Wonderful Website

GRB · Post by **GRB** » Tue Sep 14, 2010 12:00 pm

I've been reading like a mad woman and there is so much support here. I'm really glad I found you all. I'm new to this having been diagnosed about 2 1/2 months ago. I'm currently taking Entocort, down from 3x a day to 2x a day, tapering off.

I'm so much better and down to around 5x a day visits with pretty normal 'deposits'...no more puffs, no more D. I feel confident to leave the house again.

I will say that I'm overwhelmed with making the drastic change in diet, however I will do it. I truly don't want a relapse.

I'm also interested in finding out the various mental aspects to gluten intolerance. Also, does anyone have any information or experience with intense stress on CC? My life has calmed down but I went through a week of intense stress and noticed it put me back somewhat...I've been having pain and slight nausea that I wasn't. Thanks.

Well, I just wanted to say Hello and Thanks for such a great place for us to share and learn.

wonderwoman · Post by **wonderwoman** » Tue Sep 14, 2010 12:11 pm

GRB

You are in the right place. Being gluten free is the most important aspect for obtaining results with your condition. The sooner you go GF the better. Finding this site has been a life saver for me. I keep getting wrong information from my GI doctor. It does get easier.

GRB · Post by **GRB** » Tue Sep 14, 2010 12:51 pm

Thanks for the welcome and encouragement. My GI didn't offer very much information and I too find this forum and the company very helpful. I'd never heard of this before and have no idea why I have it or for how long I've had it, amazing.

ant · Post by **ant** » Tue Sep 14, 2010 12:59 pm

Dear GRB

from Hong Kong. Keep reading as I am sure you are. This is where you get the full knowledge and sympathetic support for MC. Unfortunately most docs seem to have limited knowledge. Best wishes on your journey to remission, ant

Post by **tex** » Tue Sep 14, 2010 1:23 pm

Hi GRB,

Welcome to our internet family. It's good to hear that you are doing much better.

Please feel free to ask anything,

Tex (Wayne)

Gabes-Apg · Post by **Gabes-Apg** » Tue Sep 14, 2010 2:04 pm

g'day GRD

welcome from australia

:gday:

this is a wonderful site, with loads of wonderful people!

re your question about stress, now that i am following a strict MC friendly diet that suits me (gluten, yeast, dairy and soy Free) Stress is one of the main triggers for the MC that i am managing.

for me if there is a stressful situation/meeting within 4 - 6 hours i do a very smelly and soft BM, there is discomfort before and after and for about 12 hours or so very smelly gas.
Around the time the MC type symptoms first started i was having issues with my adrenals and my body not producing enough cortisol, so now via my acupuncturist we are treating adrenal health

For each of us our triggers and our reactions can be slightly different and treatment wise what works (and what doesnt work) for each person is again slightly different,

keeping a food/activity/symptom/poop diary (aptly named winning the poo diary!) will help you to figure out what works and what could be causing symptoms.

good luck with all your reading,

take care

Joefnh · Post by **Joefnh** » Tue Sep 14, 2010 4:06 pm

Welcome to the group GRB. You have found the best site for support for this disease and have already gotten some great advice.

I'm glad that you have been pursuing treatments hopefully your progress will continue.

Take care, I look forward to your posts

--Joe

GRB · Post by **GRB** » Tue Sep 14, 2010 4:39 pm

Thank you all for your warm welcomes and suggestions. I'll start a 'winning the poo' diary (very cute) and I have begun a serious paleo diet. I'll post how it's going and my results. I also purchased a Tibetan Bells type CD for meditation which will help with my stress level.

Gabes, my Mum was a war bride from Perth...g'day to YOU! lol I have a question about availability of holistic treatment in the health care system there. Is your acupuncturist part of the state health care system or do you have to pay out of pocket.

Gabes-Apg · Post by **Gabes-Apg** » Tue Sep 14, 2010 5:16 pm

thats awesome that you had an aussie mum!

unfortunately - acupuncture is not part of the govt health system.
With my private health cover (in australia private health cover is not part of your income package, individuals choose whether to pay for private health cover or not) the apointments cost me about $35 per visit.

as a balance - I have just found and started seeing a doctor that doesnt cost me out of pocket (my other GP was costing me about $30 per visit)

I was going to acupuncture long before the MC, as I had IBS for many years and issues with homones (PCOS etc) Since the MC diagnosis and while my body is healing from the infllammation I have increased the frequency of my appointments, I am going fortnightly.

Acupuncture has always been something that is not just for the obvious symptoms, it is a whole of body type thing, after a treatment my mind is less foggy, my sleep patterns improve. The focus of the treatments at the moment is adrenals and immunity.

there are a few others on the site that have used or do use acupuncture.

Linda in BC · Post by **Linda in BC** » Thu Sep 16, 2010 9:05 am

Welcome,GRB, from Canada! :dancingpenguins:

(even tho we don't have penguins up here

)

For me, stress is always a major factor on how my MC is behaving. In fact, I am pretty sure it is what precipitated/triggered my getting it 13 years ago. I went through a very stressful and painful divorce and woke up one morning with the Big D, and it has pretty well been non-stop since then, with virtually no help from doctors. I just found this site last June, had Enterolab testing, found out what some of my (multiple) intolerances are and am trying to figure out the rest. The PP site has been a life/sanity saver for me as well.

Glad to hear that you are getting some relief and learning lots. You are on the right path, and it sounds like you have a winning attitude towards licking this.

Regards,

Linda