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tex
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Post by tex »

Linda,

I agree with Zizzle that it's probably the oil/fat in chips that's causing the problem. I've been in remission for almost 7 years now, but if I overdo the regular Lay's potato chips, they cause D, (and remember, I don't even have a colon, so I always have D, but it's not urgent, secretory D). The point is, too many greasy chips cause me to have prompt, higher volume D). As long as I don't try to pig out on them, I'm fine, so the problem is evidently with the quantity of oil/fat. The same goes for original Fritos. They seem to be even worse. If I eat more than just a few of them, they clean me out in a hurry. Tortilla chips, though, which don't contain near as much oil, work pretty well for me, (except for the fiber, so I certainly don't make a habit of eating them, for that reason).


Zizzle,

As far as I'm aware, most of us can eat pork rinds without any problems. Of course, in excess, they probably pose an oil/fat issue, also, but I've never had a bad reaction to them, and I recall others mentioning that they use them as a snack food. As far as healthy is concerned - well, there's an old saying here in the South: "eating high on the hog", which refers to eating backstraps/loins, baby ribs, etc. You can't eat much lower on the hog than pork rinds. :lol: But they're good, as an occasional snack.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Linda in BC »

You can't eat much lower on the hog than pork rinds.
LOL!
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Kari
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Post by Kari »

It's been 6 days since I got my Enterolab results and stopped eating yeast. I've been going to the P once a day, and one day didn't go at all. Stools are getting firmer, but no Norman yet :). It starts out promising and then gets softer (i.e. starts at close to 4, and ends at 6). I'm also starting to get my energy back, which is absolutely delightful.

Since I don't think I had ever spent a day of my life without eating yeast prior to my lab report, my system reacted strangely to no longer getting it:). I believe I've had "withdrawal symptoms". I got sort of hyper and felt hungry all the time. I had to go for speed walks to work off some of the adrenaline. Today I'm feeling a bit more settled and stable. I wondered if anyone else has had a similar experience?

With this new eating program, it feels like my body is going through some kind of detox, and will stabilize at a new normal at some point in time. However, it will probably take quite a while to get to the new normal (which hopefully will include Normans :).

Best wishes for good health to all of you,

Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Post by tex »

Kari,

That's great news. I hope you continue to feel better with each passing day.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Kari »

Thanks Tex ........ Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Post by Gloria »

That's an interesting yeast withdrawl effect, Kari. It's great that it's making a difference. I hope your improvement continues.

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Post by Zizzle »

Kari, I stopped yeast and gluten at the same time, and had very strange brain-fog and weakness for a few days. I attributed it to gluten withdrawl. I've had yeast in GF bread a couple of times, and I realize it's almost impossible to avoid completely...it lives on fruit and produce! I don't seem to notice any effects when I'm avoiding it 100% (other than less frequent D).

Incidentally, Norman paid me a visit Friday night!! First time all year! I was so happy. No one in my household could appreciate my elation. It was so firm, I almost had trouble passing it, yet it was very small!

I think I was doing well with the diet last week overall, although I did eat my fair share of fruit (bananas, clementines, peeled apples). I recently developed a tea drinking habit every morning at work - Organic Earl Grey. I wonder if that had any effect. The greatest contributor was that is was the premenstrual phase of my cycle when I retain fluids and things tend to firm up (at least they did prior to MC). And I was probably dehydrated too.

Then I managed to foul it up by eating a few bites of spicy Thai food and a Woodchuck Cider at a friend's house (interestingly before Norman arrived, and no reaction). The next day I took my kids to a fall fair and had an unpeeled apple, potato chips, LOTS of kettle corn, apple cider, and some cinnamon-roasted almonds that had a strangely starchy coating...Need I say more?

My period arrived today, along with horrible D. My old hip and low back pain returned with a vengeance too. Gluten-related or period related? I don't know. I've emailed the farm that made the almonds so I know for sure. My DH made us a healthy dinner tonight as part of his new weight loss diet - brown rice, broccoli, and spicy blackened tuna -- MC MURDER! Ugh.

