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Another Thankful Newbie
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Another Thankful Newbie
Hello everyone. Im new here and amazed at the fountain of knowledge available on your forum. Thankyou for being here for us all. I had a colonoscopy recently and as it showed I have diverticulosis I was advised to go high fibre and take Psyllium.
Then a week later was informed that the biopsy showed I have Lymphocytic Colitis and to go Low fibre. So I am confused re the conflicting fibre advice.
(Test for Celiac disease showed negative.)
The tests and colonoscopy were because I was "going" about 6 or so times a day for about 5 months.
I delayed going to the Doctor about it as Id had a long history of constipation (up till about 2000 when I did Sandra Cabot's Liver Cleansing Diet which gave me a healthy daily visit )So I actually wasnt minding going more often and so easily and feeling proper movements and sensations over these months, then began to wonder why.
I have had to stop using Naproxen( which we suspect triggered LC) and use rest, movement and Paracetamol to help cope with arthritis pain.
Since beginning the Psyllium and cutting down tea and having no coffee, lessening fibre and only having Yoghurt of dairy, and soy milk , Im now only 'going' 2 or 3 times a day.
Reading here, I so feel for you all who suffer more than I have ( so far) and will continue to read and learn how to manage this' problem'of ours.
"Never pray for lesser burdens but for broader shoulders."
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Olivia-Micro-Colitis
- Adélie Penguin
- Posts: 119
- Joined: Fri Mar 26, 2010 8:51 pm
- Location: Fallbrook, Ca
hi
HI Welcome to our Family! Feel free to ask questions!
-Live
-Live
Dear Emjayn
IMHO I would say, if you are in a flare, cut out the fiber - at least for now. Also try and work out your food intolerances ASAP..... Yogurt may or may not be a problem as it is diary and many with MC are intolerant to all forms of diary, as well as gluten. Also soy affects some (including me unfortunately). Check out https://www.enterolab.com/Home.htm
All best wishes on your journey to remission, Ant
IMHO I would say, if you are in a flare, cut out the fiber - at least for now. Also try and work out your food intolerances ASAP..... Yogurt may or may not be a problem as it is diary and many with MC are intolerant to all forms of diary, as well as gluten. Also soy affects some (including me unfortunately). Check out https://www.enterolab.com/Home.htmAll best wishes on your journey to remission, Ant
Hi Em and
Happy to meet you! In general, low fiber is the way to go with LC, especially while the gut is still acutely inflamed.
Even though your celiac test was negative, the odds are that you are gluten-sensitive. Most of us here are - our kind of gluten sensitivity does not show up on the traditional celiac tests. And unfortunately, GI docs don't know about this. The only available test to find our gluten sensitivity is done by Dr. Fine's lab in Texas. Check out www.finerhealth.com. Folks from all over the world have sent stool samples to his lab - from Spain, Hong Kong, Netherlands, etc. The lab can also identify other food sensitivities too - like dairy, soy, egg, etc.
Looking forward to further chats.
Love,
Polly
Happy to meet you! In general, low fiber is the way to go with LC, especially while the gut is still acutely inflamed.
Even though your celiac test was negative, the odds are that you are gluten-sensitive. Most of us here are - our kind of gluten sensitivity does not show up on the traditional celiac tests. And unfortunately, GI docs don't know about this. The only available test to find our gluten sensitivity is done by Dr. Fine's lab in Texas. Check out www.finerhealth.com. Folks from all over the world have sent stool samples to his lab - from Spain, Hong Kong, Netherlands, etc. The lab can also identify other food sensitivities too - like dairy, soy, egg, etc.
Looking forward to further chats.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Emjay,
Welcome to our internet family. I can only second what Polly has said, especially since she is a doctor, and the only doctors who seem to truly understand MC, are the ones who actually have the disease themselves, (though I'm sure that there are probably a few GI docs with MC, who still do not understand the disease.
).
As one who also had diverticulosis/diverticulitis, (I say had, because I no longer have a colon, so I no longer have diverticulosis
), I have to agree with Polly, that until you get your MC into remission, minimize the fiber, as it will only prevent you from reaching remission, or at least delay the process. You may not have to totally avoid it, just minimize it for a while. After your gut heals a while from the damage, then you can safely experiment with slowly adding more fiber back into your diet.
I also had a history of constipation, and in fact, my MC alternated between D and C, (there are a number of others here, who have experienced the same reaction pattern. Though most people tend to think of MC as a diarrhea-predominant disease, lt can present in other ways, also, obviously.
