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tex
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Post by tex »

Karen, Karen, Karen,

Whatever are we going to do with you? Did you really think that my memory is so bad that I wouldn't notice that you edited your earlier post to make it match your last response? That's exactly why most discussion board administrators do not allow editing of posts, after a certain amount of time, or after someone has responded, but I thought that we were above that sort of thing, on this board. Members of this board have privileges that they wouldn't have on most other discussion boards, because we consider ourselves to be a family, here. I also removed the ability of the system to post that annoying message that appears on most php boards, announcing when someone has edited a post, and how often they have edited it, because I consider that to be unnecessary clutter, which detracts from the information available in the posts. Unfortunately, that casual policy has a downside, also, which you have just demonstrated, so I have reluctantly removed the option to edit "prior" posts. :sigh:
Karen wrote:No, I did not say that if I stop eating gluten that I have a flare.
That's technically true, of course, because what you actually said, (before you edited it), was that if you stop eating gluten, you get sick - you didn't mention a flare, ("flare" was my word choice, not yours). I fail to see any difference in the basic meaning, though. That's pretty strong language on a forum where hundred's of other members have found the opposite to be true. There is no medical precedent for the GF diet to cause someone to become ill, so obviously you have some other very unusual overriding issues, or you have an agenda to promote. Either way, promoting such a concept as "advice" to someone else who is seeking help here, can hardly be viewed as constructive.

Sourdough breads are usually low-gluten breads, so it's certainly possible that you might have a higher threshold for gluten tolerance than many of us, which might allow you to eat low-gluten products without triggering a reaction. As I mentioned in another post, this amounts to eating a little bit of poison, while keeping it under the "lethal" level. A celiac who does that, will never see the damage to their small intestine heal, even though they may not be having any clinical symptoms. In the case of MC, it's the colon that receives the most damage, though the small intestine is also involved, in many cases. Since that is a very unhealthy practice, if you wish to do that to your health, that is your own business, but making such off-the-wall recommendations to someone else on this board, who is diligently trying to follow the best options, in an effort to achieve remission, is a very disingenuous attempt on your part, to undermine their recovery, and certainly not offered in a sincere attempt to help.

Another comment that illustrates that you clearly have an agenda, is your lead statement in that post:
Karen wrote:I am not trying to dampen your plan, but Gluten free products do not work for me at all.
Well if you're not trying to "dampen her plan", you're doing a mighty good job of keeping it a secret, because that statement is about as "plan-dampening" as it could possibly be.

Please don't misunderstand me, I realize that we are all different, and we all have to develop our own treatment program that works best for us, individually, and as far as I am concerned, anything is fair game, so long as it works, and works safely. Accordingly, if you are happy with your treatment plan, than I am happy for you, too. However, when offering advice to others, we have a responsibility to be cautious about making one-in-a-million, long shot suggestions that are the exact opposite of what most of us here have found to be true, (and proven to be true by hundreds of us, in our own recovery), especially if that advice might compromise someone's journey back to health, or otherwise jeopardize their health and well-being. It is an established fact that gluten is not essential to anyone's diet, but more than that, gluten is extremely detrimental to anyone who is sensitive to it, and according to our collective experience here, that applies to the vast majority of people who have MC. IOW, when you recommend the addition of gluten to someone's diet, as an aid in the treatment of MC, then you are clearly overstepping the bounds of good judgment to such an extreme, that it puts your future on this board in jeopardy.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joefnh
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Post by Joefnh »

Thanks for pointing that out Tex. I did find that I tolerated the King Arthurs better. The Pamela's did ok... but did not settle as well. I am going to have to find Bread's From Annas and try out their mix.

This can really be a minefield at times :shock:

Take care Tex

--Joe

PS: Hows your syrup supply?
Joe
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Post by TooManyHats »

Has anyone tried the Bisquick one? I have a box I bought before I started trying to stay away from soy, so I'm not sure if it's in there or not. I haven't been that adventurous yet. I wanted to give my taste buds time to "forget" first. I did have a grill "cheese" sandwich with Daiya cheese substitute and Earth balance on gluten free bread. Maybe I've waited long enough because it was good! Or maybe I'm finally that hungry. Anyone else find that they are hungry ALL the time after removing the irritants from their system?
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Post by Joefnh »

Hi Arlene. My quest for tolerated pancakes began with the GF Bisquick mix and that did not go well at all. I have found that I am reactive with both soy and gluten, but I believe that I am more sensitive to soy. The GF Bisquick mix may contain soy and unfortunately the first box I tried made me ill for about 3 days. Who knows it may work well for others.

So far I found that the King Aurthur's was tolerated the best, and actually the flavor was great. I am going to see if I can find Annas locally

--Joe
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Post by MBombardier »

Well... I get hungry, or I should say that I look forward to eating, which I do a couple of times a day. Hungry may be too strong a word. That was not often the case before I went gluten-free, but I have not-well-controlled thyroid issues complicating things.