I think I'll post separately about that fiasco...
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Post by Gloria »

I can imagine how excited you were when you saw Norman visit! It's a great feeling, isn't it? Yes, others take Norman for granted, but we know what a great event it is.

You will get to the point where eating other interesting foods isn't worth the price you pay afterward. You are making progress and that's the most important thing to keep in mind.

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Post by Kari »

Gloria - thanks for your wishes - I never dare get too excited since I know it's usually 2 steps forward and 1.5 steps back with MC. I'm so happy for you that the trip to Utah went well, and you're having perfect Normans!!! I was wondering how your energy level holds up? I know that being with children for a long time can be tiring even for those without MC. Anyhow, if your gut is good, that generally goes along with a nice energy level. I have found that I have a lot more stamina around my grandchildren now that I'm healing. This makes it so much more enjoyable to spend time with them.

Zizzle - so happy you've had a Norman - I know, you try to explain it away (dehydrated, etc.), but you should just revel in the fact that you had one and therefore know it's attainable!!!! You now qualify for the PP trophy:):):). I also wanted to tell you that you're very fortunate to be able to eat GF chocolate (even if it's expensive). I have tried it, and had a horrible reaction - so I'll have my potato chips, and you'll have your chocolate :). It's so amazing, as well as amusing, that although we all have the same disease, it is unique for each of us. I also totally understand that you let your guard down - I think we're both in the process of accepting that this is a "for the rest of your life" commitment. For me, I find that gradually over time I'm adjusting to this new way of life, but I'm not yet able to be 100% disciplined. Don't beat up on yourself for slipping up once in a while, you've come a long way ..... Oh, by the way, did you try DMannose? I saw you posting on that thread - it sounds like it would be worth a try. As for me, I've started eating shredded coconut after reading Martha's posts, and I actually think it's helping. Of course, the fact that I love coconut makes this a no brainer for me - it's becoming my go to sweet.

Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Post by Zizzle »

I tried D-mannose on my daughter, not myself. That stuff is expensive at Whole Foods!! I also found cranberry chews that she loves - she thinks they are her "special candy". Whenever I see any signs of UTI coming for her (not drinking enough, pee hurts, or clumps of small bubbles in her pee), I make sure she has a chew or D-mannose in some juice. D-mannose is simply the concentrated form of whatever is in cranberries and berries. It tastes like berries too.

I'm cooking with a lot more virgin coconut oil lately - perhaps related to the norman? I plan to use it as my moisturizer this winter. I might even try adding garlic and spices to make my own "buttery spread". We'll see. I also LOVE apricot/almond/coconut Kind bars. They are my favorite GF bar.

And yes, I don't know where I'd be if I didn't have my chocolate.

With my DH's new diet extoling the importance of polyphenols in tea, I am thoroughly enjoying my daily tea habit as well.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
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Post by Gloria »

zizzle wrote:And yes, I don't know where I'd be if I didn't have my chocolate.
Those were my sentiments prior to this summer. I've since given up chocolate completely and have found there is life after it. Like Joan, I am hoping against hope that I'll be able to eat it again.

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Post by tex »

Zizzle wrote:And yes, I don't know where I'd be if I didn't have my chocolate.
In remission? I have no way of knowing whether chocolate might actually be your Achilles heel, but it has tripped up more than one of us in the past. In at least one case, the problem occurred because it contained undeclared soy lecithin. :shock: That was a tough one to track down, but the member having the problem, discovered that the German label for the same product, listed soy lecithin, whereas the U. S label did not. Within two days, she went from a full-blown reaction, to remission.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gloria »

Tex wrote: it has tripped up more than one of us in the past.
Unfortunately, that's true. Within a day or two of discontinuing my chocolate in June, I was seeing formed BMs - until my next undiscovered intolerance showed up. Soy lethicin wasn't the problem; it was the chocolate.

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Post by JLH »

My chocolate was the Enjoy Life "everything" free micro mini chips and I still couldn't tolerate it. :sad: :mad:

It's been a long time. One day, I'll try them again.
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