Again, welcome aboard,
Tex (Wayne)
Welcome to our internet family. I can only second what Polly has said, especially since she is a doctor, and the only doctors who seem to truly understand MC, are the ones who actually have the disease themselves, (though I'm sure that there are probably a few GI docs with MC, who still do not understand the disease.
). As one who also had diverticulosis/diverticulitis, (I say had, because I no longer have a colon, so I no longer have diverticulosis
), I have to agree with Polly, that until you get your MC into remission, minimize the fiber, as it will only prevent you from reaching remission, or at least delay the process. You may not have to totally avoid it, just minimize it for a while. After your gut heals a while from the damage, then you can safely experiment with slowly adding more fiber back into your diet.I also had a history of constipation, and in fact, my MC alternated between D and C, (there are a number of others here, who have experienced the same reaction pattern. Though most people tend to think of MC as a diarrhea-predominant disease, lt can present in other ways, also, obviously.
Again, welcome aboard,
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
greetings from Oz, Emjay
Within the world of MC, we are all different, reactions to certains foods can be different, some people can not even be within smelling distance of gluten whereas others can handle and cook with gluten based foods. In relation to other ingredients and food items again the reaction levels are wide and varied. The same can be said re the meds, some people have no issues, others have bad side effects.
what i have learnt is that there is no right way or wrong way there is my way. GI Specialists and Doctors will read from their computers the protocol that is recommended, reading the posts on this website these protocols dont work for everybody.
finding out what works takes time, (bummer hey...) I was diagnosed in Dec '09. Found this website within 3 days of diagnosis (thank goodness) i am still having minor flares but generally if i stick to a basic diet and try not to get stressed at work then things are pretty good.
as Tex mentioned constipation can be an issue, I am currently juggling the dosage of one of my meds to get the balance of stopping D through the night and not making myself constipated. It is like being in a maze, i am finding the foods i eat, even what time i have dinner seems to affect things.
This family is a great place - you can ask anything, share good days and bad days..
take care
Within the world of MC, we are all different, reactions to certains foods can be different, some people can not even be within smelling distance of gluten whereas others can handle and cook with gluten based foods. In relation to other ingredients and food items again the reaction levels are wide and varied. The same can be said re the meds, some people have no issues, others have bad side effects.
what i have learnt is that there is no right way or wrong way there is my way. GI Specialists and Doctors will read from their computers the protocol that is recommended, reading the posts on this website these protocols dont work for everybody.
finding out what works takes time, (bummer hey...) I was diagnosed in Dec '09. Found this website within 3 days of diagnosis (thank goodness) i am still having minor flares but generally if i stick to a basic diet and try not to get stressed at work then things are pretty good.
as Tex mentioned constipation can be an issue, I am currently juggling the dosage of one of my meds to get the balance of stopping D through the night and not making myself constipated. It is like being in a maze, i am finding the foods i eat, even what time i have dinner seems to affect things.
This family is a great place - you can ask anything, share good days and bad days..
take care
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hello again and a grateful Thankyou to each of you for your welcomes and responses. They are all helpful and Im taking notes in a notebook .( easier than carting the computer around with me as its not a laptop!! :-) )
Im suspecting lettuce at this stage and maybe corn. Even tho I chewed the corn fritters thoroughly the other night, Im passing whole looking kernels. I had a talk with my Dr today and she agreed a forum would probably be my best help as she is not familiar with LC. She agreed I should keep on lightening fibre and staying off dairy (except Yoghurt which feels very soothing on my tum.) Will check out the sites youve recommended too. My hubby is diabetic with heart probs and Ive had high cholesterol so our diet has been high fibre for some time. He cooks ( reluctantly) 3 nights a week so dont want to make it too complicated having by 2 different meals. Will study where glutin is and cut down on that as I go . So much to learn eh. But Im excited to find such a valuable and friendly forum.
Im suspecting lettuce at this stage and maybe corn. Even tho I chewed the corn fritters thoroughly the other night, Im passing whole looking kernels. I had a talk with my Dr today and she agreed a forum would probably be my best help as she is not familiar with LC. She agreed I should keep on lightening fibre and staying off dairy (except Yoghurt which feels very soothing on my tum.) Will check out the sites youve recommended too. My hubby is diabetic with heart probs and Ive had high cholesterol so our diet has been high fibre for some time. He cooks ( reluctantly) 3 nights a week so dont want to make it too complicated having by 2 different meals. Will study where glutin is and cut down on that as I go . So much to learn eh. But Im excited to find such a valuable and friendly forum.