As far as the Bisquick is concerned, it was either Joe or Rich (I think Joe) that had issues with the Bisquick because of the soy(?). If you do a search, you can probably come up with the thread. It was within the last three months.
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tex
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Post by tex »

Joe,

I'll send you the spare package of mix that I have. I'm sure your address is on the care package that you sent me.

It's gluten, yeast, corn, dairy, soy, nut, and rice free. And it's maple flavored, to boot. :grin: The top of the paper bag that it's packaged in has a little hint of grease spatters, (it was sitting behind the griddle, while I was frying bacon :roll:), but the mix is in a sealed plastic bag inside, so it's still pristine. I'll send it out by priority mail, tomorrow.

The syrup is long gone. I destroyed it the same way that Rich's dog, William, destroys gluten when he finds it - I poured it on pancakes and devoured it. :lol: It was superb. :thumbsup:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Joefnh »

OK Tex fair enough I will trade you then.. some New Hampshire maple syrup for the mix... sounds like a trade that was meant to be.

PM you address again if you could

--Joe
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tex
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Post by tex »

But Joe,

I'm already in debt to you for the first batch.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Joefnh »

Not the way I see it... Last time I checked you give non-stop to this site. So unless this is some new type of math its time for some syrup to go to Texas. :grin:

--Joe
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Post by Matthew »

Well ....I am jealous that some of you can eat the gluten free pancake mixes. Every one contains tapioca that I just can not tolerate even if it is way down on the list.

On occasion I make banana pancakes. Very simple.

One not over ripe banana.
One Egg.
Three tablespoons almond flour. I prefer the kind ground without the skins.
Mash together. Some lumps will not matter.
Fry on an oiled griddle until lightly brown . Not to hot or they burn.
Makes four medium sized pancakes. They puff up even with out baking powder or baking soda.

Serve them with Fresh fruit or safe sausage and of course one hundred percent pure Vermont Maple Syrup. No substitute IMO.

I have the opposite problem. I am rarely hungry. I make lots of wonderful delicious meals but eat only because I know I have to. I am symptom free the greatest percentage of the time. Lots of energy. Lots of motivation If I don’t eat because I am not hungry digestion goes south. I maintain a good weight neither losing or gaining so I am not really concerned.

Oh Well, this to shall pass.

Love

Matthew

P.S. Wayne- Enjoy the syrup. You deserve it.
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Post by harvest_table »

joefnh wrote:OK Tex fair enough I will trade you then.. some New Hampshire maple syrup for the mix... sounds like a trade that was meant to be.

Watch out Joe, he's a ruthless trader
Damn! I'll trade you our worthless governor, our comptroller, attorney general, and two other top officials of your choice - for your governor. I might even be persuaded to throw in a couple of good saddle horses, so that you wouldn't feel completely cheated on the deal. LOL.
Love,

Joanna
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tex
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Post by tex »

Joe,

Well, I certainly can't complain about the terms of this trade. :grin:


Matthew,

I agree - why can't someone make a pancake mix without tapioca?

I've got to try your recipe one of these days. For some reason or other, every time I'm in a mood for pancakes, I either forget, and reach for the Pamela's mix, or I'm out of bananas. :sigh:


Joanna,

I must have been in a trading mood that day. :lol: Those were the good old days, weren't they. :grin:

Love,
Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Gabes-Apg »

Tex
has MC affected your negotiation abilities?
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Post by TooManyHats »

I'm accumulating quite a large bag of groceries to return to my grocery store. Before going soy-free, I bought things that were gluten-free. Now I'm seeing that many of them have soy in them.

A small victory for me. I bought a "soy sauce" substitute from a company called South River Miso. I took the lid off and tasted it and it's pretty darned good! I can see Chicken Mei Fun at our house very soon!

Does anyone think that I can REALLY clean the gluten and soy out of a metal wok without a non-stick surface? Maybe soaking it and using steel wool? If not, I won't chance the risk of cross contamination, but I'd love not to have to trash something else. My husband has been so patient with all this, but I'm trying wherever I can to be able to use what we have. Yes, aluminum foil is my friend. :lol:

I too can tolerate bananas, and I've heard they help with seborrheic dermatitis, which is related to B6 deficiency. I've been trying to eat more foods with B6 so bananas are my friend too. Anything to help this itching.
Arlene

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Post by Matthew »

Wayne-

I know what you mean. Had the same problem getting around to your frozen bananas that have become a favorite for even those friends that can eat Ice Cream. Great with fresh fruit or Dee’s Carmel Sauce for those special occasions that deserve desert.

Arlene-

Just take your propane torch and blast it red hot, outdoors of course . Then steel wool it well after it is cool.

That should get rid of any gluten or soy.

Matthew

OOPS, maybe you don't have a propane torch. I have had one for so long doing work around the house and shop that I forget that others may not have one. Mabe a friend, you auto mechanic or plumer would be willing.
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