Murpheys Law at it's finest

IDreamInColor · Post by **IDreamInColor** » Wed Nov 24, 2010 4:07 pm

I had been doing so good for a few weeks with Mr. Norman, until this past Monday, the pain and the potty trips. I was so hoping it was just going to last a day or two and then go back to Mr. Norman. The past three days have gotten progressively worse and tomorrow is Thanksgiving. I haven't touched gluten, and I haven't eaten anything out of the ordinary. I don't see a single reason for my flair. I'm back to barely eating, pain, and skipping to the loo more times than I care to mention. It's so emotionally trying and frustrating. The thought of the days and days and days on end with no relief is sometimes more than I can handle.
Tomorrow all those closest to me will be at Gramma's house, she lives just 8 minutes away from me. I just don't feel like I can go, I'd rather just curl up in bed and hide. This disease is so depressing and so hard to live with.
I just want to feel better

MBombardier · Post by **MBombardier** » Wed Nov 24, 2010 4:37 pm

I am sorry, IDream. I can sympathize. My first grandchild was born yesterday, and today I am worse than I have been in quite some time. Apparently even good stress can cause a flare.

I hope that tomorrow all your family gathers round you with lots of love and compassion. You may not necessarily feel better physically, but I hope you get a huge boost emotionally.

Joefnh · Post by **Joefnh** » Wed Nov 24, 2010 4:41 pm

Talk about timing IDream. I'm sorry you are not feeling well. MC does seem to be a fickle disease at times. I have had a few occasions where I could not figure out what caused the flare up. My guess would be a virus or other environmental critter.

Yes Murphy is alive and well

I hope you feel better soon.

-Joe

Bifcus16 · Post by **Bifcus16** » Wed Nov 24, 2010 7:20 pm

Hi IDream,

Setbacks are common when you are recovering. Try to think of the success you have achieved. Several weeks of normans is a great achievement.

Maybe Immodium will help bring the D under control, and you will be able to visit for at least part of the day. Is there something else you can focus on today so you worry less about tomorrow? See how you feel tomorrow, after a nights sleep.

Lyn

Robbie · Post by **Robbie** » Wed Nov 24, 2010 7:25 pm

I hope you do feel better tomorrow

Post by **tex** » Wed Nov 24, 2010 8:00 pm

IDream,

Sorry that you're feeling so down. I completely agree with Lyn. The way to deal with this disease during the recovery stage, is one day at a time. Don't worry about tomorrow. Make the most of today, and let tomorrow take care of itself.

Tex

IDreamInColor · Post by **IDreamInColor** » Wed Nov 24, 2010 8:35 pm

Thank you everyone. Truthfully I feel like I am not dealing with this as well as everyone here. I have been crying all day, just feeling like I can't take another day of it, it's like having a flu that just won't go away. For the past five years I feel like I've been stripped layer by layer from agoraphobia, anxiety/panic, graves disease, autoimmune sinus disease with 24/7 headaches, and now MC, and it has reduced me to a big pile of junk, like a waste of good skin. You all seem to handle it all in stride, you are all an inspiration to me.
I some how need to learn how to handle this better, I am failing big time, and feeling like the biggest crybaby. I used to be a strong woman, not anymore.

Linda in BC · Post by **Linda in BC** » Wed Nov 24, 2010 9:09 pm

Dear Idream:

We all have our bad times, believe it or not. Some of us just tend to withdraw and not post as much , which is not always the best course of action. Good for you that you are able to articulate how sad and overwhelmed you are feeling.. getting it out, and having it heard by those who truly understand has to help a bit, I think.

If you are flaring and you are sure you have not eaten any gluten, it may be time to look at what else might be in your diet that you have started showing a reaction to. I have had this happen to me several times since going GF. I would have normans, or almost normans, for a while and then my good health would just slowly start to disintegrate...till I was back to D. Then I would figure out what was causing it that I was eating, (and there was always something) and start all over again. Apparently once the gluten is out of our systems a little bit, our bodies can then start to react more to the other things that we are not able to tolerate, but as long as we are eating the gluten, it being the major offender, it gets all the reaction. I have to say tho, that figuring out what those other things are is probably a lot more difficult than just giving up gluten was. Go back to absolute basics in your food, things you are pretty certain you won't react to. For me it was a particular kind of rice cereal (not rice chex but a no-name puffed rice) , rice milk , chicken, rice and well -cooked carrots, applesauce and bananas. Then once you are stabilized again try one new thing at a time and watch for a reaction.

