Visit the Microscopic Colitis Foundation Website
Day 6-Entocort-Discouraged
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
newbie here
hi all. just got diagnosed with mc a few weeks ago....also have celiac (9 yrs). gi dr. put me on prednisone...one more day and i am done...also started with enocort on sat. things have been better, less trips to the bathroom, consistency (sorry) has been a little better, but once in a while i still get the urge to go quickly....anyone out there that can give me some suggestions on what to do, eat, etc. would be most appreciated! i have an appt. with a dietitian on the 14th.....dr. said to keep eating what i normally eat. last night i had a cheeseburger, ff, maybe that counts for my looser stool today (not D but not normal) i am so looking for a normal bm!! thanks in advance for any help, suggestions, hints you can provide
Welcome willabec!
How long have you experienced MC symptoms? Do you think you had it prior to your celiac diagnosis and change in diet? Most of us here cannot tolerate dairy, so that cheeseburger may be to blame, not to mention the fat in the burger and fries. I have improved dramatically since going GF/DF (1-2 BMs per day), but I still have to RUN to the bathroom much of the time. I'm not sure when that will improve...
How long have you experienced MC symptoms? Do you think you had it prior to your celiac diagnosis and change in diet? Most of us here cannot tolerate dairy, so that cheeseburger may be to blame, not to mention the fat in the burger and fries. I have improved dramatically since going GF/DF (1-2 BMs per day), but I still have to RUN to the bathroom much of the time. I'm not sure when that will improve...
well, i have been diagnosed celiac prior to this mc diagnosis....what are the mc symptoms really? i think it is hard to distinguish between the celiac symptoms and mc symptoms...i know it says to stay away from high fat food....but once in a while you know..... 
also, on thanksgiving...i had a lot of fat, i would say....some turkey fat, mashed potatoes made with heavy cream and butter, green beans with butter and some rice made with turkey fat....yeah that can't be good ! only went 2 times that day but the latter was a little on the "mushy" side. i don't know if the gluten free diet is helping with my mc....it's been so long, i can't tell. also, dr. said biopsy of my duodenum still shows signs of celiac disease....so i am either being glutened without really knowing it or my body is not dealing with the gf diet. how long have you been diagnosed with mc....is mc something you live with your entire life??
also, on thanksgiving...i had a lot of fat, i would say....some turkey fat, mashed potatoes made with heavy cream and butter, green beans with butter and some rice made with turkey fat....yeah that can't be good ! only went 2 times that day but the latter was a little on the "mushy" side. i don't know if the gluten free diet is helping with my mc....it's been so long, i can't tell. also, dr. said biopsy of my duodenum still shows signs of celiac disease....so i am either being glutened without really knowing it or my body is not dealing with the gf diet. how long have you been diagnosed with mc....is mc something you live with your entire life??yeah, sorry but you have to give up noodles, pasta, and all wheat. You have to change your diet. It is really hard to do, but you have to do it to get well. It took me a couple of months to figure out what I could not eat. For me it is wheat, dairy,beef and citrus fruits.
please make a food diary and in about a month you will have a great idea of what causes your D.
Stay on the Entocort, and soon you will see the D stop after you quit eating the food offenders.
Try eggs, chicken, turkey, ham, vegetables, tea, maybe rice. No soup for now. Also, I can eat sourdough bread with no problem.
Take care,
karen
please make a food diary and in about a month you will have a great idea of what causes your D.
Stay on the Entocort, and soon you will see the D stop after you quit eating the food offenders.
Try eggs, chicken, turkey, ham, vegetables, tea, maybe rice. No soup for now. Also, I can eat sourdough bread with no problem.
Take care,
karen
thanks...i know i cannot eat wheat hence the celiac diagnosis. i am just not sure what else i cannot eat.....i am trying to stay away from diary and higher fat foods....other than that i have no idea....plus i have no idea when i would have a reaction....say i ate an offending food....how many days later would it possibly effect me? 1 day, 2 days?? that is what i have a problem figuring out.
Hi,
Welcome aboard. It's possible for casein, (the primary protein in milk), or soya, (the primary protein in soybeans), or zein, (the primary protein in corn), to cause villus atrophy similar to gluten, if you are sensitive to them.
MC symptoms are very similar to all of the celiac symptoms, except that we can have many other additional symptoms, though not everyone has all the symptoms, of course. So yes, it can be difficult to tell the diseases apart, in some cases, if you only consider the clinical symptoms. After eating a food that we react to, some of us are affected in 10 minutes, but some of us may not react for a day or two. A typical time for many is roughly 3 to 6 hours after eating an offending food.
Here are some meal suggestions:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=53
Here are several hundred tested, gluten-free, dairy-free, soy-free recipes:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
Eating fat won't make you any sicker, you just can't digest it when your MC is active, and it adds to the offensive odor of the stool. Excess, (undigested), fat in the stool is known as steatorrhea.
The primary non-laboratory difference between celiac disease and MC, is that MC increases the number of foods that we react to. On a laboratory basis, MC adds inflammation in the colon to your existing small intestinal inflammation.
