Some Direction Please...

[Foxnhound8]

As I sit her watching the football game with DH, I was wondering as I wait for my Enterolab results, is there somewhere on this site or a book I could read to give me some idea where to start with my diet? So far all I am doing is the gluten-free thing. Is there a step by step process you (who don't use drugs) used to figure out your diet? What the heck do you eat? The chicken breasts, rice and broth is getting old.

Foxnhound

[JLH]

When you figure out your intolerances, one of the books from Cecelia's Marketplace would help.

http://www.ceceliasmarketplace.com/

[tex]

Foxnhound,

There is a world of information available here for tracking down food sensitivities:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=6

For meal suggestions, look at some of the categories in the group of forums under the heading:

Special Information for People Who Have Multiple Intolerances

Such as:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=53

http://www.perskyfarms.com/phpBB2/viewforum.php?f=49

Look in Dee's Kitchen. Dee is a professional chef who has developed and tested several hundred recipes that are free of gluten, dairy and soy, and she even shows hints for converting regular recipes:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=7

Tex

[Gabes-Apg]

Foxnhound,

when i was first diagnosed and aiming to use diet as my main management tool a suggestion by my acupuncturist and naturopath friends was to eat easy to digest meals, mashed up like you give a toddler when they are first going on solids.

eating foods that are healing to the gut in this way takes the stress away of the digestion process.

I had alot of goey rice, lots of chicken, well cooked salmon, eggs. I made my own stocks from scratch (so they were yeast free) and doing this meant i was ingesting lots of gelatin, which has been used as a healer for leaky gut since medievil times. even now 12 months later, if there are minor symptoms showing, i will have these meals.

the quickest easiest feel good meal, I make rice with half water, half stock, dont strain the rice when it is cooked you can stir an egg through it so you get more protein and Vit D.
If I have some rice already cooked in the fridge, i warm it with some extra stock and when it is hot stir the egg through it.

agreed it is not exciting, and the repetative low base of ingredients can get to you a bit, over time this affected me less, as wellness was the worthwhile goal.
I had people at work say that my lunch looked like canned dog food, and i would joke that the people eating tinned tuna were eating cat food so why is my meal any different. in the end I didnt care what people said, eating meals like that meant that i had minimal symptoms, i slept better, i had the energy and wellness to work, those things are way more important than what somethng says about my lunch.

hope this helps

[TooManyHats]

Kitchen Basics is gluten free, casein free, soy free, and yeast free. While I agree that making your own is probably best, it's great to have a product that can be store bought as well.

Gabes, your meals sound wonderful to me!

[TooManyHats]

When you figure out your intolerances, one of the books from Cecelia's Marketplace would help.

http://www.ceceliasmarketplace.com/

I love that they offer a g/f, c/f, and s/f version too!! I wonder how often this is updated. The currently available version says 2010. When does a new one come out?

[Foxnhound8]

Oh GREAT! I can get Kitchen Basics! Gabes, you sound like you have some good ideas, thanks. I especially like the egg swirled through the rice. Something different anyway! Tex, thank you for narrowing my search on this site.

foxnhound

[klhale]

I am not trying to dampen your plan, but Gluten free products do not work for me at all. I tried cooking them myself and buying them, still had D.

I can eat Sourdough bread with no problem at all, going on 10 years now. If I eat gluten free, I get sick....so beware, just in case that does not work for you.

[tex]

Karen,

So are you saying that you maintain remission by eating gluten, and if you stop eating it, you have a flare? If so, that implies that your reaction to gluten is either constipation, or a normal BM. You wouldn't be the first member here to experience such a reaction from gluten - there are several other members who react with either C or normal BMs. In fact, my own reactions alternated between all three.

Unfortunately, the absence of D in response to gluten, does not indicate the absence of gluten-sensitivity. Have you every been tested by Enterolab for gluten-sensitivity? The point is, if you were not gluten-sensitive, then avoiding gluten, would not make you sick.

Tex

[Foxnhound8]

Well, I can tell you the Colestid was TERRIBLE. I had another talk with GI doc today and insisted on being put back on Entocort with the Apriso. Stopping D with C is CRAZY. At least I got the doc this time instead of the PA, so I went and picked up my Entocort this afternoon. I am playing around with some of the gluten/soy/dairy free stuff at my regular supermarket as I await my Enterolab results. Coconut milk is pretty weird. Might try the gluten free pancake mix on the kids tomorrow am. Will try to find a Canadian pharmacy tomorrow as I can't afford the Entocort here in the states.

foxnhound

[MaggieRedwings]

I use Kitchen Basics a lot and besides being a bit cheaper than other brands it is much more flavorful. Great thing to have on hand when I don't have the time to make my own stocks.

Love the swirlled egg idea Gabes.

Love, Maggie

[Joefnh]

Fox, two very good GF/DF/SF pancake mixes are:

-Pamela's pancake mix

- King Aurthur's pancake mix (they also have a great cookie and cake mix)

[klhale]

Tex said: So are you saying that you maintain remission by eating gluten, and if you stop eating it, you have a flare?

No, I did not say that if I stop eating gluten that I have a flare.

What I said is I can eat Sourdough bread, during a flare and in remission. I have been tested and I do not have Celiac disease. However, I cannot eat white or wheat bread without dire consequences. Sourdough bread works for me, and I suffer no D or side effects from eating it.

Karen

[tex]

Joe,

FWIW, Pamela's Pancake Mix is not exactly DF, (unless you are using "DF" to represent something besides "dairy-free"). The third ingredient on the ingredient list is "Cultured Buttermilk". That means that there's a lot of it in the mix. Presumably it would be low-lactose, (some would probably claim lactose-free), but it wouldn't be casein free.

King Arthur's Pancake Mix contains tapioca starch, and many of us react to tapioca starch/flour.

You didn't mention this one, but Breads From Anna also offers a GF pancake mix, (actually, in several flavored versions), but it contains a lot of tapioca flour, which not only is a problem for many of us, but also leads to a very gummy pancake batter, that I didn't like at all, when I tried it. In fact, it was very difficult to work with, and I found it difficult to get the pancakes completely cooked in the center, without burning the top and/or bottom. Of course, I don't claim to be a decent cook, but by contrast, making Pamela's pancakes, is as easy as falling off a log. Have you ever tried any of the pancake mixes from Bread's From Anna?

I have an extra, unopened bag of Bread's From Anna GF Pancake mix, that I would be happy to send to you, (or to anyone else, if you're not interested in trying it), free of charge, of course, just to see if it is just me, or the mix, that is the cause of the sub-par pancakes that I came up with. I tried twice, and the second attempt was better than the first, but still nowhere close to the quality of the pancakes I get from Pamela's mix, so I gave up on them.

Tex

[MBombardier]

Foxnhound, you may want to try the canned coconut milk. Thai Kitchen is a good brand which does not add water. It is very similar to evaporated milk. I made hot cocoa on the stove the other day with 1/2 canned coconut milk, 1/2 rice milk. My 12yo said it was the best cocoa she had ever tasted, so rich and creamy.