Am having a bad MC flare
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Andi,
I understand you lack of desire to go on steriods. When I was first diagnosed they put me on Entrocort and Asacol. My D continued and in fact got worse. They took me off the Entrocort (thinking I was reacting to that) and put me on predisone. Come to find out I was reacting to the Asacol. I did well on the predisone, other than putting on weight since it made me very hyper. The next time I flared, I suggested trying Entrocort alone and it worked as well without the side effects of predisone.
Since I have had good luck with both steriods and have only had to take them for a short period of time, I would encourage you to rethink the use of them. I know some folks on the board have been on Entrocort for a long period of time with no significant side effects. Unless you are competing in events where drug testing might be an issue (and I don't know if Entrocort would cause an issue or not) I wouldn't worry about taking it. Since it is coated and absorbed in the colon you don't have the side effects to the other organs. I will say that it is expensive - way more so than predisone, even with insurance.
With as bad as you are, I hope you will seriously consider postponing your trip home until you are better. I went to a family thing while I was first flared and spent most of my time away from the center of fun, laying down, trying to regroup for a little time with them. It made my anger and depression over this disease much worse.
Please take care and let us know how you are doing.
Jan
I understand you lack of desire to go on steriods. When I was first diagnosed they put me on Entrocort and Asacol. My D continued and in fact got worse. They took me off the Entrocort (thinking I was reacting to that) and put me on predisone. Come to find out I was reacting to the Asacol. I did well on the predisone, other than putting on weight since it made me very hyper. The next time I flared, I suggested trying Entrocort alone and it worked as well without the side effects of predisone.
Since I have had good luck with both steriods and have only had to take them for a short period of time, I would encourage you to rethink the use of them. I know some folks on the board have been on Entrocort for a long period of time with no significant side effects. Unless you are competing in events where drug testing might be an issue (and I don't know if Entrocort would cause an issue or not) I wouldn't worry about taking it. Since it is coated and absorbed in the colon you don't have the side effects to the other organs. I will say that it is expensive - way more so than predisone, even with insurance.
With as bad as you are, I hope you will seriously consider postponing your trip home until you are better. I went to a family thing while I was first flared and spent most of my time away from the center of fun, laying down, trying to regroup for a little time with them. It made my anger and depression over this disease much worse.
Please take care and let us know how you are doing.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Back from doctor
Hi. I just got back from the doctor. She gave me a prescription for lomotil and told me to drink Pedialyte instead of Gatorade.
Any experiences someone has had with the effectivness or side effects of pedialyte would be greatly appreciated.
Polly, I have not had my food intolerances checked. I know I should and I probably will.
Thanks for the advice on dehydration. My Dr. said if continued to vomit and have diarrhea I should go to ER. I am actually feeling a lot better today, most of the nausea is gone but the diarrhea is still there. I will take the lomotil but I am always nervous to try a new medication.
Any experiences someone has had with the effectivness or side effects of pedialyte would be greatly appreciated.
Polly, I have not had my food intolerances checked. I know I should and I probably will.
Thanks for the advice on dehydration. My Dr. said if continued to vomit and have diarrhea I should go to ER. I am actually feeling a lot better today, most of the nausea is gone but the diarrhea is still there. I will take the lomotil but I am always nervous to try a new medication.
