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Linda in BC
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Post by Linda in BC »

Connie, magnesium is the one thingtht takes my at- night leg cramps away, and I was getting them very badly, too.
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Post by Stanz »

Linda, just checked the new bottle of Calcium I've been taking, just assumed it contained magnesium, as I'm pretty sure it was in the prior pills, NO magnesium in this, just Calcium and vit D. Will pick up some magnesium. What's odd is that both my husband and I seem to be getting leg cramps since we've both been GF - he not entirely GF - but since I do the cooking, he gets what I make :lol: so he's pretty well GF too. Can only guess that maybe it is related.
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Post by JLH »

Linda, if you are taking magnesium in pill form, it can be contributing to your D. I learned on the PP forum to use a spray form of it. I know Tex does use pills and I would much rather do that but I don't want to experiment on how much I can tolerate.....
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Post by Stanz »

Joan, I've never heard of a spray form of this? Do you spray it in your mouth?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Post by Linda in BC »

Interesting about the magnesium pills and D. (though I had the D. long before i started the magnesium!) still it could be making it worse or continuing it. We did have a discussion about calcium doing that too, so I have been backing off a bit on the calcium and just taking the magnesium some nights because I know if I skipthe magnesium, the leg cramps come back for sure. That is why I asked once if anyone had ever heard of a sublingual ( but spray would work too) calcium supplement.

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Post by tex »

Connie,

I suppose it may be possible that the L-G might cause muscle cramps, but I know virtually nothing about it, so any guess that I might make would be virtually worthless. I have to point out, though, that many of us, (including myself), had that problem during our recovery, and most of us weren't taking L-G, of course, so it's a common problem for anyone who has had MC symptoms long enough to run a risk of vitamin deficiencies. Adding a supplement with the "B" vitamins seemed to resolve the problem for me, (along with getting rid of an easy-brusing problem), but cramps can be caused by so many things, that there are a lot of possibilities, and I'm sure that there is a wide variation in the chemistry that is taking place within each of our bodies.

I wonder if there's a possibility that the extra L-G might put additional demands on muscles, so that the requirements for certain vitamins might be way above normal, (IOW, if you happen to have a malabsorption problem, you might still have a problem absorbing enough of certain vitamins to meet the needs of your body). That's just me thinking out loud, though. :shrug:

Yes, most people in the general population are low on magnesium, so the percentage is almost certainly much higher here, (since we tend to avoid many foods with a high magnesium content), and yes, magnesium is a laxative, (Remember Milk of Magnesia), so it doesn't take much to cause D.

Currently, I'm not taking any magnesium supplement, but I will probably have to correct that situation one of these days. I stopped taking it when I added nuts back into my diet, but, of course, the nuts didn't last long, since they caused digestive distress and D, also. :sigh:

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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Stanz »

Thanks for the input, Tex.

According to my Enterolab tests and all my blood work, I didn't have a malabsorption problem at the time that I collected the samples. I just think it's kind of strange that both my husband and I are getting them and wonder if there were some nutrients in the breads, etc. that we were eating that we now need to replace.

In all reality, it's probably just what you said, I'm still healing. He's under huge stress at work, it's probably just coincidental.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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Post by Linda in BC »

Connie, maybe do check out the magnesium tho..in light of the fact that the new calcium you bought just happens not to have magnesium and you are now getting the cramps, sounds like there could be a connection.. there certainly was for me..
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Post by JLH »

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Post by tex »

Connie,

The primary difference between wheat flour, and alternative flours, (and this also applies to most breakfast cereals, and their GF counterparts), is that all wheat flours and mainstream breakfast cereals are "enriched" with vitamins and minerals, especially folic acid. Be sure you're getting enough folic acid, or your body can't utilize the B-12 that is in your diet. The "authorities" point out that we only need 400 micrograms of folic acid per day, (not miligrams - micrograms), and the upper allowable limit is 1,000 micrograms, but the Metanyx tablets that I take every day contain the equivalent of 19-400 microgram tablets of folic acid, (IOW, 19 times the RDA), and when the neurologist checked my lower-leg reflexes on May 5th, (connected with the TIA), she found that my reflexes were pretty much back to normal, meaning that the peripherial neuropathy that had led to my diagnosis of Parkinson's disease, last August, had been mostly reversed, after taking the Metanyx for a little over 8 months. She agreed with me that I did not have Parkinson's disease, after all, in view of the dramatic recovery of my sensory perceptions. That result had to be due to the megadoses of B-6, B-9, and B-12 in the Metanyx.

IMO, since I do not have diabetes, the peripheral neuropathy had to be due to years of accumulated gluten damage - there's no other possible explanation. I didn't have a fecal fat test until I had already been GF for over 3 years, and my score was under 300 at the time, but according to Dr. Fine's analysis, I still showed evidence of residual small intestinal damage, sufficient to classify me as gluten-sensitive, without any antigliadin antibody, or antitissue-transglutaminase antibody tests.

Some authorities claim that sublingual tablets are not as effective as they are claimed to be. :shock: Research shows that megadoses of conventional supplements are often more effective than the recommended sublingual treatments. I listed a couple of references on that somewhere, only a few days ago, if my memory is not playing tricks on me.

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Post by Stanz »

Thanks, Linda and Joan,

I read the thread you linked to, Joan, I will look for the spray oil, and if I can't find it I'll buy pills, as I'm not having problems with D now and it's one of the least expensive supplements out there.

Interesting about the hair loss/magnesium connection. I used to take magnesium every day, probably did for years, and in all reality I've probably been just assuming it was in the calcium tabs for years since I changed to Caltrate 600 and I don't remember when I did that. Always just assumed that my hair loss was related to the nearly 3 yrs of D and the malabsorption that MUST have come with that, despite my test results.

I've been saving the hair from my hairbrush and have quite the "rat" now. My former MIL had a huge "rat" that she used to make her hair look fuller when she wore it up. Had planned to do the same should I ever take the time to actually have any kind of hairstyle other than the pageboy I've had since I was a teenager, LOL.
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Post by JLH »

I've got hairloss, too, Connie. :mad: I am really depressed about it. :sad:

I had a page boy all my life until after chemo over 10 years ago. Now it's short, my chemo do.
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Post by Stanz »

Tex,

We crossed in the mail again. I take 1600mcg of Folic Acid/day, it's in the sublingual B12/B6 I take and according to the RDA it's 400x the RDA.

As to the Parkinsons - as my daughter's FIL was mis/dx with it many years ago and took drugs for it since then and was recently told he never had it, I'd just love some advice.

Her FIL was a college professor, he is nearly completely out of his mind now from the mis/dx and the drugs that he was taking that were contraindicated. It is crazy-making to see him where he is now, he is in a wheelchair, he can't speak a clear sentence. His wife is also nuts, the only food they have in their "adult" housing apartment is super processed crap, mostly sugar and carbs and you can only imagine that he is making his 2 children crazy with his condition and lack of mentation. The place where they live is charging them an amount that is slowly bleeding his huge savings down to nothing - and don't even let me get started on this scam that is viral.

If I could go over there with supplements, what would they be? and of course I realize that bringing in supplements doesn't equate to the crazy wife actually getting him to TAKE them, but with some good reasons, my SIL would.
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Post by tex »

I take 1600mcg of Folic Acid/day, it's in the sublingual B12/B6 I take and according to the RDA it's 400x the RDA.
Actually, that's 400% of the RDA, which is only 4x the RDA.

Is your DH taking this also?

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Post by Stanz »

No, I'm the only one taking this here. Yeah, you're right on the math there, it's 400%, not 400x.

Sorry, Linda, we've hijacked your thread here.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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