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I have a question, it's a bit of an odd thing where I have never read anything about on the board. Maybe it is only me, but I am going to give it a try. Long before the MC started as heavy D I had bowel problems category "IBS". It is quite difficult to describe, but I am going to give it a try.
I can feel the food in my bowel (the colon), it is nothing at all like cramping or 'uncomfortable feeling'. It is like food is irritating my bowel surface. It is a bit of a tickling feeling, like something is tickling on the surface of bowel. It does not hurt but can drive me quite greasy, I can't sit than I have to move. It gives me restless legs. But most of the time it is a problem during night. It is feeling I can't stand, but it is not pain, not cramping. Just a terrible feeling, I want to get away from. Tickling is the best word I can up with or like there is a worm going through my colon or an insect (I say - like-, there aren't any I may hope). Is there anyone that recognizes this?
It has everything to do with what I eat. So mostly I control it now with diet, but it can drive my greasy during night (and has driven me greasy for nights and has been the main cause of my sleeping problem I figured out the last months). Also this problem limits me a lot in what I can eat.
tickling feeling in the colon
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Hi Harma, I don't have the tickling feeling in my colon, but I have it in other parts of my body and I also began to suffer with restless legs when I got mc.
I even went to a neurologist because of the muscle twitches, tickling, etc. that I have experienced with mc. They ruled out anything serious and the best name they can come up with is benign fasiculation syndrome (bfs). I don't know if yours might be something similar. I personally believe it is part of my autoimmune response (also have thyroid issues with mc) You're not alone with weird things, JoAnn
I even went to a neurologist because of the muscle twitches, tickling, etc. that I have experienced with mc. They ruled out anything serious and the best name they can come up with is benign fasiculation syndrome (bfs). I don't know if yours might be something similar. I personally believe it is part of my autoimmune response (also have thyroid issues with mc) You're not alone with weird things, JoAnn
Hi Harma,
Yes, I can relate to weird sensations that make you think you're going crazy. I'm used to the big tummy rumbles and intestinal spasms. It's pretty obvious what they are. Then on the good days, there's this other milder sensation. The only way I can describe it is like a cell phone on vibrate. I describe it that way because there was a period of a few weeks when I left my cell phone on vibrate in my coat pocket and I kept checking it but no one was calling. At first, I still wanted to blame it on the cell phone and just figured it was one of those entering/leaving coverage alerts. I should note that I only have a cell phone for emergencies so I'm not used to carrying one, but had it with me all the time for a while for a family situation. Then one time I checked my cell phone and I had forgotten to turn it on. I realized the vibrations were coming from my midsection and not my phone. After that, I started noticing the vibrations were happening quite often and not just when I had my cell phone with me. Now they've been happening for so long that I'm used to it. I still can't tell when I have a phone call if I put my cell phone on vibrate in my coat pocket though.
Karen
Yes, I can relate to weird sensations that make you think you're going crazy. I'm used to the big tummy rumbles and intestinal spasms. It's pretty obvious what they are. Then on the good days, there's this other milder sensation. The only way I can describe it is like a cell phone on vibrate. I describe it that way because there was a period of a few weeks when I left my cell phone on vibrate in my coat pocket and I kept checking it but no one was calling. At first, I still wanted to blame it on the cell phone and just figured it was one of those entering/leaving coverage alerts. I should note that I only have a cell phone for emergencies so I'm not used to carrying one, but had it with me all the time for a while for a family situation. Then one time I checked my cell phone and I had forgotten to turn it on. I realized the vibrations were coming from my midsection and not my phone. After that, I started noticing the vibrations were happening quite often and not just when I had my cell phone with me. Now they've been happening for so long that I'm used to it. I still can't tell when I have a phone call if I put my cell phone on vibrate in my coat pocket though.
Karen
Karen,
Check this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=5942
How about that?
Tex
Check this thread:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=5942
How about that?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
Thanks for the thread. I did a little web searching and it seems there are many theories for vibration or fluttering like sensations. The gallbladder area and fatty food connection mentioned in the thread is speculated to come from a twist or spasm affecting bile flow. Other vibration or fluttering sensations have been reported in association with autoimmune disorders like MS, diabetic neuropathy, brain/spinal problems, GI motility issues, mini spasms and all the way to the other end of the spectrum - phantom vibrations in those who are essentially OCD with their cell phone. I turn my cell phone on maybe twice per month to clear out the occasional message from someone who dialed the wrong number and left a voice mail, so I'm fairly certain cell phone OCD is not my issue. I do have problems with neuropathies, GI motility, spasms and fat malabsorption (irregular bile flow is likely), so any or all could be likely candidates for me.
Unfortunately, with so many possible causes there doesn't appear to be any consistently effective method to get of it. For some people, massaging or stretching the area helps. Mine has occurred for so long that I don't notice it most of the time, but on bad days, there is no sitting still. Sometimes massage or stretching/yoga helps. Sometimes taking a walk helps. If I'm at work and can't do those things, chewing gum hard sometimes helps to stimulate GI motility and move things along if food is stuck somewhere. More often than not, I think the really bad times are when something is a little stuck because after a while there will be a little pop, rumble and then the sensation is gone.
Karen
Thanks for the thread. I did a little web searching and it seems there are many theories for vibration or fluttering like sensations. The gallbladder area and fatty food connection mentioned in the thread is speculated to come from a twist or spasm affecting bile flow. Other vibration or fluttering sensations have been reported in association with autoimmune disorders like MS, diabetic neuropathy, brain/spinal problems, GI motility issues, mini spasms and all the way to the other end of the spectrum - phantom vibrations in those who are essentially OCD with their cell phone. I turn my cell phone on maybe twice per month to clear out the occasional message from someone who dialed the wrong number and left a voice mail, so I'm fairly certain cell phone OCD is not my issue. I do have problems with neuropathies, GI motility, spasms and fat malabsorption (irregular bile flow is likely), so any or all could be likely candidates for me.
Unfortunately, with so many possible causes there doesn't appear to be any consistently effective method to get of it. For some people, massaging or stretching the area helps. Mine has occurred for so long that I don't notice it most of the time, but on bad days, there is no sitting still. Sometimes massage or stretching/yoga helps. Sometimes taking a walk helps. If I'm at work and can't do those things, chewing gum hard sometimes helps to stimulate GI motility and move things along if food is stuck somewhere. More often than not, I think the really bad times are when something is a little stuck because after a while there will be a little pop, rumble and then the sensation is gone.
Karen