Question from another newbie

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Linda in BC
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Question from another newbie

Post by Linda in BC »

Hi , I'm Linda and I joined last week. I posted my "story" but did it in a thread about mouth sores. If anyone is interested in my situation the link to that post is here:
http://www.perskyfarms.com/phpBB2/viewt ... ght=#74229

I have ordered the test from Dr. fine, and decided to go for the full panel with gene testing and the soy test. To be honest, I am terrified the test will come back with sensitivity to both soy and wheat, in addition to the casein, which I already know about. After reading the education lectures on the Enterolab website, I sure know a whole lot more than before, and have gathered that if I am casein intolerant there is an extremely high chance that I am also wheat intolerant. This possibility makes me so sad. Life without dairy has been difficult enough, but if I can't have wheat or soy either, I really don't know what I am going to eat :cry: However, since I have been so sick for so long, I realize it is better to know what is going on than to not know (information is power) even if it is news i don't want to hear. And I guess I am just going to have to"cowboy up".

My question is about the database of enterolab results. Has anyone done any analysis of the data? If so where could I find it? I will be happy to add my data to the results. I think it would be quite fascinating to see any glaring correlations that might show up.

Thanks again for all the help, support and welcomes.
Linda
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Post by tex »

Hi Linda,

There's an entire section of the board devoted to Member Test Results From Enterolab. It contains a section on gene test results only, with comments on the implications of the results,

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10084

and a section on food testing results, (that also includes gene test results, but without comments).

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10089

"But what can I eat?", is a very common question by new members of this board - the reality is that there is no shortage of good, safe food for us to eat. Dee is a professional chef, and she has developed, thoroughly tested, and posted hundreds of gourmet recipes that are free of gluten, dairy products, and soy:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=7

For additional meal suggestions, look in the section on Special Information for People Who Have Multiple Intolerances

such as

http://www.perskyfarms.com/phpBB2/viewforum.php?f=53

Most people gain weight on the diet - starvation is not an issue. :wink:

You're most welcome,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gabes-Apg »

Linda
life is a bit different with a limited ingredient base, but not impossible

it does take a bit more time but worth the effort.
There are loads of recipes in Dee's kitchen section of this site.

i have adopted 'cave man' diet stewed meat and rice and 1 or 2 vegetables.
50 - 70 years ago it was this type of diet our ancestors were eating.

it is only in the last 30 years that we have embraced a variety of cuisines in our lives. it is a case of retraining our brain and tastebuds.
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Linda in BC
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Can stopping wheat before the tests affect the results?

Post by Linda in BC »

I also meant to ask if I should just continue to eat as I have been until I do the testing or can I start onwheat free right now? I have been experimenting with trying to eat less or no wheat, since reading the articles by Dr. fine. I am very curious to see if I actually can get some relief by eliminating wheat, and impatient to be well, of course, but I don't want to screw up the test results.
Linda
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Linda in BC
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Thanks, Gabes and Tex

Post by Linda in BC »

I had totally missed the diet section of the site .. there is so much information on here!! Wow!
The stewed meat and rice sounds managable for sure.. was that what you were talking about when you mentioned doing your broths, or do you make soup as well?
I think my biggest questions are around breakast foods.. lunch and dinner I can handle savoury foods but rice for breakfast does not sound .. well. ... you know.. :party: and I have high cholesterol so eggs everyday is not an option.

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Post by JLH »

:welcome: You are right, there is so much reading that it will make your head spin to say nothing of your eyes.

You can go gluten free right away. It won't mess up EnteroLab tests. :grin:

Your choice, give up your intolerances or D. :twisted:
DISCLAIMER: I am not a doctor and don't play one on TV.

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Post by JLH »

BTW, it has to be all gluten not just some. There is hidden gluten in a lot of things including meds.

I've lived dairy free for decades. I can handle being GF, I don't much like it but I can handle it. Soy, there's the rub, but maybe you won't be intolerant of it.
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Post by Linda in BC »

Thanks , Joan. Yes, I use soy to substitute for the milk a lot, so I'm sure both would be hard. So, I hope you don't mind my asking but what do you have for breakfast?
Linda
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Post by Gabes-Apg »

pre MC i used to have lots of raw vege salads and fruit when at work so to adjust to low fibre diet has been a big adjustment for me


breakfast
i am not sure of the range where you live, in australia there are quite a few GF/DF/SF cereals, if you find a milk you can use (rice milk or equiv) then that is quick and easy
banana smoothie maybe
check out your local health food shop for GF/DF bread

lunches could be something on rice cakes, given the cholestral i dont think avocado will work but maybe some lean chicken or turkey.

I adopted the overcooked cave man food based on advice from my naturopath that we have to treat my digestion system like a baby, we have to teach it to work again. I started with well cooked gooey food, (i used to put it through the food processor)
stews and broths would work well.

and as joan has said, check every label of every product, for the hidden gluten. even things like balsomic vinegar has a caramel colouring that is derived from wheat.

there are some great discussions in diet and treatment thread about what people eat for meals
you can use the PP search - ie look up the word banana or breakfast

it will be a bit overwhelming at first, and take a bit of adjusting. to eliminate frequent D and other symptoms (bubbly bum gas etc) it is worth it

good luck
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Post by Gabes-Apg »

Linda
this post from polly might help

http://www.perskyfarms.com/phpBB2/viewt ... ght=banana
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Post by Gabes-Apg »

There are three areas you will find great info and hints on meals

- dee's kitchen
- meal suggestions
- treatment with diet/meds

as i said if you use the PP search function for certain ingredients (oats, or cereal) then this will help you find the discussions where people have offered up their suggestions

there are lots of recipes on the net, if you do a google search for gluten free breakfast i am sure you will get quite a few other suggestions.
in Dee's kitchen there is a great post that has substitutions, ie how to subsitute yeast in a recipe or egg in a recipe. YOu can use these to tweak normal recipes to suit our unique needs. I have learnt when adapting recipes to be gluten free that you need to up the liquid qty by about 10 - 15%

hope this helps!
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Post by Linda in BC »

Gabes, thank you, thankyou, thank you! this information on where to find more, and Polly's post were perfect! :flowersmiley: I was just drawing a blank on breakfasts!
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!

Post by Gabes-Apg »

you are most welcome Linda
I am just doing what the wonderful people on this site did for me 5 months ago

the first couple of months is the hardest - figuring out what you can eat and what you cant, and coming up with meals and snacks that will suit your lifestyle...

take care and good luck with your new meal plans!

:chef2:
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Post by JLH »

My breakfast probably isn't very healthy but I eat frozen waffles and frozen French toast sticks for the most part. I eat bananas if I have ripe ones. There is cereal like Rice Crispies at the health food store.
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Post by tex »

Linda,

Note that Joan is not suggesting that you eat Rice Crispies, she's merely stating that the health food stores usually sell gluten-free products that are similar to Rice Crispies. Rice Crispies, (like most mainstream breakfast cereals), contain barley malt, (which contains hordein - hordein is the protein prolamin equivalent of the gluten in wheat, and everyone who is sensitive to wheat gluten, is also sensitive to hordein).

Tex
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