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Whenever I eat I have an almost immediate reaction of being freezing cold. My body temp plummets and this seems to last for at least an hour after a major meal and by major, it's not a lot of food by my recent dietary habits.
I get goosebumps all over and am shivering cold and often need to stand in front of a portable heater for quite awhile before I feel normal again. I'm talking about literally hunching over in front of a heater until it is burning hot and I am still icy cold. It is an all over body thing, not just hands and feet.
My body temp drops after eating - anyone else?
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My body temp drops after eating - anyone else?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Sorry, Connie
Wow, that sounds pretty unusual to me. No, I never heard of it but maybe Tex or Polly know about it.
Have you always had that reaction or just recently?
Have you always had that reaction or just recently?
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
Joan,
This has been going on for years now, actually. We normally keep the heat low at our house and i try to layer clothes, actually wear long johns from about Oct-May most of the time and have done so most of my life. When I stopped having the D reaction I was in LA and it was actually pretty warm there compared to Oregon, so I somehow thought that being GF had "cured" me of this. Reality is that I just don't usually eat anything but dinner and immediately after that I cannot wait to get under blankets with a heating pad until I fall asleep and then I wake up about 3 hours later and am too hot. It's just a bizarre cycle. I just ate some lunch about a half hour ago, as I'm about to do something physical yardworkwise and thought I should force myself to eat something prior. I've been sitting here with a heater blowing on me now for a half hour and am just barely coming around to feeling somewhat warm.
This has been going on for years now, actually. We normally keep the heat low at our house and i try to layer clothes, actually wear long johns from about Oct-May most of the time and have done so most of my life. When I stopped having the D reaction I was in LA and it was actually pretty warm there compared to Oregon, so I somehow thought that being GF had "cured" me of this. Reality is that I just don't usually eat anything but dinner and immediately after that I cannot wait to get under blankets with a heating pad until I fall asleep and then I wake up about 3 hours later and am too hot. It's just a bizarre cycle. I just ate some lunch about a half hour ago, as I'm about to do something physical yardworkwise and thought I should force myself to eat something prior. I've been sitting here with a heater blowing on me now for a half hour and am just barely coming around to feeling somewhat warm.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Gabes,
Exactly, I literally go from 2 blankets, heating pad, long johns and a fleece shirt to waking up around 1 AM just sweating and for the rest of the night I am w/o fleece, blankets and heating pad, using only a sheet. I don't think it's menopause.
Connie
Exactly, I literally go from 2 blankets, heating pad, long johns and a fleece shirt to waking up around 1 AM just sweating and for the rest of the night I am w/o fleece, blankets and heating pad, using only a sheet. I don't think it's menopause.
Connie
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
I didn't realize you were in Oregon. I thought you were in LA.
Did you Google that? Other people have the same thing but I don't know if it is that severe.
I imagine that you've asked your docs about it since it has been going on for such a long time......
As the King of Siam said to Anna, "Tis a puzzlement."
Did you Google that? Other people have the same thing but I don't know if it is that severe.
I imagine that you've asked your docs about it since it has been going on for such a long time......
As the King of Siam said to Anna, "Tis a puzzlement."
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
I'm getting prolotherapy tomorrow, Joan, so I will ask my ND about it then. My daughter lives in LA, and has a 4 mo. old baby, that's why I was there in Dec. I'm going back there in 3 wks. to be a Nana for awhile.
Frankly, I don't ask anything of my MD's anymore, they have been wrong about pretty much everything for over 15 years and I go to OHSU, which is a hospital and a medical school. I self dx if I have an infection, etc., and just research and go in and tell them what's wrong. Other than that they are virtually worthless and I've given up on them. They're happy to prescribe steroids for my MC, but won't order my Glutamine, which has worked, has no side effects, and costs less than $40/mo. My ND told me in Jan '07 to quit eating gluten, I could have saved myself a lot of grief if I'd listened to him then. I found him via research for alternative treatment for cartilage loss and was lucky to find him 3 miles away and an expert on Prolo, which I'd decided I wanted to try - - - because...
OHSU wanted to do a trapeziectomy on my left thumb, a surgery that is at best 60% successful, involves months of PT and recovery and only was necessary because OHSU mis/dx an injury where I fell and hyperextended my thumb. There were no broken bones, but when I requested the XRays to take to this ND to talk to him about prolotherapy (which has saved me so much pain and grief), he took one look at the XRay and said, "the thumb bone is completely out of joint, that is why you have bone and cartilage loss", big surprise. Guess if it isn't broken or bleeding or they can't prescribe a drug - they just don't know what to do. I know I sound bitter here, but Jesus, you have no idea of the time and $ I've wasted, not counting the pain I went through for all those years. And don't even get me started on the lead poisoning fiasco. Oh, too late.