Hi Andi, I hope the things your dr gave you help. I'm actually someone who doesn't like a lot of medication either and usually have major side effects. Before I found my current pcp I was a mess with different dr's giving me different things to try to control thyroid and mc problems. My gi put me on asacol and acted like it would cure the problem, but the opposite happened. I was like Jan and found out after a few months that the Asacol was making me worse. It's been a long road of trial and error, but with this board and a great pcp I feel like I can manage things now. I was like you and didn't want to deal with steroids, worried about the side effects, etc., but like Jan said with short term use they are a miracle for me. I have had no bad side effects from them (I know some people do) and for me I will return to them if and when I need to because I think it's much harder on my body and mind to endure the effects of an mc flare. I'm not as athletic as you, but I am active and try to exercise most days. My pcp practices integrative medicine which is a combination of holistic and traditional. She came up with the idea to try Dmannose which seems to greatly help manage my mc. She did give me a year's prescription for Entocort in case I have a bad flare again. I'm tapering off now and hope to be completely off in a few weeks. The diet is crucial to getting into remission and staying there. I have multiple intolerances and am still sorting things out, but basically know what to eat and what to avoid now. I hope to one day be like many people on this board who are in remission and have been able to add some foods back. I know gluten will never come back. I was from Mesa, Az. My dad graduated from the UofA in Tucson. We've taken many trips there and have gone to Nogales to shop. I do miss the warm weather after a snowy Utah winter. I know this journey through mc is different for everyone, but I hope you find what works for you and what you are comfortable with. Good luck and best wishes, JoAnn
JoAnn and Jan,
I am encouraged to hear that you both did not have side effects with entocort. My doctor has suggested it a few times but my mind just shuts down when i hear "steroid". I am hypothyroid (take medication for that) and am almost 53 so I am worry about osteoprosis. Even though I am a runner, hiker, snowshoer, kayaker, etc.... I still have the very start of osteoprosis. I lift weights every day and have good muscle tone but somehow the osteo just started forming. That is my biggest concern in starting a steroid, osteoprosis and weight gain. I dont want to sound vain because I am not. But staying in shape and fit, esp. as I age is very important to me. I worry about the lowered immune system and getting sick on steroids.
I also worry that the diarrhea will be worse when I stop entocort. I have heard that there can be a rebound effect after one goes off it. Have either of you found this to be true?
If I have to cancel my trip, I am not even sure how to go about it. I made the reservations through Orbitz, do I go through them or do I call the airline directly?
I also graduated from the U of A in 1981, and again a couple years later in entomology. I did my MS work at Texas Tech working on Imported Fire Ants (something I am sure Tex is very familiar with).
Mesa is nice, I have been there. I miss the desert but not the large city of Tucson. I have lived in Vermont for so long that any city over 10,000 is just too big. However, when we retire we are thinking of spending 3 months a year in Patagonia. I love Patagonia and it is only a little more than an hour from Tucson to see my mom and sister.
I am encouraged to hear that you both did not have side effects with entocort. My doctor has suggested it a few times but my mind just shuts down when i hear "steroid". I am hypothyroid (take medication for that) and am almost 53 so I am worry about osteoprosis. Even though I am a runner, hiker, snowshoer, kayaker, etc.... I still have the very start of osteoprosis. I lift weights every day and have good muscle tone but somehow the osteo just started forming. That is my biggest concern in starting a steroid, osteoprosis and weight gain. I dont want to sound vain because I am not. But staying in shape and fit, esp. as I age is very important to me. I worry about the lowered immune system and getting sick on steroids.
I also worry that the diarrhea will be worse when I stop entocort. I have heard that there can be a rebound effect after one goes off it. Have either of you found this to be true?
If I have to cancel my trip, I am not even sure how to go about it. I made the reservations through Orbitz, do I go through them or do I call the airline directly?
I also graduated from the U of A in 1981, and again a couple years later in entomology. I did my MS work at Texas Tech working on Imported Fire Ants (something I am sure Tex is very familiar with).
Mesa is nice, I have been there. I miss the desert but not the large city of Tucson. I have lived in Vermont for so long that any city over 10,000 is just too big. However, when we retire we are thinking of spending 3 months a year in Patagonia. I love Patagonia and it is only a little more than an hour from Tucson to see my mom and sister.
