Visit the Microscopic Colitis Foundation Website
Last month I catered a job for exercise equipment where the spokesmodel/athlete/celebrity was also GS. We talked a lot about our own experiences/health issues and she enjoyed my GF options. Turns out, after I sent her all my GF recipes, that she writes as a freelancer for several magazines. She now wants to explore writing a GF cookbook and also to write an article on me and what I do in my job. I'd be interested in this only if it were presented as an article to make people aware of all the forms of illness that can be attributed to Gluten intolerance and would love to mention this site in the article. The magazines she writes for relate to health and body building (Oxygen & Men's Health are 2 she has written for that I know of), she is a very well known person in that world and also has a degree in Neuroscience.
I would do this only if people here would be comfortable with that, as this could also possibly effect the "family" environment here by making it public to people who don't necessarily share our histories. Do you think this would be a good or bad idea considering the crazies out there on the internet?
Connie
Would a magazine article mentioning PP be OK?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Would a magazine article mentioning PP be OK?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Gabes-Apg
- Emperor Penguin
- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
I ponder the question..... what value would someone have in joining this site, and having conversations with the MC family if they weren't suffereing some sort of digestion issue?
if they are not truely interested, a few discussions about our poop types will probably scare them off!!!
if they are not truely interested, a few discussions about our poop types will probably scare them off!!!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
This Forum is only the 2nd I've ever been involved with. The other was a forum for survivors of Childhood Abuse and the format for it was almost exactly the same as this one and clearly is "hosted" by the same people "Powered by phpBB". People there were very careful NOT to disclose personal information publicly as there were occasionally perverts who would come on and spam the site and cause a raucous. Many people there were very fragile as this was the first time they had ever felt safe to disclose their history of abuse. I don't know what security measures this host site has (since it is the same format) but that site was hacked - literally taken over - by a real whack job who made personal threats and blocked the site. It took days to get him off the site and restore it and in the meantime you can well imagine the panic it caused. Very shortly after that the site was closed permanently, 3 years ago, and I have been leery of being involved in any kind of forum since - until this one.
While I don't imagine that any kind of internet search on the topics discussed here would attract child molesters, there is a great deal of personal information that people, including me, have innocently shared here that could possibly be used nefariously by someone with the skills, time and motivation to do it, (I'd put nothing past the drug companies) so maybe it would be best not to open this site up to that. Tex has enough on his hands already.
While I don't imagine that any kind of internet search on the topics discussed here would attract child molesters, there is a great deal of personal information that people, including me, have innocently shared here that could possibly be used nefariously by someone with the skills, time and motivation to do it, (I'd put nothing past the drug companies) so maybe it would be best not to open this site up to that. Tex has enough on his hands already.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
we have had many peoples pop in--ask a few questions--and then just disappear into thin air~~~
true, sometimes peoples can just be NOSEY to see what is said etc. but so far there havent been any serious issues--
Barbara
true, sometimes peoples can just be NOSEY to see what is said etc. but so far there havent been any serious issues--
Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
I didn't know that Dee was writing a cookbook, Joan, perhaps she would be the one to interview about this. The more that I think about this, the less I feel like I'd want PP mentioned in an article. People can research for themselves, like we did.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
The cookbook that I am working on will not only deal with NCGS, but also dairy & soy intolerances, since it seems that these 3 seem to follow each other. There are so many misdiagnosed people walking around, not getting any help from their GI's or their PCP's. I want to reach these overwhelmed people that are at the end of their ropes to let them know that their is a diet that will help reduce the inflammation of not only MC, but other autoimmune illnesses. I want to let them know that yes, there is hope and they can and will get on the road to recovery...
I would love to have the opportunity to interview with the contact that you have..
The more info that I can get out there and the more people that I can reach would be such an asset in improving so many dealing with these health issues.
Love
Dee~~
I would love to have the opportunity to interview with the contact that you have..
The more info that I can get out there and the more people that I can reach would be such an asset in improving so many dealing with these health issues.
Love
Dee~~
"What the heart gives away is never gone ... It is kept in the hearts of others."
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Gabes-Apg
- Emperor Penguin
- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Dee, both my naturopath and acupuncturist (both close friends) whenever someone comes to them and has niggling health issues, the first thing they recommend is to give up gluten/wheat for 3 months
in majority of cases the person improves and further, once the body is a bit happier they test out elimination of yeast and dairy etc and determine if they are an intollerance.
what you are doing is fantastic. having the cookbook with articles providing eduction about intollerances is important.
in majority of cases the person improves and further, once the body is a bit happier they test out elimination of yeast and dairy etc and determine if they are an intollerance.
what you are doing is fantastic. having the cookbook with articles providing eduction about intollerances is important.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi Connie,
If you do get interviewed, it can be enough just to say that you found help from an online forum of people with MC. You don't need to name the forum. Anyone who is suffering and has good enough computer access will be able to google and find us quickly enough, once they know we are here to be found.
