The "Difficult" Patient

harma · Post by **harma** » Fri Jan 07, 2011 5:52 am

I think a lot of MC patients are "difficult" patients, since a GI doc does not have much to offer. Medication that can suppress the symptoms only. And since it is (still) a rare disease you have to:

a. hope that you find a doctor that will do the right tests to get a right diagnosis (in other words if you are under 50 that they also may consider you can have MC, if they have ever heard of it)
b. if you get the right diagnosis, hope that they prescribe you the right medication
c. if you get the right medication (what in most cases is entocort)hope they will let you take it long enough.

or another solution is, do your own research and have an active role in your disease.

grannyh · Post by **grannyh** » Fri Jan 07, 2011 7:50 am

The more I read about "difficult doctors" and my own experience along the same lines..it makes me ever more thankful for the doctors I have now. The GI doc says that for medical treatment of CC, the entocort is the only choice for him because it works with all but one of his patients. He has no problem with this site or my questions.. he said that whatever works is best for the patient since doctors know next to nothing about the illness.
grannyh