Hi Andi, I envy your involvement in so many sports. I rode horses and was involved in rodeo, horse shows, etc. until I married and moved to Utah. I learned to ski here, both water and snow. I tried so hard to stay healthy and do all the right things so as I aged things would hopefully go well, but life happens. I'm 57 and I also have thyroid issues along with mc, they came together. I try to do eveything natural that I can, but have learned that I need other help, too. I think my problems began with the big menopause hormone crash. Before menopause I was very healthy and drank soy protein drinks because it was supposed to be so good for women's health. Now my body hates soy and I react severely to it. Thank goodness I have finally ended up with a pcp who gave me bioidentical hormones, knows how to treat thyroid problems looking at me as an individual and using both T4 and T3, and has me on supplements. I think I felt strongly about responding to your post because I was just like you when it came to medication and especially the steroids. Everytime I take a new medication I just wait for something awful to happen. Because of the info I've learned from this board and the trust I have in my pcp, and because I was suffering so much, I tried the prednisone and entocort
and to my surprise I had no bad effects but only good ones which was a great surprise for someone like me. I was originally on entocort for 6 months and with the help of the Dmannose and following the diet along with my other intolerances was able to get off until the flare I had in Dec. I have only used Prednisone once (past Jan.) for 5 days and felt great on it. I would not hesitate to use it again if I need it in the future. I'm planning on being off entocort in the next few weeks if all goes well. Again, I know we are all different, but I feel like the effects of the flare physically and emotionally are more detrimental to me than these drugs. I've been fortunate that I don't react to them. I hope my experience will help you make your own decision. Your career sounds fascinating. I think we had those big red fire ants in Mesa. I remember coming across many of their big mounds and even taking some to school in a jar, also getting bit a few times. When I was growing up in Mesa, it had the feeling of a small agricultural community and I rode my horses everywhere. Now the Valley of the Sun feels like another Los Angeles when I visit. Your place in Vermont is must be beautiful and quite a contrast to the desert. I live near Salt Lake at the foot of the Rocky Mountains which is very beautiful, but there are times I still get homesick and miss the special beauty of the Sonoran Desert.
I have learned so much from other people on this board and their journeys and courage, I hope my experience can help someone along the way and whatever you decide I wish you wellness and healing. JoAnn
and to my surprise I had no bad effects but only good ones which was a great surprise for someone like me. I was originally on entocort for 6 months and with the help of the Dmannose and following the diet along with my other intolerances was able to get off until the flare I had in Dec. I have only used Prednisone once (past Jan.) for 5 days and felt great on it. I would not hesitate to use it again if I need it in the future. I'm planning on being off entocort in the next few weeks if all goes well. Again, I know we are all different, but I feel like the effects of the flare physically and emotionally are more detrimental to me than these drugs. I've been fortunate that I don't react to them. I hope my experience will help you make your own decision. Your career sounds fascinating. I think we had those big red fire ants in Mesa. I remember coming across many of their big mounds and even taking some to school in a jar, also getting bit a few times. When I was growing up in Mesa, it had the feeling of a small agricultural community and I rode my horses everywhere. Now the Valley of the Sun feels like another Los Angeles when I visit. Your place in Vermont is must be beautiful and quite a contrast to the desert. I live near Salt Lake at the foot of the Rocky Mountains which is very beautiful, but there are times I still get homesick and miss the special beauty of the Sonoran Desert.
I have learned so much from other people on this board and their journeys and courage, I hope my experience can help someone along the way and whatever you decide I wish you wellness and healing. JoAnn
Andi,
I agree with JoAnn that the first priority is to get the symptoms under control, and then sort out the details later. This is strictly a guess, of course, (no one knows for sure), but since osteoporosis is known to be a high risk for anyone with celiac disease, and celiac disease is cased by gluten sensitivity, I'm pretty sure that the damage due to malabsorption problems caused by gluten sensitivity, for anyone with MC, has a much greater potential for reducing bone density, in the long run, than a relatively short-term corticosteroid regimen, (or a long-term, low-dose maintenance treatment, for that matter).
IOW, as a group, untreated celiacs have a serious osteoporosis problem, regardless of how much they try to compensate for the issue. Once the diet takes effect, and the damage to the gut, (caused by the gluten), has healed, their osteoporosis problems almost always resolve, also, depending on how long they have been accruing damage, of course. In cases where damage has been accumulating for decades, it may be impossible to undo all the damage, but at the very least, additional future damage can be prevented, once the diet is adopted.
