Is it so hard to believe i was misdiagnosed.

[lisa15601]

Is it so hard to believe i was misdiagnosed. This is the only reason I want to get another colonoscopy. Of all the meds I have taken none have worked. I dont want to aggravate anyone on this board and I feel I have. I am sorry.

[tex]

Is it so hard to believe i was misdiagnosed.

Yes, frankly, it is, because your pathology report clearly notes the existence of a marker for LC. Why any doctor would argue with, or deny, such obvious evidence, is beyond me. Also, a misdiagnosis of MC is without precedent. It is often missed, but never misdiagnosed.

Of all the meds I have taken none have worked.

No one is denying that, but that's irrelevant to the issue. No meds are guaranteed to work, for any purpose. They are sold with a guarantee of purity, but absolutely no warranty on their therapeutic effectiveness for any individual patient.

The problem is, there is no reason to believe that not having a diagnosis of MC is going to miraculously make those medications, (or any other medications, for that matter), suddenly begin to relieve the symptoms that you are having. Just for grins, let's assume for a minute that you do not have MC. How do you plan to treat your symptoms? You've tried just about every drug your doctors could come up with for treating everything from "IBS" to Crohn's disease, and you say that nothing has helped. How will not having a diagnosis help?

There is no need to apologize, and please don't feel that you have aggravated any of us, because we love a good debate, and we almost always learn a lot from a good debate. We're frustrated, not aggravated, so no one is upset, (at least I hope that's true).

The bottom line is, it's you life, so whether or not you request/submit to another colonoscopy is entirely your decision, (assuming that your doctor will go along with it), so please don't feel pressured by our opinions. We're simply saying that we feel that if we were in your shoes, we wouldn't even consider getting another colonoscopy, but you have to do what is right for you, (not what would be right for us). And obviously, you will not rest until you have another colonoscopy, so that must be the correct decision for you.

As I said before, I hope the colonoscopy exam goes smoothly, (and the upper endoscopy, as well), and please let us know how the results turn out, because this is an excellent learning opportunity for all of us, and we appreciate that you're sharing your information with us.

Tex

[ant]

Dear Lisa

I agree. This debate is good and important.

Wishing you all the best with the procedures should you go ahead.

Best ant

[Pat]

My first GI dr diagnosed me with IBS even after the colonoscopy which clearly stated that I had LC and CC. Microscopic Colitis was stated in all caps, but he ignored it and just told me IBS. The second colonscopy 7 years later said the exact same thing. That one was with a different dr and they told me the truth. I have no idea why he did that. He retired fairly young and occationally I see him around town. I would like to give him a piece of my mind, but what good would that do. sigh. BTW meds haven't helped me. Even 40 mg of Prednisone.


Good luck, Lisa, whatever you do.

Pat

[Zizzle]

Pat,
That is malpractice of the highest order!! I'm horrified just thinking about the years you suffered. You should minimally write him a letter so he can learn a lesson. No one should get away with that!!

I request copies of any and all lab results when I get them. Even if I have reviewed them with the doctor. With a condition as complex as MC, it's worthwhile to keep your own medical records at home. My crumby GI told me I had MC, and wouldn't differentiate between LC and CC. It wasn't until I got a copy that I realized it was LC. Grrr!!!

[harma]

Lisa, if you are so much doubting the diagnosis of your first GI, I would say, in your case, the best choice is, to ask for a second opinion (what you are doing now). If that includes more exams, than it be so. Have you also thought about having your original biopts re-examined? If they still exit of course. Anyway good luck with it, whatever choice you make.

[TooManyHats]

Remember, thanks to the lovely HIPAA law (Health Insurance Portability and Accountability Act), you now OWN the results to your first set of tests. You may ask for them and must be given a copy of them. You are then free to go to another doctor for a second opinion without the need for a second test. Sometimes that law can work to our advantage.

[Pat]

Zizzle,

Yes, I agree. I now ask for copies of all tests. I just trusted. I am not so naive ( is that spelled right?) anymore. At least I try not to be.


Harma,

From experience, yes, our biopsies are put on slides and they can be sent to another pathologist for reexamination and diagnosis. That is exactly what GI doc #3 did just to satisfy himself not me. The results were the same. The first pathologist said this practice is done all the time. No problem.

Pat

[TooManyHats]

From experience, yes, our biopsies are put on slides and they can be sent to another pathologist for reexamination and diagnosis. That is exactly what GI doc #3 did just to satisfy himself not me. The results were the same. The first pathologist said this practice is done all the time. No problem.

EXCELLENT idea, if they are still available! If there is any doubt, this is a great option.

[jme22]

Pat...I had the same experience:

I was able to access my biopsy slides with no problem. My gastro did the colonoscopy with the tissue sample testing, but my allergist/immunologist at Hopkins wanted to have the tissue re-evaluated by the lab at Hopkins. It took a little bit of leg work on my part but I was able to get the slides and then hand carry them up to Hopkins. No change in results with the second look at the slides, but much easier than another procedure!

Julie