False Hope

[IDreamInColor]

Gee, this disease sure likes to play mind games. Yesterday I was singing the praises of Norman, and I was so happy because I thought that maybe the gluten free diet is finally taking effect. But now here I am this morning with an upset rumbly tummy and already 2 bathroom trips. It just makes me want to sit and cry, oye!!!
I sure am glad you all are here, and understand. These aren't things I would talk about with those close to me, can you smell what I'm steppin' in?
Oh boy, here comes the tears, I need to straighten up and toughen up and learn to accept it better.

[Joefnh]

Hi IDreram, it certainly does play mind games a bit. If there is one thing MC has taught me is PATIENCE It takes a while to start seeing a result. For many with the diet approach it can take 2 - 4 months to really start seeing sustained results. Certainly having a few good and bad days along the way is part of the course of MC., I have learned to look at this not in terms of days, or even weeks, but now a month at a time.

Hang in there if you are true to the diet 'Norman' will be making his visits more often

-Joe

[tex]

Hi IDream,

Unfortunately, Norman can be fickle, sometimes, and as has been pointed out so often on this board, recovery often involves two steps forward, and one step back, but if we take life one day at a time, and stay the course, eventually we reach the promised land of remission.

I hope that this setback passes quickly,
Tex

[Zizzle]

Acceptance doesn't happpen too quickly for most. It took me a few months, and I still get fits of rage and/or depression at times over the whole thing. I definitely went through the stages of grief. My latest rage happened when visiting family, all with a myriad of medical problems, many crappy-diet related. But their medical issues weren't with them every day like MC is - -they could take a pill and forget about it most of the time, blissfully unaware of how much sicker they are making themselves with their extremely unhealthy diets. We never forget we have MC, our elimination diets require constant attention with every morsel we consider buying or eating. We never get a break.

That's just to say, I hear you.

[ant]

Dear Idream,

It is not an easy or short path to remission. There are many ups and downs, (like a game of snakes and ladders), but gradually you should see a positive trend.

MC is very tricky. I like to use the expression "softy, softly catch that naughty MC monkey" - patiently stalk it, work out how to beat it, eventually you will tame it.

Best, Ant

[Ginny]

I dream, we have experienced the same emotions. I've had this for two years, but wasn't diagnosed until year ago July and did not find the potty people until last Nov and then started the diet. It has been a lot of two steps forward and one step backwards. The disease preoccupied my mind and most days at the beginning it was hard to concentrate on anything else. You have to take one day at a time and have patience, but most definitely cry! I've cried going to work, in the middle of the day and on the way home just to crawl into bed and forget that day! BUT keep doing what you are doing and there will be the light at the end of that tunnel. Ginny

[MaggieRedwings]

HI I Dream,

You have already received great advice and it truly is 2 steps forward and 1 step backward. This is by far the trickiest medical problem I have ever dealt with. Usually it is a pill and fine and dandy. Not this one. On our old board - some we remember - we call it the trickster or the "kokopelli" disease. Native American trickster in their lore.

Stick with the diet and you will see results. It just take more time for some of us.

Love, Maggie