Tex
I agree with JoAnn that the first priority is to get the symptoms under control, and then sort out the details later. This is strictly a guess, of course, (no one knows for sure), but since osteoporosis is known to be a high risk for anyone with celiac disease, and celiac disease is cased by gluten sensitivity, I'm pretty sure that the damage due to malabsorption problems caused by gluten sensitivity, for anyone with MC, has a much greater potential for reducing bone density, in the long run, than a relatively short-term corticosteroid regimen, (or a long-term, low-dose maintenance treatment, for that matter).
IOW, as a group, untreated celiacs have a serious osteoporosis problem, regardless of how much they try to compensate for the issue. Once the diet takes effect, and the damage to the gut, (caused by the gluten), has healed, their osteoporosis problems almost always resolve, also, depending on how long they have been accruing damage, of course. In cases where damage has been accumulating for decades, it may be impossible to undo all the damage, but at the very least, additional future damage can be prevented, once the diet is adopted.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
- Gabes-Apg
- Emperor Penguin

- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Andi
it is so good to wake up and see your message.
You seem a bit more settled about the situation (albeit still disapointed about not being able to do the trip)
not going on the trip and getting control on this flare is the best way. the longer your body is under stress of the flare the longer it will take to get stability.
hope you have a good day, it will take a few days to recover from the dehyration.
i can highly recommend diet adjustment. I went from chronic symptoms to reasonable control within 3 weeks (soft semi-frequent motions 1 - 2 times a week)
from reading the forums (recent and older ones) i have learnt that all of us are different!
everyone has different intolerances, and has different reactions to those intolerances, med wise and natural therapy everyone has had differing success. there is lots of advice and reactions that others have had will help you figure out what is happening with you.
i suppose what i am trying to say is - there is no easy way,or short cut and no one else can do it for you.
take care and hope things keep on the improve.
it is so good to wake up and see your message.
You seem a bit more settled about the situation (albeit still disapointed about not being able to do the trip)
not going on the trip and getting control on this flare is the best way. the longer your body is under stress of the flare the longer it will take to get stability.
hope you have a good day, it will take a few days to recover from the dehyration.
i can highly recommend diet adjustment. I went from chronic symptoms to reasonable control within 3 weeks (soft semi-frequent motions 1 - 2 times a week)
from reading the forums (recent and older ones) i have learnt that all of us are different!
everyone has different intolerances, and has different reactions to those intolerances, med wise and natural therapy everyone has had differing success. there is lots of advice and reactions that others have had will help you figure out what is happening with you.
i suppose what i am trying to say is - there is no easy way,or short cut and no one else can do it for you.
take care and hope things keep on the improve.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi again Andi!
Happy to hear you are somewhat better today.
I can't recall anyone here mentioning any problems with Pedialyte, and I can tell you that we pediatricians recommend it constantly for kiddies (even tiny babies) without any adverse effects. Pedialyte also makes popsicles, if you prefer to replace fluids that way.
I can't remember if we talked about this when you first joined the Board, but I was a vegetarian (mainly ethical) for 12 years before developing MC. I ate lots of whole grains (gluten), dairy (yogurt, cheeses), soy (tofu, etc.). I now wonder if eating large amounts of these foods helped to precipitate my problems. It was so difficult for me - I had to totally change the way I ate once I found out that I was intolerant to all of these foods. Sigh. Hard to accept that I have hunter-gatherer genes and must eat accordingly. But the difference in how I feel on the caveman diet cannot be denied. It gave me my life back - and I do not need to take any medications to stay in remission. I also am quite active fitness-wise, like you.
You know, even with mild dehydration, a bag or 2 of fluid in the E.R. can make such a huge difference in how one feels. Dehydration can mess with your mind - make you feel really weird/out of it and can even give you feelings of impending doom. Replacing a little fluid can give one a quick pickup.
I hope you are even better now.
Love,
Polly
Happy to hear you are somewhat better today.
I can't remember if we talked about this when you first joined the Board, but I was a vegetarian (mainly ethical) for 12 years before developing MC. I ate lots of whole grains (gluten), dairy (yogurt, cheeses), soy (tofu, etc.). I now wonder if eating large amounts of these foods helped to precipitate my problems. It was so difficult for me - I had to totally change the way I ate once I found out that I was intolerant to all of these foods. Sigh. Hard to accept that I have hunter-gatherer genes and must eat accordingly. But the difference in how I feel on the caveman diet cannot be denied. It gave me my life back - and I do not need to take any medications to stay in remission. I also am quite active fitness-wise, like you.