Tex
Welcome aboard. It's possible for casein, (the primary protein in milk), or soya, (the primary protein in soybeans), or zein, (the primary protein in corn), to cause villus atrophy similar to gluten, if you are sensitive to them.
MC symptoms are very similar to all of the celiac symptoms, except that we can have many other additional symptoms, though not everyone has all the symptoms, of course. So yes, it can be difficult to tell the diseases apart, in some cases, if you only consider the clinical symptoms. After eating a food that we react to, some of us are affected in 10 minutes, but some of us may not react for a day or two. A typical time for many is roughly 3 to 6 hours after eating an offending food.
Here are some meal suggestions:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=53
Here are several hundred tested, gluten-free, dairy-free, soy-free recipes:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
Eating fat won't make you any sicker, you just can't digest it when your MC is active, and it adds to the offensive odor of the stool. Excess, (undigested), fat in the stool is known as steatorrhea.
The primary non-laboratory difference between celiac disease and MC, is that MC increases the number of foods that we react to. On a laboratory basis, MC adds inflammation in the colon to your existing small intestinal inflammation.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Linda in BC
- Rockhopper Penguin
- Posts: 801
- Joined: Mon Apr 19, 2010 9:39 am
- Location: Creston British Columbia
Hi willabec and WELCOME 
Many of us on here find that until we start to reduce the inflammation in our colon ( by whatever means we do that,.. some use drugs like Entocort or Asacol, diets like the paleo diet, both diet and drugs, one person on here used L-glutamine and diet), we at first do better if we avoid raw vegetables (especially lettuce) and sometimes even some cooked ones like green peppers,onions, cabbage, or tomatoes; most fresh fruit (especially the skins), most nuts (especially cashews for some reason) and basically anything with lots of fibre. Fibre is NOT our friend.
Really basic bland, well cooked food is the best at first. That could be meat, chicken or fish with rice, well-cooked carrots, rice cereal. Bananas seem to be well-tolerated by many. Try to eat things that are as easy as possible for your gut to digest. As it heals, you can try adding more variety back into your diet, one food at a time and see if you react to them. If you have been GF for a long time as you say, something must be causing your gut inflammation so it seems to me that you likely have other food intolerances besides gluten ( like many of us on here.
) As Tex said, casein (the protein in milk) and Soy are the most likely causes but it could be other things like corn, Avenin ( the protein in oats) or eggs or more specifically the protein in the whites of eggs. Some of us are intolerant of unusual things like tapioca, legumes, guar gum , coconut .. gosh, the list goes on and on. Everyone of us is different in this aspect.. the common denominator being that SOMETHING we are eating is causing this MC inflammation. And yes, to answer your question, MC is a lifelong condition once triggered, but it can be brought into remission (and it can return at anytime too, if the offending foods are eaten again) Stress also often seems to be a major precipitating factor initially and in flares.
Feel free to ask any questions. And there is certainly no need to apologize for "potty talk''..We are the Potty People after all!
Lots of good info in older posts too.
I hope you get relief from your symptoms soon with the entocort.
Linda
Many of us on here find that until we start to reduce the inflammation in our colon ( by whatever means we do that,.. some use drugs like Entocort or Asacol, diets like the paleo diet, both diet and drugs, one person on here used L-glutamine and diet), we at first do better if we avoid raw vegetables (especially lettuce) and sometimes even some cooked ones like green peppers,onions, cabbage, or tomatoes; most fresh fruit (especially the skins), most nuts (especially cashews for some reason) and basically anything with lots of fibre. Fibre is NOT our friend.
Really basic bland, well cooked food is the best at first. That could be meat, chicken or fish with rice, well-cooked carrots, rice cereal. Bananas seem to be well-tolerated by many. Try to eat things that are as easy as possible for your gut to digest. As it heals, you can try adding more variety back into your diet, one food at a time and see if you react to them. If you have been GF for a long time as you say, something must be causing your gut inflammation so it seems to me that you likely have other food intolerances besides gluten ( like many of us on here.
) As Tex said, casein (the protein in milk) and Soy are the most likely causes but it could be other things like corn, Avenin ( the protein in oats) or eggs or more specifically the protein in the whites of eggs. Some of us are intolerant of unusual things like tapioca, legumes, guar gum , coconut .. gosh, the list goes on and on. Everyone of us is different in this aspect.. the common denominator being that SOMETHING we are eating is causing this MC inflammation. And yes, to answer your question, MC is a lifelong condition once triggered, but it can be brought into remission (and it can return at anytime too, if the offending foods are eaten again) Stress also often seems to be a major precipitating factor initially and in flares. Feel free to ask any questions. And there is certainly no need to apologize for "potty talk''..We are the Potty People after all!
Lots of good info in older posts too.
I hope you get relief from your symptoms soon with the entocort.
Linda
"Be kind whenever possible. It is always possible."
The 13th Dali Lama
The 13th Dali Lama