"Never pray for lesser burdens but for broader shoulders."
It's possible for someone with MC to be sensitive to corn, but very few of us are. Be aware that everyone passes whole kernels of corn, (everyone in the general population, not just people with MC), if the corn kernels are not chewed thoroughly. Cattle have four stomachs, to aid in digestion, but until they are almost mature, even cattle cannot digest whole-kernel corn, unless it is cracked, or otherwise fractured, before it is added to their feed ration. The problem is that the pericarp, (the "shell" on the corn kernels), is impervious to ordinary digestive juices and enzymes, so digestion of the contents is impossible, as long as the pericarp remains intact.
Most of us are very, very sensitive to lettuce, and have to avoid it. It is very common with MC, when a flare is at it's worst, to pass virtually anything and everything that is eaten, intact, (IOW, it is not digested). People with MC become toilet-watchers.
Good luck with your recovery program.
Tex
Most of us are very, very sensitive to lettuce, and have to avoid it. It is very common with MC, when a flare is at it's worst, to pass virtually anything and everything that is eaten, intact, (IOW, it is not digested). People with MC become toilet-watchers.
Good luck with your recovery program.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
- Emperor Penguin
- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Shirley
that is soo funny - i have had the same thoughts when the same thing happens.
one BM it floats, one BM it is like soft serve, and then the next one, it hides.
thanks for the laugh and for the englightment that i am not going mad!!!
that is soo funny - i have had the same thoughts when the same thing happens.
one BM it floats, one BM it is like soft serve, and then the next one, it hides.
thanks for the laugh and for the englightment that i am not going mad!!!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Gabes-Apg
- Emperor Penguin
- Posts: 8367
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
there is an aussie rock and roller (now deceased) called billy thorpe.
he wrote a song and the chorus was
most people i know, think that i'm crazy.........
i might be least mad but i think i am a little bit crazy!!!
he wrote a song and the chorus was
most people i know, think that i'm crazy.........
i might be least mad but i think i am a little bit crazy!!!
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
hehee, Thanks for the giggles. Tex Im interested in your corn Info. Of course its only that we are interested that we look, and find out the corn is whole. Probably always was for me but Ive only recently taken note. Over Easter I broke a tooth, a Root canal tooth, so has already cost me a fortune. Since my clever dentist remade the tooth after Easter , I find my bite doesnt close tight on one side, so can only thoroughly chew on the newly mended side. I need to make an appointment to get my bite leveled as I know thorough chewing is the first part of good digestion.
I will avoid lettuce now, thats for sure after your info. Suspected it for some time, sadly after finding I love crunchy Cos Lettuce.
Love the sense of humour here. Thankyou all.
I will avoid lettuce now, thats for sure after your info. Suspected it for some time, sadly after finding I love crunchy Cos Lettuce.
Love the sense of humour here. Thankyou all.
"Never pray for lesser burdens but for broader shoulders."
welcome
Emjayn,
Welcome to our family. I am an LVN that works in a large emergency room, and FYI for all of you out there, many of our docs recommend eating corn as a "home remedy" treatment for constipation. So, it would make sense that if we eat corn in our condition, it could make it worse. As Tex mentioned, corn doesn't bother some people. It could be an intolerance. Since you ate a corn fritter, maybe it could be the gluten as well. I think your keeping a notebook is a great idea. You may want to start a journal of what you eat and how it affects you. All of us here are taking it one day at a time. I am still in the process of figuring out my intolerances and I was diagnosed with MC over 5 years ago.
This is a great place for information and support. Keep us posted on your progress!
Til next time!
Romanita
Welcome to our family. I am an LVN that works in a large emergency room, and FYI for all of you out there, many of our docs recommend eating corn as a "home remedy" treatment for constipation. So, it would make sense that if we eat corn in our condition, it could make it worse. As Tex mentioned, corn doesn't bother some people. It could be an intolerance. Since you ate a corn fritter, maybe it could be the gluten as well. I think your keeping a notebook is a great idea. You may want to start a journal of what you eat and how it affects you. All of us here are taking it one day at a time. I am still in the process of figuring out my intolerances and I was diagnosed with MC over 5 years ago.
This is a great place for information and support. Keep us posted on your progress!
Til next time!
Romanita
I can do ALL THINGS through Christ who strengthens me!!!!