You know, even with mild dehydration, a bag or 2 of fluid in the E.R. can make such a huge difference in how one feels. Dehydration can mess with your mind - make you feel really weird/out of it and can even give you feelings of impending doom. Replacing a little fluid can give one a quick pickup.
I hope you are even better now.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Everyone,
You have all been so kind and so helpful.
Polly, your advice from the point of view as a doctor, AND a patient is greatly valued. I may do the ER, but I honestly have to say I am feeling better tonite. I kept my dinner down, the first time in a week!! The nausea seems to be gone, I just have the diarrhea.
We did talk about the vegetarian issue. For me it was not just an ethical issue, one day I physcially got sick at the thought of eating meat. I want to be able to eat it because I am sure it will help, but I cannot look at meat without thinking where it came from. I dont know how to get past that but I am envious that you were able to. Maybe someday I can because i am sure I will be worse off with MC if I continue to eat a vegetarian diet.
Tex,
I can't believe you take the time to care about everyone else when you are going thru your own issues. What you said about gluten sensitivity and osteoprosis is something I had not heard before and something that is really helpful. I learn so much from you and others and it is making me think differently about what I want to do.
Gabes and JoAnn,
Thanks for the posts, you two have become friends in just the two short days since I "met" you.
I also am on bio-identical hormones for menapause, and on a T3 and T4 thyroid pill. It seems that just like you (JoAnn) menapause, thyroid, and MC hit all within a year of each other. It seems no matter how healthy a life one lives things just happen.
We also grew up with horses although I have not ridden in about 30 years.
My house in Vermont is very beautiful. I live very rurally, no close neighbors(except the wildlife that comes into my yard) and surrounded by woods and mountains. I have a lot of land and have veggie, flower, and herb gardens. I have the best of both worlds because although I live very rurally, I am just 10 minutes from downtown Montpelier (a thriving metropolois of 8000 people). My partner Dave and I have been together 4 years and most likely I will be selling my house within the next year and marrying him. I will move to the house we found together, a log home on 12 acres at the foot of a mountain range.
Your home sounds wonderful as well, at the foot of the Rockies. Utah is beautiful, one of the prettiest places I have ever been.
I know what you mean about your hometown becoming too big and like L.A. That is exactly what happened to Tucson. When I was a kid it was a tiny town, and now it is a huge mass of strip malls and traffic. I hold my breath until I can finally get back to Vermont where we have no sky scrapers, very little traffic, and beautiful scenery.
Thanks everyone, you all got me through a couple really bad days. I hit the bottom(physically) yesterday but I think I am on the way up.
You have all been so kind and so helpful.
Polly, your advice from the point of view as a doctor, AND a patient is greatly valued. I may do the ER, but I honestly have to say I am feeling better tonite. I kept my dinner down, the first time in a week!! The nausea seems to be gone, I just have the diarrhea.
We did talk about the vegetarian issue. For me it was not just an ethical issue, one day I physcially got sick at the thought of eating meat. I want to be able to eat it because I am sure it will help, but I cannot look at meat without thinking where it came from. I dont know how to get past that but I am envious that you were able to. Maybe someday I can because i am sure I will be worse off with MC if I continue to eat a vegetarian diet.
Tex,
I can't believe you take the time to care about everyone else when you are going thru your own issues. What you said about gluten sensitivity and osteoprosis is something I had not heard before and something that is really helpful. I learn so much from you and others and it is making me think differently about what I want to do.
Gabes and JoAnn,
Thanks for the posts, you two have become friends in just the two short days since I "met" you.
I also am on bio-identical hormones for menapause, and on a T3 and T4 thyroid pill. It seems that just like you (JoAnn) menapause, thyroid, and MC hit all within a year of each other. It seems no matter how healthy a life one lives things just happen.
We also grew up with horses although I have not ridden in about 30 years.
