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Well, I was doing pretty well until about a week ago. For the last few days, lots of trips to the bathroom and green, less than formed stools.
Having to resort to lomotil to get me by. And I have been religious with the diet.
I am about to go off the diet (probably won't) but I sure am discouraged.
Perhaps Entocort is done working for me already?
Long coast to coast flight tomorrow so definitely need the lomotil then too.
I have an all day presentation at University of Maryland today and everyone said I looked tired. They should have said that I looked sick, because that is how I feel. But let them think I am just tired, they wouldn't understand my condition anyways.
I don't get the return to bad BM's?...
Any ideas?
1 month into Entocort - Green Multiple stools again - sigh
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Rich,
Don't be discouraged, first of all. You have multiple reasons for a flare right now - you are on the road, eating out probably, giving presentations, etc. Stress is known to bring those miserable symptoms back like clockwork. And I'll bet anything you have been exposed to multiple intolerances. The only foods you can ever be sure of to be safe are the ones you prepare yourself. Diet takes months usually to work - it took me 9 mo. before I saw a formed BM, so please don't give up so quickly. I can tell that you are a "do it now" person, which will make this disease particularly frustrating for you.
Hang in there and remember that your buddies here have walked in your moccasins and know just how discouraged you feel. Also keep in mind that almost everyone here finds their way back to health. And you will too. Better days are ahead.
Love and
Polly
Don't be discouraged, first of all. You have multiple reasons for a flare right now - you are on the road, eating out probably, giving presentations, etc. Stress is known to bring those miserable symptoms back like clockwork. And I'll bet anything you have been exposed to multiple intolerances. The only foods you can ever be sure of to be safe are the ones you prepare yourself. Diet takes months usually to work - it took me 9 mo. before I saw a formed BM, so please don't give up so quickly. I can tell that you are a "do it now" person, which will make this disease particularly frustrating for you.
Hang in there and remember that your buddies here have walked in your moccasins and know just how discouraged you feel. Also keep in mind that almost everyone here finds their way back to health. And you will too. Better days are ahead.
Love and
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Rich,
Sorry to hear about your setback. One thought comes to mind - on your recommendation, I tried the Outback Steakhouse. I was thrilled with the multiple choices on their gluten free menu, and chose the babyback ribs. Well, when the waitress brought them, a red flag went up in my mind, as they were slathered in BBQ sauce. The waitress assured me that the sauce was gluten free (perhaps it had soy???). Anyhow, I spent the night on the potty.
I can see that with all your traveling, it is impossible for you not to eat out, but this is very likely one of the culprits for your flare, along with the stress that goes along with traveling and public speaking???
Living in NYC for 35 years, I ate out much more frequently than at home over the years, and really never cooked much. It is certainly a difficult transition to change a life long eating pattern, but it is possible. In addition to eating at home most of the time, I have started to bring food along in a little cooler when I travel. Also, I've become a "grazer" rather than eating large meals, which seems to keep my gut a lot happier.
I totally relate to your extreme frustration with this setback, as it takes time and patience to adjust and modify eating habits, it is very challenging and takes a lot of discipline and dedication. However, I'm convinced from all the success stories on this board, that it is absolutely possible.
Lots of luck to you on your journey back to health. Remeber that there are a lot of cheer leaders behind you on this board :).
Warm regards,
Kari
Sorry to hear about your setback. One thought comes to mind - on your recommendation, I tried the Outback Steakhouse. I was thrilled with the multiple choices on their gluten free menu, and chose the babyback ribs. Well, when the waitress brought them, a red flag went up in my mind, as they were slathered in BBQ sauce. The waitress assured me that the sauce was gluten free (perhaps it had soy???). Anyhow, I spent the night on the potty.
I can see that with all your traveling, it is impossible for you not to eat out, but this is very likely one of the culprits for your flare, along with the stress that goes along with traveling and public speaking???
Living in NYC for 35 years, I ate out much more frequently than at home over the years, and really never cooked much. It is certainly a difficult transition to change a life long eating pattern, but it is possible. In addition to eating at home most of the time, I have started to bring food along in a little cooler when I travel. Also, I've become a "grazer" rather than eating large meals, which seems to keep my gut a lot happier.
I totally relate to your extreme frustration with this setback, as it takes time and patience to adjust and modify eating habits, it is very challenging and takes a lot of discipline and dedication. However, I'm convinced from all the success stories on this board, that it is absolutely possible.
Lots of luck to you on your journey back to health. Remeber that there are a lot of cheer leaders behind you on this board :).
Warm regards,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Rich,
FWIW, green, floating, foul-smelling stools are a very common marker of celiac reactions. "Floating" and "foul-smelling" can come from various causes, (and so can green color, in certain dietary situations), but green stools are very typical of reactions resulting from gluten sensitivity. You are probably getting gluten from something in your diet.
Good luck - I hope you can figure it out.
Tex
FWIW, green, floating, foul-smelling stools are a very common marker of celiac reactions. "Floating" and "foul-smelling" can come from various causes, (and so can green color, in certain dietary situations), but green stools are very typical of reactions resulting from gluten sensitivity. You are probably getting gluten from something in your diet.
Good luck - I hope you can figure it out.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
You've got me there - never heard of a "grainy" stool. Green, though, (except in the case of food dies, and certain vegetables), is an indication of rapid transit, because if the contents of the intestines travel too rapidly, there is insufficient time for the normal chemical processes to act on bilirubin, (which normally creates the characteristic brown color of a "blue ribbon quality" Norman), resulting in a green color. If it sinks, it's got a relatively high specific gravity, which would not be typical of a gluten-based reaction. 
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rich,
I don't know if you can tolerate casien, but Outback puts butter on their vegetables. Gluten-free usually means just that - no gluten. All other ingredients are A-OK as far as the restaurant is concerned.
I know you wrote that you tolerated what you eat there, so you probably can disregard my comment, but just in case... Many restaurants also put butter in their rice. It gets maddening sometimes, but we have to remember that they're trying to appeal to the taste buds, not to the digestive system.
Gloria
I don't know if you can tolerate casien, but Outback puts butter on their vegetables. Gluten-free usually means just that - no gluten. All other ingredients are A-OK as far as the restaurant is concerned.
I know you wrote that you tolerated what you eat there, so you probably can disregard my comment, but just in case... Many restaurants also put butter in their rice. It gets maddening sometimes, but we have to remember that they're trying to appeal to the taste buds, not to the digestive system.
Gloria
You never know what you can do until you have to do it.
Just out of curiosity I googled grainy stool in adults. The link below was rather interesting but probably pretty basic.
http://imsorawkin.blogspot.com/2008/01/ ... ently.html
Love, Shirley
http://imsorawkin.blogspot.com/2008/01/ ... ently.html
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill