Why are mornings the worst time of day for MC?

[hoosier1]

At least this is the case for me...

Tex, perhaps a poll is in order to see when symptoms are most prevalent throughout the day for those on the forum?

Rich

[tex]

Rich,

Virtually everyone reports that their symptoms are usually at their worst, first thing in the morning, and they feel somewhat better, as the day unfolds. I doubt that you will find many exceptions to that general rule. Of course, we sometimes experience unusual days that differ from the pattern, but as a rule, I believe the mornings are the worst part of the day for virtually everyone with MC.

Hopefully, anyone whose experience differs from that, will respond to this post, just to prove me wrong.

Tex

[hoosier1]

Thanks Tex,

I guess misery loves company... especially in the morning hours.

Rich

[tex]

Rich,

Are you seeing any improvement at all in your symptoms?

Tex

[starfire]

Rich,
I just wanted to say that I hope and pray that you will be better soon. I'm so sorry you are having such a hard time. I fully believe you will get through it but living it seems like forever.

Regarding the "morning vs other times" for worst symptoms. Before I was diagnosed and treated evening/night was when I suffered the worst bouts. (I'm not trying to prove you wrong, Tex haha)

However, I suppose that since then what symptoms I have are normally morning or at least during the day and I'm not bothered at night anymore. *knock wood* *cross fingers*
Don't want to jinx myself. HaHa

Love, Shirley

[IDreamInColor]

Mornings are my worst here. I guess that means we all have "morning sickness" lol

[Joefnh]

Mornings are definately the worst time. There have been many mornings that I have delayed going to work until things settled down.

Hang in there Rich.

--Joe

[Polly]

Mornings, definitely. Whenever I was flaring and had an essential early morning commitment, I would get up 2-3 hours earlier than normal (yikes) to allow for adequate "poop" time. Of course, this meant I was arising at "o' dark thirty", but I would read the paper, do the crossword puzzle, read a book, drink coffee - "whatever" to pass the time. Once I had had adequate poop time, I was usually OK on the roads. Of course, I was exhausted on those evenings. Has anyone else found this to be helpful?

Love,

Polly

[Gabes-Apg]

For me
first up in the morning i dont feel ok until I have done a BM. I get up early and do yoga strecthes to try and get the body right before i go to work.

if i have had a full on day at work, then about 6pm is when my body lets me know it has had enough....

[hoosier1]

Tex,

I don't know how to define how I am doing. Maybe I am as good as it will ever get. Many morning bathroom trips and urges throughout the day. Calms by evening. I think I have inflammation lower too, hence the flatness or small caliber of BM's. And since Entocort doesn't really deliver in this location, I am ready to try Prednisone. Because quite frankly, if my symptoms improve on Prednisone, at least I will understand the extent of my inflammation.

This is very confusing. I have refused donuts for breakfast, pizza for lunch, etc. Am eating very well, but probably still not enough.

So that I go to my doctor armed with information, what is the starting does of Prednisone and how long do I stay on it, roughly?

Thx

Rich

[Gayle]

A definite yes here, MORNING is the time. ---- And as to Polly's post on this topic.

Whenever I was flaring and had an essential early morning commitment, I would get up 2-3 hours earlier than normal (yikes) to allow for adequate "poop" time. Of course, this meant I was arising at "o' dark thirty", but I would read the paper, do the crossword puzzle, read a book, drink coffee - "whatever" to pass the time.

I laughed when I read her post as this is/has been one of my "management tools" too.

We have to get to the point of accepting that this is a chronic condition. Our aim has to be self-management. It's an indivdual thing. Gotta do what ya gotta-do.



Gayle

[hoosier1]

LOL... I must have missed Polly's post but that is spot on!!!!!!

My problem is that I am having to get up so early now, I may as well simply stay up all night.

I dread the cycle repeating every morning, and seemingly, growing longer year over year.

I no longer take early morning flights. I simply cannot do it. This means an extra day or two on the road per event so that I can let my system do it's dance before I can fly calmly. Throw in the time zone changes, and my body is really confused.

LOL. I needed this!!!! Good people....

[IDreamInColor]

Boy Rich you sure have been thru the wringer with this illness, have you tried questran? It's the only thing I take, and it helps alot.

[hoosier1]

Idream,

Yep, tried it about 5 years ago. And then again, recently just to see how I would fare. It felt like ingesting concrete this time.

But my symptoms have evolved over time, since a bout of food poisoning kicked this into high gear in 2007. I also believe I am also dealing with motility issues and borderline UC.

Rich

[tex]

I don't know how to define how I am doing. Maybe I am as good as it will ever get.

Trust me, it will get a lot better than that.

So that I go to my doctor armed with information, what is the starting does of Prednisone and how long do I stay on it, roughly?

The dose will depend on your doctor's opinion. Going from prednisone to Entocort is fairly straightforward, but going in the other direction is not so simple. In case you don't see my response to your other post about this topic, here's a link to a thread where GrannyH gives a play-by-play account of the first few weeks of her ordeal with a steroid overdose that was a result of her doctor failing to allow for the residual budesonide in her system, when he prescribed another corticosteroid for a back injury. Be careful, because you don't want to go through this, yourself, on top of your other issues.

http://www.perskyfarms.com/phpBB2/viewt ... d+overdose

Tex