My house in Vermont is very beautiful. I live very rurally, no close neighbors(except the wildlife that comes into my yard) and surrounded by woods and mountains. I have a lot of land and have veggie, flower, and herb gardens. I have the best of both worlds because although I live very rurally, I am just 10 minutes from downtown Montpelier (a thriving metropolois of 8000 people). My partner Dave and I have been together 4 years and most likely I will be selling my house within the next year and marrying him. I will move to the house we found together, a log home on 12 acres at the foot of a mountain range.
Your home sounds wonderful as well, at the foot of the Rockies. Utah is beautiful, one of the prettiest places I have ever been.
I know what you mean about your hometown becoming too big and like L.A. That is exactly what happened to Tucson. When I was a kid it was a tiny town, and now it is a huge mass of strip malls and traffic. I hold my breath until I can finally get back to Vermont where we have no sky scrapers, very little traffic, and beautiful scenery.
Thanks everyone, you all got me through a couple really bad days. I hit the bottom(physically) yesterday but I think I am on the way up.
- Gabes-Apg
- Emperor Penguin

- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
woo hoo that is great news you are on the way up and by your post above you sound a bit more accepting
yes health... and timing of situations. no matter how organised you are there are certain things you can not coordinate, the trick is embracing the good and the bad when it happens.
Your location sounds devine.......sounds like my dream location.
before the MC thing happened to me, i had been reflecting life, and was pondering the idea of living in a smaller rural type area. Brisbane where i live now, is 3rd largest city in Australia. Post MC and over xmas I decided that if a position came up at the worksite 2 hours away in a semi rural area then i would apply as i would love to have a small house, and have my vege garden. I would much prefer a 45 minute drive to work on quiet roads than the 45 minute in constant traffic that i do now.
a job has come up and i have applied, just waiting to hear if they will offer it to me
I am working on the theory if it is meant to be - it is meant to be
Hope you get a good night sleep and feel even better tomorrow... (or today by the time you read this)
It is friday morning for me, I am at work, trying to get the intray emptied, emails answered so i start next week with a clean desk ...... we have a work BBQ today for lunch and i am helping out with the preperation and serving, so will be watching 140 people eat a heap of food that i can not eat. and taking my own GF/YF/DF rissotto to eat!
The sun is shining, we have a slight breeze and it is about 29 degrees Celsius ( 84.2 degrees Fahrenheit)
my digestion is AOK today, and TK (the keeper, nick name for new man) is cooking me a GF/YF/DF dinner so i could not ask for more............
my catch phrase is....... some days are diamonds, some days are stone... today is a diamond day.....
yes health... and timing of situations. no matter how organised you are there are certain things you can not coordinate, the trick is embracing the good and the bad when it happens.
Your location sounds devine.......sounds like my dream location.
before the MC thing happened to me, i had been reflecting life, and was pondering the idea of living in a smaller rural type area. Brisbane where i live now, is 3rd largest city in Australia. Post MC and over xmas I decided that if a position came up at the worksite 2 hours away in a semi rural area then i would apply as i would love to have a small house, and have my vege garden. I would much prefer a 45 minute drive to work on quiet roads than the 45 minute in constant traffic that i do now.
a job has come up and i have applied, just waiting to hear if they will offer it to me
I am working on the theory if it is meant to be - it is meant to be
Hope you get a good night sleep and feel even better tomorrow... (or today by the time you read this)
It is friday morning for me, I am at work, trying to get the intray emptied, emails answered so i start next week with a clean desk ...... we have a work BBQ today for lunch and i am helping out with the preperation and serving, so will be watching 140 people eat a heap of food that i can not eat. and taking my own GF/YF/DF rissotto to eat!
The sun is shining, we have a slight breeze and it is about 29 degrees Celsius ( 84.2 degrees Fahrenheit)
my digestion is AOK today, and TK (the keeper, nick name for new man) is cooking me a GF/YF/DF dinner so i could not ask for more............
my catch phrase is....... some days are diamonds, some days are stone... today is a diamond day.....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Andi,
It was good to hear that you are feeling much better today.
