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both my acupuncturist and naturopath have admitted that MC has definately challenged them.
they are not used to conditions that have such a weave of symptoms and have impact on so many areas of the body.
Just need to vent...
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Joefnh
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Gabes that's a good way to put it, MC affects so many parts of the body, including GI system, muscles, joints, eyes and neurological involvement. That's a tough and diverse list to deal with.They are not used to conditions that have such a weave of symptoms and have impact on so many areas of the body.
--Joe
Joe
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Gabes-Apg
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Celie
unfortunately too many doctors are 'trained' that when a patient arrives with a symptom you prescribe a drug the symptom goes away. if the symptom doesnt go away refer them to a specialist.
IMO there is a combo of reasons, Big Pharma control of the health system and governments, not enough doctors for the amount of patients, and if there is a good doctor generally it can take 3 months or more to get an appointment or they are not taking on new patients.
Doctors may read published articles in medical based journals (Sponsered by big pharma), not many would be reading the articles in non medical journals. Most of the professionals that conduct studies and have worthwhile information for conditions like MC dont get published in medical journals...so their valuable learnings are not reaching the right target audience....
unfortunately too many doctors are 'trained' that when a patient arrives with a symptom you prescribe a drug the symptom goes away. if the symptom doesnt go away refer them to a specialist.
IMO there is a combo of reasons, Big Pharma control of the health system and governments, not enough doctors for the amount of patients, and if there is a good doctor generally it can take 3 months or more to get an appointment or they are not taking on new patients.
Doctors may read published articles in medical based journals (Sponsered by big pharma), not many would be reading the articles in non medical journals. Most of the professionals that conduct studies and have worthwhile information for conditions like MC dont get published in medical journals...so their valuable learnings are not reaching the right target audience....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I've written this before, but I still believe that MC would be very difficult for GIs to treat using diet because:
a) Gluten is just the beginning of the list of food intolerances for many patients. Many board members become frustrated with their lack of progress (include me in that list), and we have a large number of experienced people giving them advice. Imagine the frustration patients would have with a doctor giving dietary advice.
b) It is very difficult to be certain that a patient is following a strict diet. Again, we see many board members who know what they should do to reduce their symptoms, but they don't stay true to the diet.
c) Initially people look for a "quick fix." I don't mean to belabor the point, but again, many times people come here looking for one, too. When they find out that it's necessary to give up their cherished foods, they leave, or they try to find ways to get around it.
It is much easier for the doctor to prescribe a medication and send them away. As Gabes implied, they don't have time to hold a patient's hand and assist them through the diet changes. Diabetics are usually sent to a dietitian for help. In that case, a dietitian is beneficial (if the patient follows the diet), but I don't think most dietitians are up to speed on MC.
Even though I excuse GIs for their inadequate treatment of MC, I do wish they would at least acknowledge that gluten is involved. That step could make a big difference for many patients.
Gloria
a) Gluten is just the beginning of the list of food intolerances for many patients. Many board members become frustrated with their lack of progress (include me in that list), and we have a large number of experienced people giving them advice. Imagine the frustration patients would have with a doctor giving dietary advice.
b) It is very difficult to be certain that a patient is following a strict diet. Again, we see many board members who know what they should do to reduce their symptoms, but they don't stay true to the diet.
c) Initially people look for a "quick fix." I don't mean to belabor the point, but again, many times people come here looking for one, too. When they find out that it's necessary to give up their cherished foods, they leave, or they try to find ways to get around it.
It is much easier for the doctor to prescribe a medication and send them away. As Gabes implied, they don't have time to hold a patient's hand and assist them through the diet changes. Diabetics are usually sent to a dietitian for help. In that case, a dietitian is beneficial (if the patient follows the diet), but I don't think most dietitians are up to speed on MC.
Even though I excuse GIs for their inadequate treatment of MC, I do wish they would at least acknowledge that gluten is involved. That step could make a big difference for many patients.
Gloria
You never know what you can do until you have to do it.
Gloria,
I think you are right. My good gi doc says she does not recommend diet for that very reason. She told me that she has not had good results because most patients are non compliant. She was very supportive when I told her I wanted to try diet. She said that is what she would do. I will take my enterolab results to her next week when I take my stepmom to her. It will be interesting to see hat she says.
Celie
I think you are right. My good gi doc says she does not recommend diet for that very reason. She told me that she has not had good results because most patients are non compliant. She was very supportive when I told her I wanted to try diet. She said that is what she would do. I will take my enterolab results to her next week when I take my stepmom to her. It will be interesting to see hat she says.
Celie