My first CCFA meeting

Olivia-Micro-Colitis · Thu Apr 22, 2010 8:52 am

Lol Good morning! Yummy coffee! So last night i went to my first CCFA support meeting in San Diego. It was Awesome!! I actually met another gentleman who has MC!!!! He had no idea about our forum tho! he had so many questions so i emailed him this morning the link! many people asked me lots of questions about MC and completley acceptted me! Also an update on My Take steps team we have raised $600!!!!!!! Thank you so much for your support! When i walked in last night to meet the Take Steps San Diego chairman i introduced my self and she was like "Olivia! I'm so excited to meet you and your LC team, you guys are really getting the MC word out in San Diego!" She knew who i was just by my name. lol Alot of the other teams have been fundraising for a while so we are starting a lil late but definately making a dent! I'm so proud!

harma · Post by **harma** » Thu Apr 22, 2010 9:51 am

wow, that is something to actually meet somebody with the same disease as you, I mean in real live, I know a lot, but the chance that I will actually meet one of the members here, chances are very loooow

Post by **tex** » Thu Apr 22, 2010 11:40 am

Olivia,

Good for you! You're really making a good impression in San Diego, and you're definitely getting the word out.

Tex

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 22, 2010 1:23 pm

Olivia
that is fantastic news....
meeting people with similar conditions takes away the alienation type feeling (that you might be feeling at work)

did they discuss treatments or diet?

hope your days continue to be positive!

Stanz · Post by **Stanz** » Thu Apr 22, 2010 1:24 pm

Oh, you are a tiger, Olivia, good for you. Put that frustration to good use and do good things with it, I'm very proud of you. I hope you are taking care of our dear Olivia at the same time, aren't you??

Olivia-Micro-Colitis · Thu Apr 22, 2010 1:34 pm

We did talk all about diet, foods that worked, ones that don't, gluten free all kinds. There is also a store called Whole Foods that has a nutritionist who will print out all the gluten free products in the store and take you around the store to help you. I also met a crohns patiet on entocort. We spend 2 hours talking about everything. it was awesome! lol. i'm doing my best to stay hydrated. i have a colapsed vein from the IVs. other than that i'm pretty good today! how is everyone else doing? work is so boring! I'm ready to go home!

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 22, 2010 1:52 pm

it is wonderful to hear you happy and more accepting of this demon!

I am so so - after 5 days of having normal BM and thinking i had the diet, small amt of meds combo sorted, there was a set back last night. Trying not to let it get me down.
It is Friday morning here, end of the week, we have a 3 day weekend in commeration of Anzac Day (WW1 & WW2 rememberance)
no news on the interview or the job i applied for so far... i suppose no news is good news but, being the control freak that i am it is difficult to just be patient!

hope you have a great weekend and the moving prep is going well

Stanz · Post by **Stanz** » Thu Apr 22, 2010 1:59 pm

I'm doing great, Olivia, and am especially happy to see you becoming a warrior on this, guess it is what we should expect from someone like you.

Gabes, you are only human and I hope you can enjoy your 3 day weekend regardless of the no news on your application. I know we all grabbed onto TK for love of you, but no relationship should define who we are. You do what's in your best interests and follow your gut. We care - I know we can't hug you physically - but we care and if I could hug you, I would.

Connie

Olivia-Micro-Colitis · Thu Apr 22, 2010 2:13 pm

*Hugs* to Gabes! keep your head up!! just know that we love you! besides a 3 day weekend would be sooooooooo nice! Work just keeps piling up on me and all my Marines are out doing stuff so i'm here by myself. the funny thing is when i finally get one task done, more keep stacking up! :work2:

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 22, 2010 3:36 pm

Thanks Connie and Olivia
I can feel the hugs.

TK is away on holidays, not in phone range. I got an email from him this morning. Since lmy divorce i have been very aware of not letting any relationship define who i am.
I am keen to sort out the work situation and remove current stresses regarding that. For both my health and so I have clearer head to figure out what the rest of stuff

mbeezie · Post by **mbeezie** » Thu Apr 22, 2010 4:13 pm

Gabes,

Are you making GF Anzac biscuits? We learned all about Anzac day when we visited a museum in Melbourne . . . . don't remember much except special cookies . . . enjoy your time off.

Mary Beth

Gabes-Apg · Post by **Gabes-Apg** » Thu Apr 22, 2010 4:23 pm

no GF anzac biscuits, too many banned ingredients in them. (coconut, oats)
i have been on a very basic diet - down the track i might be able to adapt the receipe.

I was hoping to go to one of the memorial services or the extensive ex-serviceman march in the city. given the set back last night (poop accident in the car on way home) I am a bit excursion shy.

Olivia-Micro-Colitis · Thu Apr 22, 2010 10:09 pm

To be honest i wear depends under my cammies at work everyday and there is so much traffic off base and no where to stop to go if i need to so it makes me feel a lil safer when i have one on. plus i think the ruffles are cute!

Gabes-Apg · Post by **Gabes-Apg** » Fri Apr 23, 2010 12:50 am

he he he Olivia
thanks for the laugh....

Cammies hide everything!!!

ant · Post by **ant** » Fri Apr 23, 2010 7:04 am

Olivia and Gabes

"Listening" to you two chat (OK am reading, but it feels like a conversation), I think you must meet! You both have such attitude and fight.... wonderful!

Ant

MICROSCOPIC COLITIS SUPPORT

My first CCFA meeting

My first CCFA meeting

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