Lyn
If you do get interviewed, it can be enough just to say that you found help from an online forum of people with MC. You don't need to name the forum. Anyone who is suffering and has good enough computer access will be able to google and find us quickly enough, once they know we are here to be found.
Lyn
Connie,
The "Powered by phpBB" does not refer to the host, but to the source code, (computer language), that operates the board. Some boards use php code, others use VBulletin, and there are a few other types of BB code available to choose from. Boards that use outdated source code are very vulnerable to hackers. Constant vigil is necessary to stay at least one step ahead of hackers, because they are continually improving their skills at taking advantage of vulnerabilities in the code.
While anyone in the world with a computer, and an internet connection, can find and read this board, you're correct in thinking that bringing attention to a board increases it's vulnerability. Any board can be compromised, if the hacker is skilled enough, and has enough time to devote to the task. Obviously, popular boards make favorite targets, because the more lives that can be disrupted by hacking a board, the bigger the "thrill" to the hacker. So how secure is this board? Pretty secure, but not invincible, of course, due to the reasons cited above. Believe it or not, one of the biggest vulnerabilities on discussion boards is members selecting easy-to-discover passwords, such as words that can be found in a dictionary. If every member uses complex passwords, (random combinations of letters, numbers, and other characters, at least 13 characters long), security is greatly enhanced.
It's a free country, so I'm not going to try to tell you what to do - that's up to you. If you do decide to advertise the board, though, I would appreciate your advising me before the publish date, so that I can change the new member authorization process from "self-authorizing", to "admin authorization". That won't help to reduce the hacking risk, but it will provide some degree of control, since it will prevent anyone from registering and immediately posting.
Thanks,
Tex
The "Powered by phpBB" does not refer to the host, but to the source code, (computer language), that operates the board. Some boards use php code, others use VBulletin, and there are a few other types of BB code available to choose from. Boards that use outdated source code are very vulnerable to hackers. Constant vigil is necessary to stay at least one step ahead of hackers, because they are continually improving their skills at taking advantage of vulnerabilities in the code.
While anyone in the world with a computer, and an internet connection, can find and read this board, you're correct in thinking that bringing attention to a board increases it's vulnerability. Any board can be compromised, if the hacker is skilled enough, and has enough time to devote to the task. Obviously, popular boards make favorite targets, because the more lives that can be disrupted by hacking a board, the bigger the "thrill" to the hacker. So how secure is this board? Pretty secure, but not invincible, of course, due to the reasons cited above. Believe it or not, one of the biggest vulnerabilities on discussion boards is members selecting easy-to-discover passwords, such as words that can be found in a dictionary. If every member uses complex passwords, (random combinations of letters, numbers, and other characters, at least 13 characters long), security is greatly enhanced.
It's a free country, so I'm not going to try to tell you what to do - that's up to you. If you do decide to advertise the board, though, I would appreciate your advising me before the publish date, so that I can change the new member authorization process from "self-authorizing", to "admin authorization". That won't help to reduce the hacking risk, but it will provide some degree of control, since it will prevent anyone from registering and immediately posting.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Dee,
I will PM you with the name of the woman I am referring to.
He's written several articles about gluten that I have linked to on other posts here. I put him in the same class with Dr. Fine. He is a rogue MD. It's like there are all these little pieces of a puzzle and we all contribute a piece here and there and after awhile it just all might make a picture that everybody can see. I was writing earlier about my positive experience with L-Glutamine and then I read Dr. Hymans article and the comments made by all the skeptics and then I research the things he linked to and it all just fits SO close.
But still the little puzzle tabs are "being put together by my 2 yr. old granddaughter - so close but......and I think of how I feel as the Nana, wanting to help, but not too much, I want her to learn so I don't "fix" it for her and I know there are doctors out there who KNOW all this and want to finish the puzzle and they just aren't being heard because they are the rogues that don't present a profit for the drug companies so they are being muzzled. It is enough to make you crazy.
I heat stripped my house in '92 and was unaware of lead poisoning. Before that I was a stained glass artist, but had problems that I never related to breathing in the lead fumes, just thought I couldn't "concentrate". After stripping my house I was SO sick for 2 mos. and then developed bowel and arthritic issues and after much research I finally had my hair tested for lead. I was through the roof for lead toxicity. I then got chelation for it, but the joint damage was done. At the time I had NO idea that I was born with the genetics that already had compromised my health, but what this did was to make me question everything and I avoided further damaging my health by refusing all the meds prescribed to suppress my immune system. I have had digestive problems, pain problems, all my life and you attribute it to stress and trauma and just explain it away and discount it and then it subsides for awhile so you wonder if it was the food poisoning you just had, etc. when the reality is that you've been being poisoned by your environment for your whole life, whether it be stress that triggers it or not, it is what we eat and breathe that is killing us. I truly believe that if I had done what my rheumatologist prescribed for me then I would be walking stooped over and crippled like my "surviving" siblings do now. This has been a LONG journey for me and at this point I am evangelistic about it and it is so interesting to see and learn just how wide spread this is when you just open yourself up to listen to people and then ask questions, like I did in the restaurant last night.
