yes, vitamin B11 is called folic acid, (or folate), in English, so you are close enough. It's kind of unusual to test high in folic acid, but taking all those vitamins may be why you are making such good progress with your treatment. You are doing very well, if only two months have passed since you were diagnosed. Most of us take much longer to get to where you are, in your recovery.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Amazing doctor
Congratulations on having such a wonderful doctor. 
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
yes even I was surprised by the reaction too and even confirming the possible link with gluten sensitivity.The reason I am doing so well so quick has probably to do with my starting point. My symptoms were never that severe as some on this board. I was never like 10 or 20 BM a day and also even with the D, I still had some control on my BM, never had to run to the toilet.
But most of all, the reason for the recovery is making the right steps and that is of course all thanks to you on this board. Your support and guiding people in the right direction with all the information on the disease, the enterolab testing. Next to medical care is this the best what any MC patient can get.
I am still very careful not to cheer to early, it is going quite well so far, but never you know what the future will bring.
But most of all, the reason for the recovery is making the right steps and that is of course all thanks to you on this board. Your support and guiding people in the right direction with all the information on the disease, the enterolab testing. Next to medical care is this the best what any MC patient can get.
I am still very careful not to cheer to early, it is going quite well so far, but never you know what the future will bring.
