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Idream,
If memory serves, don't you live in Ohio? If so, I would take advantage of the Cleveland Clinic to help to get things figured out with you. Though I am somewhat better, I still feel like I may have a multi-factorial problem going on. So I am seeing a GI specialist at IU medical school in March (could not get in any sooner). It would probably take 6 months to get into Cleveland, but you can get on a cancellation list.
Just a thought.
Rich
I made an appointment to have my digestive system removed
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Idream,
Cholestyramine powders always do the trick for me. They are underprescribed and not widely known, but ask your GI for them. They tried to use them in a study of MC but discontinued them due to patient intolerance. They are horrible in water, but will dissolve in juice. I know it seems crazy to drink juice in the middle of a flare, BUT IT WORKS!!! Not just for me, but for other members of my family who have struggled for years with the big D.
I can't take steroids or Asacol, so I have to find alternatives...
Mags
Cholestyramine powders always do the trick for me. They are underprescribed and not widely known, but ask your GI for them. They tried to use them in a study of MC but discontinued them due to patient intolerance. They are horrible in water, but will dissolve in juice. I know it seems crazy to drink juice in the middle of a flare, BUT IT WORKS!!! Not just for me, but for other members of my family who have struggled for years with the big D.
I can't take steroids or Asacol, so I have to find alternatives...
Mags
Dear I Dream,
Please do everything possible to avoid surgery. I, like many others here, know your frustration. While in the hospital on a drip that was not staying ahead of the BIG D, I was ready to do anything to stop it. But, try to avoid that drastic option.
I know from your earlier posts that you struggle with other issues which complicate your life. I am glad you came to this board. At least there are people here who understand.
One of the things I like to do before I let a doctor operate is ask to speak to other patients who have had the surgery. In this internet age, you can find others to talk to. I understand at least one of our PP colleagues has had the surgery. PM that person.
What drugs have you tried? And, what can you tolerate?
Good luck. I hope you get a break from the bathroom soon!
Celie
Please do everything possible to avoid surgery. I, like many others here, know your frustration. While in the hospital on a drip that was not staying ahead of the BIG D, I was ready to do anything to stop it. But, try to avoid that drastic option.
I know from your earlier posts that you struggle with other issues which complicate your life. I am glad you came to this board. At least there are people here who understand.
One of the things I like to do before I let a doctor operate is ask to speak to other patients who have had the surgery. In this internet age, you can find others to talk to. I understand at least one of our PP colleagues has had the surgery. PM that person.
What drugs have you tried? And, what can you tolerate?
Good luck. I hope you get a break from the bathroom soon!
Celie