The VA is the ONLY medical facility I am aware of anywhere that recognizes that adults can even HAVE lead poisoning and treat it. When I was getting chelation for it, every man I met at the clinic while we were getting our IV's were referred by the VA. The VA doesn't even treat these guys in their own facility, they refer them out to Naturopaths.
Not to insult the MD's here, I know that not all doctors quit learning when they get their diploma, I'm just still angry.
Frankly, I don't ask anything of my MD's anymore, they have been wrong about pretty much everything for over 15 years and I go to OHSU, which is a hospital and a medical school. I self dx if I have an infection, etc., and just research and go in and tell them what's wrong. Other than that they are virtually worthless and I've given up on them. They're happy to prescribe steroids for my MC, but won't order my Glutamine, which has worked, has no side effects, and costs less than $40/mo. My ND told me in Jan '07 to quit eating gluten, I could have saved myself a lot of grief if I'd listened to him then. I found him via research for alternative treatment for cartilage loss and was lucky to find him 3 miles away and an expert on Prolo, which I'd decided I wanted to try - - - because...
OHSU wanted to do a trapeziectomy on my left thumb, a surgery that is at best 60% successful, involves months of PT and recovery and only was necessary because OHSU mis/dx an injury where I fell and hyperextended my thumb. There were no broken bones, but when I requested the XRays to take to this ND to talk to him about prolotherapy (which has saved me so much pain and grief), he took one look at the XRay and said, "the thumb bone is completely out of joint, that is why you have bone and cartilage loss", big surprise. Guess if it isn't broken or bleeding or they can't prescribe a drug - they just don't know what to do. I know I sound bitter here, but Jesus, you have no idea of the time and $ I've wasted, not counting the pain I went through for all those years. And don't even get me started on the lead poisoning fiasco. Oh, too late.
The VA is the ONLY medical facility I am aware of anywhere that recognizes that adults can even HAVE lead poisoning and treat it. When I was getting chelation for it, every man I met at the clinic while we were getting our IV's were referred by the VA. The VA doesn't even treat these guys in their own facility, they refer them out to Naturopaths.
Not to insult the MD's here, I know that not all doctors quit learning when they get their diploma, I'm just still angry.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Connie,
Couple of thoughts . . .
1. Make sure your thyroid function is normal - feeling cold is a symptom of hypothyroid.
2. Are you underweight or eating too few calories? This can lead to feeling cold.
3. While digesting food more blood is diverted to the digestive organs and that could possibly lead to a temporary cold feeling. When I first got sick I felt cold all the time and was convinced my thyroid was off a bit, but it wasn't. My symptoms resolved after avoiding sensitive foods (not just gluten, dairy and soy, but other foods that caused mediator release). I am guessing that foods I was eating revved up my immune system and blood flow was diverted there to dump mediators.
3. I also think I have POTS (postural orthostatic tachycardia), which is a form of autonomic dysfunction. Sometimes people with this complain of feeling too cold or too hot. You can be symptomatic after meals with POTS, especially after eating a high carb meal.
Mary Beth
Couple of thoughts . . .
1. Make sure your thyroid function is normal - feeling cold is a symptom of hypothyroid.
2. Are you underweight or eating too few calories? This can lead to feeling cold.
3. While digesting food more blood is diverted to the digestive organs and that could possibly lead to a temporary cold feeling. When I first got sick I felt cold all the time and was convinced my thyroid was off a bit, but it wasn't. My symptoms resolved after avoiding sensitive foods (not just gluten, dairy and soy, but other foods that caused mediator release). I am guessing that foods I was eating revved up my immune system and blood flow was diverted there to dump mediators.
3. I also think I have POTS (postural orthostatic tachycardia), which is a form of autonomic dysfunction. Sometimes people with this complain of feeling too cold or too hot. You can be symptomatic after meals with POTS, especially after eating a high carb meal.
Mary Beth
Connie,
As you probably know, body temperature normally rises after eating. If the hypothermia only happens following a meal, (postprandial), it would just about have to be a rare condition known as Episodic Spontaneous Hypothermia, Induced by Hyperinsulinemia. Hyperinsulinemia, of course, is common in people with type 2 diabetes, or insulin resistance, and it's often associated with metabolic syndrome. Another possible cause is pancreatic cancer, so you really need to get that checked out, ASAP. Your loss of appetite is also almost certainly connected with this.
