bm's

willabec · Post by **willabec** » Mon Jan 17, 2011 6:49 am

ok....sorry to talk about this so early in the a.m. but just a quick question. i have been doing fairly well on entocort, better than i was not on it. things are still not normal, some days better than others. my question is, if i only go 1 time a day shouldn't or wouldn't you think that my bm should be more solid? for example, i only went 1 time yesterday - in the a.m. and again this a.m. and it was pretty much like a soft pile. i have had some decent bm's. i have not changed my diet so that is what is confusing me. why some days are better than others? just curious about the bm consistency. thanks!

ant · Post by **ant** » Mon Jan 17, 2011 8:04 am

Dear Willabec,

Even over one and a half year on entocort and diet, while my bms on average are much better.....there are days when they are soft or worse. But not having urgent D (even if the BM is loose) makes a heck of a difference to lifestyle.

It is the long term trend that I try to look for. My experience is that it is a very slow and irregular return to "norman".

Best wishes, Ant

Gloria · Post by **Gloria** » Mon Jan 17, 2011 9:24 am

My experience on Entocort is that I have Normans unless I am eating something that is a problem.

Gloria

klhale · Post by **klhale** » Mon Jan 17, 2011 7:15 pm

I do not have a problem unless I am eating something that causes the problem.
You must have something you are eating that your bowel does not like.

willabec · Post by **willabec** » Mon Jan 17, 2011 8:09 pm

that is what i keep reading here....but what i had the past couple of days is no different than what i have eaten before without a problem. the only thing i can maybe think of is that i had past with homemade sauce 3 days in a row and homemade chix soup 3 days in a row....maybe too much of a good thing??

Foxnhound8 · Post by **Foxnhound8** » Mon Jan 17, 2011 8:54 pm

In my limited experience, I have found the same thing. Sneak a piece of the kid's pizza or a peach and think I'm gonna pay, and nothing happens. Be very good with broth, chicken and rice and sometimes I too, have the "pile" you speak of. I had 9 days of pretty good, then got the stomach flu and ran a 102 temp...two days later, back to raging D.

foxnhound

klhale · Post by **klhale** » Tue Jan 18, 2011 9:50 am

That's it. You cannot have the same thing 2-3 days in a row. When I was in remission, I could eat something really good once, like pizza, but if I ate it again the next day, or the 3rd day, I would get sick.

So I learned to never eat forbidden foods 2 or 3 times in a row.

I could eat the item once a week and remain in remission.

Karen

willabec · Post by **willabec** » Tue Jan 18, 2011 10:15 am

karen, i hope that is it....i will try to pay more attention to how many times i eat something. not sure how gf pasta and home made sauce and homemade chix soup could be an offending food....but who knows!

MaggieRedwings · Post by **MaggieRedwings** » Tue Jan 18, 2011 11:18 am

Afternoon,

Since I am a person that works 10-hour days, I do my cooking on the weekend for the week like a number of others here. I have absolutely no problem with eating the same things 3 days in a row and have done so for the 10+ years I have had this disease. I do not do it every week but more so than not.

Karen - what is good for one person does not always work for another. For the most part we do not make absolute statements to cover everyone. Pizza one time would put me down for days due to the gluten.

Maggie

willabec · Post by **willabec** » Tue Jan 18, 2011 11:28 am

i know it's not gluten that is the bother b/c i am gluten free due to celiac disease. i have been better about staying away from dairy, maybe a small slice of cheddar cheese on my bagel, egg and cheese sandwich. so maybe i will never know what the problem/issue is. it just seems like the past day or two i feel like i did before the meds, going twice in the a.m. again, (was only going once or even that in the a.m) and then the urgency too.....ugh!!

Post by **tex** » Tue Jan 18, 2011 2:36 pm

Maggie is right on target, of course. If we cannot eat a certain food more than 2 or 3 days in a row, without reacting to it, then we are obviously sensitive to it, and it takes 2 or 3 days worth of "dosing" before we reach the threshold, at which point a reaction is triggered. Each food sensitivity has it's own threshold, (our personal tolerance level for that particular food), at which a reaction is triggered. Eating a food which has that effect on us, is a little like eating a little bit of poison each day, but stopping before we get enough in our system to kill us. It is definitely not a good practice, because it prevents the intestines from ever completely healing.

