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Wow, Kari, getting those kind of results that must have been scary! And frustrating that they could not tell you anything specific about the results. ..
Interesting what your GP said about these symptoms starting later being of concern. I have not told my GP anything about my eye weirdnesses, just went to an opthamologist right away when they first happened.
Thanks for your good wishes. Think I'll make that opthamologist appointment tomorrow. I had the dentist last week so wanted to get that over with (and paid for) first. No dental coverage either!
Linda
What is the first treatment you were given for "IBS&quo
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Linda in BC
- Rockhopper Penguin
- Posts: 801
- Joined: Mon Apr 19, 2010 9:39 am
- Location: Creston British Columbia
Kari,
Most neurologists are totally unaware of gluten-sensitive neurological effects. I've seen 3 of them so far, and none of them would admit that there is any connection with gluten.
FWIW, my aura's came later in life, too, and my MRIs show "abnormalities", in the form of shrinking of the cortex, for example. (Which can be a sign of an ischemic stroke event.) The problem is, for many people, the cortex normally shrinks with ageing.
Neurology still has a long way to go, to get it all figured out.
IMO, these problems are probably entirely due to damage caused by gluten-sensitivity. It would all make a lot more sense, if the neurologists would simply get up to speed, and recognize that gluten sensitivity causes peripheral neuropathy, and realize that non-celiac gluten-sensitivity can be just as significant as fully-developed celiac disease.
Love,
Tex
Most neurologists are totally unaware of gluten-sensitive neurological effects. I've seen 3 of them so far, and none of them would admit that there is any connection with gluten.
FWIW, my aura's came later in life, too, and my MRIs show "abnormalities", in the form of shrinking of the cortex, for example. (Which can be a sign of an ischemic stroke event.) The problem is, for many people, the cortex normally shrinks with ageing.
Neurology still has a long way to go, to get it all figured out. IMO, these problems are probably entirely due to damage caused by gluten-sensitivity. It would all make a lot more sense, if the neurologists would simply get up to speed, and recognize that gluten sensitivity causes peripheral neuropathy, and realize that non-celiac gluten-sensitivity can be just as significant as fully-developed celiac disease.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
So glad to hear from you, with such a sensible take on it - thanks. I met with the Neurologist after I did the CT scan and he said he saw something that was probably just age related, but wanted to take a closer look on an MRI. After I did the head MRI (OMG, it was horrific!!!), it took him 3 and a half weeks to get back to me with the results, even though I tried to contact him both by calling and through my GCP. He apologized profusely when he finally called me for a "telephone consultation", and said that he could go on and on about all the reasons it had taken him so long, but there was really absolutely no excuse for not getting back to me sooner. Well, that did make me feel somewhat less angry.
Anyhow, the good thing about him was that he knew about MC and food intolerances. He said that the medical community is becoming more and more aware of how much diet plays a role in disease. He said that they are working on developing tests to detect intolerances, but are not there yet. He was very interested in seeing the results from the Enterolab testing, which I told him about but had not yet received. Well, if I ever see him again, I'll bring the test results along, as I think it's pretty pointless to mail them to him (I'm sure he doesn't have the time to look at the report:)). Another positive that I have to say for him, is that he didn't think the fact that my aura migraines started late in life was anything to worry about. He said we're all different.
Love,
Kari
P.S. Linda - yes, I was very worried and a bit frightened, but feel much better now that some time has past.
So glad to hear from you, with such a sensible take on it - thanks. I met with the Neurologist after I did the CT scan and he said he saw something that was probably just age related, but wanted to take a closer look on an MRI. After I did the head MRI (OMG, it was horrific!!!), it took him 3 and a half weeks to get back to me with the results, even though I tried to contact him both by calling and through my GCP. He apologized profusely when he finally called me for a "telephone consultation", and said that he could go on and on about all the reasons it had taken him so long, but there was really absolutely no excuse for not getting back to me sooner. Well, that did make me feel somewhat less angry.
Anyhow, the good thing about him was that he knew about MC and food intolerances. He said that the medical community is becoming more and more aware of how much diet plays a role in disease. He said that they are working on developing tests to detect intolerances, but are not there yet. He was very interested in seeing the results from the Enterolab testing, which I told him about but had not yet received. Well, if I ever see him again, I'll bring the test results along, as I think it's pretty pointless to mail them to him (I'm sure he doesn't have the time to look at the report:)). Another positive that I have to say for him, is that he didn't think the fact that my aura migraines started late in life was anything to worry about. He said we're all different.
Love,
Kari
P.S. Linda - yes, I was very worried and a bit frightened, but feel much better now that some time has past.
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Kari,
That's very encouraging that your neurologist is so open to new information. The ones I've seen weren't interested in hearing about food sensitivities. They insisted they had never hard of it before.
Love,
Tex
That's very encouraging that your neurologist is so open to new information. The ones I've seen weren't interested in hearing about food sensitivities. They insisted they had never hard of it before.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.