Here's a reference:
http://content.karger.com/ProdukteDB/pr ... tNr=224036
This is a long shot, so please don't assume that you have it, before having some tests done, but we're talking about a rather rare condition here, with some rather unique features.
Concerned,
Tex
As you probably know, body temperature normally rises after eating. If the hypothermia only happens following a meal, (postprandial), it would just about have to be a rare condition known as Episodic Spontaneous Hypothermia, Induced by Hyperinsulinemia. Hyperinsulinemia, of course, is common in people with type 2 diabetes, or insulin resistance, and it's often associated with metabolic syndrome. Another possible cause is pancreatic cancer, so you really need to get that checked out, ASAP. Your loss of appetite is also almost certainly connected with this.
Here's a reference:
http://content.karger.com/ProdukteDB/pr ... tNr=224036
This is a long shot, so please don't assume that you have it, before having some tests done, but we're talking about a rather rare condition here, with some rather unique features.
Concerned,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Mary Beth, Gabes & Tex,
So I've just come from my ND appt. and we talked about this. All my recent bloodwork is perfect, my thyroid is fine, and there is no concern of Hyperinsulinemia in his opinion, particularly so because it is rarely associated with being underweight.
His take on this: It is a parasympathetic response where the blood is being drawn from my extremeties in order to aid in digestion for my health compromised intestines and is exacerbated by the fact that I am so thin. My body mass index has gone from 24.96, 3 years ago, to 18.28 as of today. I am officially considered underweight now and need to work on getting my BMI back up to at least 22.00, which means I need to gain about 25 lbs., I just wish I had an appetite, but I will work on this.
Prolotherapy hurts, but I always enjoy our chats while he's repeatedly poking a needle into both of my wrists. Today he told me a story about his experiences with C as a ND, he had to have been just starting out as a ND then and it changed his focus entirely. He had a patient who had volunteered to go to Nicaragua to rebuild water systems in the wake of the destruction done there by the Contras to the infrastructure there after Ortega was elected. He'd gone with a group from his church and all of them got some sort of intestinal infection while there. All but he had recovered, but this had triggered Celiac in him and he had developed Dermatitis Herpetiformis to a point where his life was in danger. He'd tested positive for C in blood tests, but none of his docs at OHSU ever told him that it was associated with gluten and after 3 years of pointless treatment, in desperation, he sought alternative treatment and was cured. Similar story with a female patient who developed DH after a trauma. Truly frustrating that our MD's are still so clueless - 30 years (and endless published research studies that MD's apparently never read) later, because the vast amount of research is not done in the US. My ND volunteers a month of his life every year to go to Mexico to treat people there with prolotherapy. I love this guy.
Connie
So I've just come from my ND appt. and we talked about this. All my recent bloodwork is perfect, my thyroid is fine, and there is no concern of Hyperinsulinemia in his opinion, particularly so because it is rarely associated with being underweight.
His take on this: It is a parasympathetic response where the blood is being drawn from my extremeties in order to aid in digestion for my health compromised intestines and is exacerbated by the fact that I am so thin. My body mass index has gone from 24.96, 3 years ago, to 18.28 as of today. I am officially considered underweight now and need to work on getting my BMI back up to at least 22.00, which means I need to gain about 25 lbs., I just wish I had an appetite, but I will work on this.
Prolotherapy hurts, but I always enjoy our chats while he's repeatedly poking a needle into both of my wrists. Today he told me a story about his experiences with C as a ND, he had to have been just starting out as a ND then and it changed his focus entirely. He had a patient who had volunteered to go to Nicaragua to rebuild water systems in the wake of the destruction done there by the Contras to the infrastructure there after Ortega was elected. He'd gone with a group from his church and all of them got some sort of intestinal infection while there. All but he had recovered, but this had triggered Celiac in him and he had developed Dermatitis Herpetiformis to a point where his life was in danger. He'd tested positive for C in blood tests, but none of his docs at OHSU ever told him that it was associated with gluten and after 3 years of pointless treatment, in desperation, he sought alternative treatment and was cured. Similar story with a female patient who developed DH after a trauma. Truly frustrating that our MD's are still so clueless - 30 years (and endless published research studies that MD's apparently never read) later, because the vast amount of research is not done in the US. My ND volunteers a month of his life every year to go to Mexico to treat people there with prolotherapy. I love this guy.
Connie
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.