Somebody needs to write a book that somehow brings all his together, maybe we can all work together on this. I have media contacts through my work, you never know. Perhaps PP can publish!
I am editing here: Good point Lynn.
Tex: Thank you for your input on this, having been through the disruption of a hacker is what made me pose this question in the first place and I see no advantage to exposing this site to this, as I do not want to modify what I write because of fear and do not want that for anyone else. People can find this site as most of us did. Who knows if this would ever be published anyway if she did write the story and submit it.
Connie
I will PM you with the name of the woman I am referring to.
I could have written these words myself, this is exactly what I was trying to tell her about what I wanted to say. Not sure if you are familiar with Dr. Mark Hyman, who is a regular contributor to Huffington Post, but he had an article up today on Mercury poisoning that was very interesting. http://www.huffingtonpost.com/dr-mark-h ... 69358.htmlThere are so many misdiagnosed people walking around, not getting any help from their GI's or their PCP's. I want to reach these overwhelmed people that are at the end of their ropes to let them know that their is a diet that will help reduce the inflammation of not only MC, but other autoimmune illnesses. I want to let them know that yes, there is hope and they can and will get on the road to recovery...
He's written several articles about gluten that I have linked to on other posts here. I put him in the same class with Dr. Fine. He is a rogue MD. It's like there are all these little pieces of a puzzle and we all contribute a piece here and there and after awhile it just all might make a picture that everybody can see. I was writing earlier about my positive experience with L-Glutamine and then I read Dr. Hymans article and the comments made by all the skeptics and then I research the things he linked to and it all just fits SO close.
But still the little puzzle tabs are "being put together by my 2 yr. old granddaughter - so close but......and I think of how I feel as the Nana, wanting to help, but not too much, I want her to learn so I don't "fix" it for her and I know there are doctors out there who KNOW all this and want to finish the puzzle and they just aren't being heard because they are the rogues that don't present a profit for the drug companies so they are being muzzled. It is enough to make you crazy.
I heat stripped my house in '92 and was unaware of lead poisoning. Before that I was a stained glass artist, but had problems that I never related to breathing in the lead fumes, just thought I couldn't "concentrate". After stripping my house I was SO sick for 2 mos. and then developed bowel and arthritic issues and after much research I finally had my hair tested for lead. I was through the roof for lead toxicity. I then got chelation for it, but the joint damage was done. At the time I had NO idea that I was born with the genetics that already had compromised my health, but what this did was to make me question everything and I avoided further damaging my health by refusing all the meds prescribed to suppress my immune system. I have had digestive problems, pain problems, all my life and you attribute it to stress and trauma and just explain it away and discount it and then it subsides for awhile so you wonder if it was the food poisoning you just had, etc. when the reality is that you've been being poisoned by your environment for your whole life, whether it be stress that triggers it or not, it is what we eat and breathe that is killing us. I truly believe that if I had done what my rheumatologist prescribed for me then I would be walking stooped over and crippled like my "surviving" siblings do now. This has been a LONG journey for me and at this point I am evangelistic about it and it is so interesting to see and learn just how wide spread this is when you just open yourself up to listen to people and then ask questions, like I did in the restaurant last night.
Somebody needs to write a book that somehow brings all his together, maybe we can all work together on this. I have media contacts through my work, you never know. Perhaps PP can publish!
I am editing here: Good point Lynn.
Tex: Thank you for your input on this, having been through the disruption of a hacker is what made me pose this question in the first place and I see no advantage to exposing this site to this, as I do not want to modify what I write because of fear and do not want that for anyone else. People can find this site as most of us did. Who knows if this would ever be published anyway if she did write the story and submit it.
Connie
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
I posted this previously
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Dear Stanz
Just read this fascinating string of posts.
Strikes me there are two separate needs. 1) internal help - a place for MC sufferers (ex sufferers) to truly be themselves and support each other. That is what this board does so wonderfully as a family. 2) external advocacy - that wakes up the world to all the issues around food intolerance, medical paradigms, etc.
Best, Ant
Just read this fascinating string of posts.
Strikes me there are two separate needs. 1) internal help - a place for MC sufferers (ex sufferers) to truly be themselves and support each other. That is what this board does so wonderfully as a family. 2) external advocacy - that wakes up the world to all the issues around food intolerance, medical paradigms, etc.
Best, Ant