You asked about rebound going off Entrocort. Like with any steriod, you taper down. The last time I took it, over 2 years ago, I had to taper down over a 8 week period, 4 weeks at 2 pills and then 4 weeks at 1 pill. I have had to use it for 2 major flares. The rest I am able to control with immodium.
I hope you can get yourself able to make your trip home. Good luck with this.
Jan
It was good to hear that you are feeling much better today.
You asked about rebound going off Entrocort. Like with any steriod, you taper down. The last time I took it, over 2 years ago, I had to taper down over a 8 week period, 4 weeks at 2 pills and then 4 weeks at 1 pill. I have had to use it for 2 major flares. The rest I am able to control with immodium.
I hope you can get yourself able to make your trip home. Good luck with this.
Jan
While you are proclaiming peace with your lips, be careful to have it even more fully in your heart. - Saint Francis of Assisi
Andi.
Just wanted to let you know that Dr. Fine himself is vegetarian. I believe he eats nuts instead of animal flesh, although at one time I think he did eat occasional salmon. That may be no longer true. Of course, he totally avoids grains, dairy, and some other things that give MCers trouble. Have you ever checked out his nutritional advice? You can find it at www.finerhealth.com. Since you have a lot of knowledge about healthful eating, I'd be interested in your response to his principles for eating healthfully.
Love,
Polly
Just wanted to let you know that Dr. Fine himself is vegetarian. I believe he eats nuts instead of animal flesh, although at one time I think he did eat occasional salmon. That may be no longer true. Of course, he totally avoids grains, dairy, and some other things that give MCers trouble. Have you ever checked out his nutritional advice? You can find it at www.finerhealth.com. Since you have a lot of knowledge about healthful eating, I'd be interested in your response to his principles for eating healthfully.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Andi, your description of your home sounds like heaven. You are so blessed to live in such a beautiful setting and it sounds like you have a good man to go with it! I'm glad to hear you're doing better and things are improving. This board has rescued me from many a hard day. I'm a teacher and have a little time off so I've been able to post a bit more. I know you'll find your way through this
and my thoughts and prayers will be with you.
Gabes, you have been a wonderful addition to our family here and I'm glad your life is so great now. May it continue on and on.
Love and health to both of you, JoAnn
and my thoughts and prayers will be with you.
Gabes, you have been a wonderful addition to our family here and I'm glad your life is so great now. May it continue on and on.
Love and health to both of you, JoAnn
- Gabes-Apg
- Emperor Penguin

- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Thanks JoAnn.....
this family has been a wonderful addition to my life.
I dont have immediate family here in Brisbane, so when i was sick it was just me. This MC family has given me sanity as i transition through the MC diagnosis and management of the demon and i feel honoured to be part of it.
there are stone days, luckily there are more diamond days than stone ones!!
off to cook 300 sausages!!!!
take care!
this family has been a wonderful addition to my life.
I dont have immediate family here in Brisbane, so when i was sick it was just me. This MC family has given me sanity as i transition through the MC diagnosis and management of the demon and i feel honoured to be part of it.
there are stone days, luckily there are more diamond days than stone ones!!
off to cook 300 sausages!!!!
take care!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes,
I hope your BBQ was wonderful and congrats with TK. Keep me up on how that goes, I was 49 before I met mine.
Good luck with the getting the job as well, let me know.
Polly,
I did not know that, that is very interesting. Yes, I will definitely check it out.
JoAnn,
My guy Dave is a teacher also. He teaches highschool AP Physics. What do you teach? How do you deal with teaching when MC hits? Can you just run out of the room if you need to?
I wont be around a computer for a week, starting tomorrow, so I wish everyone well and thank you for your help this past few days.
I hope your BBQ was wonderful and congrats with TK. Keep me up on how that goes, I was 49 before I met mine.
Good luck with the getting the job as well, let me know.
Polly,
I did not know that, that is very interesting. Yes, I will definitely check it out.
JoAnn,
My guy Dave is a teacher also. He teaches highschool AP Physics. What do you teach? How do you deal with teaching when MC hits? Can you just run out of the room if you need to?
I wont be around a computer for a week, starting tomorrow, so I wish everyone well and thank you for your help this past few days.

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