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Study on impact of GF diet
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Study on impact of GF diet
Most people are about as happy as they make up their minds to be.
- Abraham Lincoln
- Abraham Lincoln
Thanks, Dan.
Based on the results of that survey, no one appears to be doing a very good job of informing celiacs on the details of the disease and/or the treatment. If GI docs can't even do an adequate job of advising celiacs about the diet, it's no wonder that we don't have much luck with them.
Overall, those survey responses suggest that on the average, celiacs may be having a harder time complying with the diet requirements than we are.
Tex
Based on the results of that survey, no one appears to be doing a very good job of informing celiacs on the details of the disease and/or the treatment. If GI docs can't even do an adequate job of advising celiacs about the diet, it's no wonder that we don't have much luck with them.
Overall, those survey responses suggest that on the average, celiacs may be having a harder time complying with the diet requirements than we are.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Interesting that only 28% felt that the quality of information was excellent from their GI. Sheesh! They diagnose them with the disease; gluten-advoidance is the medical recommendation, and they even mess that up? That tells me that GIs will never be helpful with our disease.
Gloria
Gloria
You never know what you can do until you have to do it.
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Gabes-Apg
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Delta
great picture......
and re study and tex's comments
Seriously - they remove gluten from their diets, maybe there are other ingredients that give them minor reaction and the medical profession says remove gluten and you will be fine...... like it is a cure.
Doctors never recommend seeing a dietician, specialists do not give information about impact of a compromised digestion system and the impact on nutrients etc
great picture......
and re study and tex's comments
thats because they dont have a forum like this!celiacs may be having a harder time complying with the diet requirements than we are
Seriously - they remove gluten from their diets, maybe there are other ingredients that give them minor reaction and the medical profession says remove gluten and you will be fine...... like it is a cure.
Doctors never recommend seeing a dietician, specialists do not give information about impact of a compromised digestion system and the impact on nutrients etc
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I don't understand this, maybe it differ by country. Here in the Netherlands there are whole programs for celiacs and whole protocols. You see a GI doc every year, you are checked for other auto immune disease every year, you are (or at least can be) referred to a dietician specialized in Celiac (4 hrs advice of a dietician is part of basic health care package here, than means it is free, also for non celiacs), if one person has celiac they will check the whole family (blood and gene test). They even start a program to follow young children from whome abrother, sister or parent have celiac (to see if the young children develop it too, there are monitored). And if you are diagnosed with celiac, after starting the diet you get a control biopsy 4 months later to see if the villi are back again. And of course they get a dexa (bone) scan, standard (I had to ask for one) And let me don't forget to mention their tax reduction every year of about 1500 Euros, because gluten free food is more expensive than "normal" food (well the gluten free replacements).
Like I say, is probably different in every country. Only problem here can be the general practitioners. To see a specialist (GI) here you need a refer of the GP and their knowledge of celiac is not always that great.
If the "real" celiacs already think with an official dx their gluten free live is hard, what about all the gluten free people without a dx?
Like I say, is probably different in every country. Only problem here can be the general practitioners. To see a specialist (GI) here you need a refer of the GP and their knowledge of celiac is not always that great.
If the "real" celiacs already think with an official dx their gluten free live is hard, what about all the gluten free people without a dx?
Harma,
The health care system in your country is way ahead of ours, where celiac disease is concerned.
Tex
The health care system in your country is way ahead of ours, where celiac disease is concerned.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes but when it becomes to other diseases related to gluten, the non celiac gluten intolerances, than medicine here also lives in the dark ages. Even the "alternative" medicine are lacking behind. Actually there is almost no information available in Dutch on non celiac gluten intolerance on the internet. Everything I know I found here or that site glutenfreeandbeyond. Even worse there is a curse here on eating gluten free and not having celiac. They (the celiacs) are the real ones!! (I will not repeat myself I have posted about this before).