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I started Entocort last Thursday and today (Sunday) had a visit from my long lost friend Norman!!
So far, so good, and no side effects. I am hopeful. Having done the diet thing for the last 4 months and ferreted out oh so many food intolerances already (tho I realize probably not all) I am hoping that I will have relatively smooth sailing from here on in.
BTW, thanks to all of you for your support, encouragement in my frustration, and sooo much excellent information over these last 4 months. You are all angels.
Hugs, Linda
(sheesh.. this sounds like an acceptance speech for my "Norman" award )
"Be kind whenever possible. It is always possible."
The 13th Dali Lama
Oh, yes, I certainly do intend to stick with the diet , too. What I meant was that hopefully no more hidden intolerances will surface to set me back again, after an initial good response, as happens with some people. I think I already went through that with the Low Dose Naltrexone. By the way, the LDN did help me, it just didn't seem to be strong enough, though to be accurate I never got up to the full 4.5 mg dosage, just up to 3 mg. But for anyone who can't take Entocort, I would recommend trying the LDN. I sure do miss the wonderful sleeps it brought! If anyone wants to no more about it, just ask me.
Thanks again.. had another "normal" morning here. So much so that if I keep on this trajectory, I fear I could be constipated in a day or two. Any hints on whether I should look at cutting back my dosage to two a day, if that happens?
Linda
"Be kind whenever possible. It is always possible."
The 13th Dali Lama
What fabulous news to wake up to - had been thinking about you these last few days and hoping the Entocort would work!!! Today you deserve to celebrate with no worries about the future - enjoy with abandon!!!
Warm regards,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Congrats! And yes, you may have to experiment with cutting the Entocort back to 2 per day, or 2 every other day, if C seems to be a problem.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Linda, that is terrific. Entocort can give you peace of mind as well as a Norman. Diet and Entocort work well together and stay on it long enough to make sure. I got off it after only using it for two months thinking I would be okay, but in six weeks I had a major relapse and I believe my other intolerances kicked in. I have now been on it for another 6 months but I am about to take the jump again. Just keep refining your diet. The real difference for me was when I realized that histamines/Mast cell issues were kicking in big time. Changes again, but they are working. Ginny
God, grant me the serenity to accept the things I cannot change; courage to change those things I can, and WISDOM to know the difference
HAHAHAHAHA, a pure gold toilet. When I went to that you-tube clip, a bunch of others with toilet themes popped up. One was a restaurant where you eat your meal out of a miniature toilet. What is this with Hong Kong and potties? Is there a lot of MC, or do they just appreciate bathroom humor?
Thanks for a good laugh.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Visit the Microscopic Colitis Foundation Website
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and the great part is you can win it over and over and over again. 