When we react to a food, whether it takes 10 minutes, or 10 days, to ingest enough to cause a reaction, it is because our body is trying to tell us something - namely, that something in our diet is not compatible with our digestive system. Sometimes, such reactions are simply a matter of getting too much fiber, or sugar, or some other "irritant" in our diet, and not actually due to an autoimmune-type sensitivity.

Tex

Gabes-Apg · Post by **Gabes-Apg** » Tue Jan 18, 2011 3:01 pm

Similar to Maggie
to survive the working week i do a cook up on the weekends. This cook up is based on the ingredients that are my every day foods.

there are some ingredients that i can have sometimes. if i have these sometimes foods any more than once in a period of 3 days i have issues
there are some ingredients that i will have a mild reaction to
there are some ingredients that i have a very quick and quite intense reaction to

it is exhausting figuring out what works and doesnt work for you, it takes patience, tenacity and a bit of toilet paper.
the food and reaction diary is a good aid to help you solve the mysteries. carrot and cauliflower (cooked) are sometimes foods for me, if i have them in the same meal i get an intense reaction if i have one of them one day and the other the next i am ok.

hope this helps

willabec · Post by **willabec** » Tue Jan 18, 2011 3:47 pm

what also bothers me or confuses me is that the pathologist said my mc was a mild case....if that is so,, why not a better reaction to the entocort, etc? like i mentioned before, things are better but not how i had hoped. the loose stools had been going on for a year or two (that i can remember). my problem with trying to give up other foods, say soy, is that it is in everything right? i would not know where to begin.....especially since i am gf and staying away from dairy....

MBombardier · Post by **MBombardier** » Tue Jan 18, 2011 4:23 pm

Soy is hard, but I have discovered in my short time doing this thing that making one's own food, hard as it is sometimes, is probably the easiest way to stay away from the stuff. Though there are definitely some good store products that are soy-free.

I am discovering that rice is one of those foods that I cannot eat more than a couple of days in a row. I am so glad to know the experiences of Gloria, Gabes, and others who vary what they eat to avoid reaction. It is also making me much more interested in the SCD or paleo.

By the way--the January Reader's Digest always has a diet article of some sort, and this year--drum roll--it was about the Adkins diet, or basically the hunter-gatherer diet, which the interviewee managed to sneak in at the end of the article.

Gabes-Apg · Post by **Gabes-Apg** » Wed Jan 19, 2011 3:07 am

Soy can be a bit difficult but not impossible to remove. I am GF/DF/YF/SF

In australia more and more of the gF/df/yf products (Orgran brand) are now Soy Free.
things like corn chips, and those sort of food items now have Palm oil not vegetable oil

my eating plan is based on lamb, chicken, fish, eggs, rice, the veges and flours i can tolerate, as mentioned i make my own stock, do a cook up on the weekend so i have most of my meals for the week. going back to simple basics and avoiding preprepared you can easily avoid soy.
I use rice bran oil as i can not tolerate olive oil, and Lyn put me onto things like organic macadamia oil.
and we have a GF/DF/SF spread as a butter replacement (i have been using this for over 10 years and use it to make cakes etc)

the soy ingredient is the one that has curtailed and limited the ability to eat out, as most foods are cooked in vegetable oil (as it is cheap) so the food might be gf/df/yf but the oils the restaurant/cafe use are soy based

I have used the infamous Ant chef card and requested the meal be cooked with sml amt of butter instead of vegetable oil (i do this as i can handle small amts of dairy far far better than soy)

it is a sacrifice and quite draining to change your eating plan, your cooking methods even shopping can be a bit tiring, as you have to hunt for hidden ingredients all the time!!! once you figure out what works, get into a routine, and you attain wellness and minimal symptoms it wont seem so overwhelming.

i am lucky here in Australia, if the supermarket or the health food store dont stock the products, i can buy it online and get it delivered at a reasonable cost, this is how i get my stocks of gf/yf/df/sy rice milk chocolate.