Started Imuran - Wish me luck

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Celie
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Started Imuran - Wish me luck

Post by Celie »

Hi All,
I had hoped to get off Entocort using diet alone. After almost 3 months of religious adherence (only one lapse) to the SCD and dairy free diet, I tried to wean off the Entocort. It did not work. I had been taking 11 pills a week. When I got down to 9 the big D returned.

After a great deal of discussion with my thoughtful GI doc and a lot of study on my part, I decided to take her recommendation and move to Imuran for the long term control of my "refractory" LC. It has been used successfully for 50 years and avoids the concerns about long term steroid use.

I got my Enterolab results in December. So, I will be able to use that information to tailor my diet and hopefully get an edge over the LC. I will remain gluten, dairy, soy and egg free.

Please wish me luck on this new path. Everyone on this board has helped me learn about this "difficult" illness. Joe has been a great help to me as he has shared his experience with both Entocort and Imuran.

Thanks to all!

Celie
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natythingycolbery
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Post by natythingycolbery »

Although I am not taking information in properly at the moment so didn't fully take your whole post in... good luck with it and I hope it works for you!
'The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be.' Horace Bushnell

Diagnosed with MC (LC) Aug 2010
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Joefnh
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Post by Joefnh »

Good luck Celie, hopefully the diet with the Imuran will give you some relief.

Take Care

--Joe
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Polly
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Post by Polly »

Hi Celie!

I'm rooting for you! :cheerleader: :cheerleader: :cheerleader:

Isn't it lucky that you have Joe for advice and support with this medication. Please keep us posted.

Love,

Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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Kari
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Post by Kari »

Celie,

Sure hope Imuran works as well for you as it does for Joe!!! Best of luck to you in this new chapter of your MC management.

Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Robbie
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Post by Robbie »

Good luck!!!
Robbie
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tex
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Post by tex »

Celie,

Good luck, and please keep us posted on your progress.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gloria
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Post by Gloria »

Good luck, Celie!

Gloria
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Linda in BC
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Post by Linda in BC »

Dear Celie,
I hope this really works for you. Fingers crossed...

Linda
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The 13th Dali Lama
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Gabes-Apg
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Post by Gabes-Apg »

Fingers and Toes are crossed.....
reading the posts on the forum this morning the statement 'there is no right way or wrong way to treat MC, there is your way' definately has meaning.

it is finding the 'your way' that takes time, patience and courage. I hope this is the right way for you Celie.

take care
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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harvest_table
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Post by harvest_table »

Celie,

Fingers and toes crossed in Fergus too.....

Love,

Joanna
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Celie
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Post by Celie »

Thank you all. I started Tuesday. So far, so good.

Celie
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