My last epiphany was realizing I was quite intolerant of eggs. Since I stopped eating them, I have been very good and no new intolerances seem to be emerging.. finally. This whole process has taken almost 6 months!!

Yes, take one day at a time, be patient and you will get this disease under control. And pepto or immodium is our friend when we need to control the symptoms. hopefully one of them works for you. As suggested, maybe you can take some of that to get through tomorrow.

Wishing you strength, and sending love,
Linda

Gabes-Apg · Post by **Gabes-Apg** » Thu Nov 25, 2010 3:03 am

trust me... over the past 14 months i have cried alot.........

to be well, we have all made some drastic changes in our lives, sacrificed alot of things, this affects our relationships, (Partners, family, workplace, neighbours) it affects our thinking, our lives have changed.....

I cried the day someone said my lunch looked like canned dog food...
I cried for two days when i had an MC accident in the car on the way home....
I cried because MC changed a 11 year tradition regarding birthdays...
I cried when mangos came into season and i realised i may never eat mango again
I cried when french people laughed at my food request

and there are various other events situations that affected me.

It is part of the acceptance process, (grief process)

It is also important to look the achievements, what you have overcome and what you have changed to be well...

I celebrated being able to handle a 36hr transit and 3 weeks working in france
I celebrated getting a promotion at work even though i had been sick with MC for 4 months and taken loads of leave
I celebrated having reasonable control on the symptoms using diet only

the sad days make the happy ones all the more wonderful! behind the clouds a rainbow will appear.....
day by day, week by week, the challenges reduce and it wont seem as overwhelming....

big hugs

natythingycolbery · Post by **natythingycolbery** » Thu Nov 25, 2010 4:02 am

IDreamInColor wrote:For the past five years I feel like I've been stripped layer by layer from agoraphobia, anxiety/panic, graves disease, autoimmune sinus disease with 24/7 headaches, and now MC, and it has reduced me to a big pile of junk, like a waste of good skin.

I know exactly how you fell love and hugs from the UK :bigbighug:

lisa15601 · Post by **lisa15601** » Thu Nov 25, 2010 5:45 am

Unfortunately I know how you feel and have only been going thru this a short time. Let's help each other....

JLH · Post by **JLH** » Thu Nov 25, 2010 8:59 am

I Dream, we've all pretty much been on a roller coaster with this damn disease. We certainly understand.

Have you eliminated anything other than gluten? I did very well going GF at first. After not too much time (maybe a month or two), I started having symptoms again. I suspected soy because of the PP. I got the soy test from EnteroLab and it confirmed that I did have a soy intolerance. I have been dairy free for decades.

JLH · Post by **JLH** » Thu Nov 25, 2010 9:12 am

I just checked out your EL results and see that your soy was only 3. I wonder if that can change.....I know I could eat foods with soy at first but then it changed.

We are all here for you to help you get better.

:bigbighug:

grannyh · Post by **grannyh** » Thu Nov 25, 2010 1:34 pm

When I had to go out ... I carried a tote.. like a diaper bag..., with real diapers for ME. I had plastic bags to store the filled diapers in til I could find a trash can.. an entire change of clothes and tons of baby wipes! Some folks didn't mind if I stored my bag in the closest bathroom to where I was sitting.. I never would have had time to get it and get to the bathroom otherwise.

Somehow, between the tears.. we find a way to manage.. it just is not easy.. that is for sure.
grannyh

Gabes-Apg · Post by **Gabes-Apg** » Thu Nov 25, 2010 3:12 pm

Granny

I have a kit in my handbag, spare undies and other supplies required for a MC person, and in my car permanently is a spare set of jeans etc.

I needed a bigger handbag to carry the kit, snacks and all the other guff i have to carry (no small clutch purses for a mc gal) so i treated myself to a stylish red handbag, i figure if i am going to do this i am going to do it 'in style' with grace and flare!