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We tend to think of gluten-sensitivity in terms of serious diarrhea issues, but for some people, that isn't the way it presents. Consider this case:
This isn’t a diet of choice for Tiffany Gragg; it’s a necessity.
When Gragg started experiencing acid reflux, nausea and stomach cramping for no reason eight years ago, she had no idea what was causing it. It took three years for doctors to diagnose Gragg with celiac disease, a digestive condition making people intolerant to gluten, a protein found in many foods containing wheat, barley or rye.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I believe you're right. I had forgotten about her story. And, as I recall, gluten seems to be her only sensitivity, and the GF diet works beautifully for her, but she does indeed have MC, and not celiac disease.
Thanks.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I think what irritates me the most regarding these situations, people have to be chronically ill for a period of time before a doctor will acknowledge that gluten could be the main trigger.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I had some pretty severe acid reflux for a year or two before the MC. I did notice that it got much better when I ate a lower carb diet (lightbulb goes off ) and is essentially a non-issue since I went gluten free.
That irritates me, too, almost as much as when someone with MC has gone GF on their own, seen great improvement, tells their doc, and then is told that diet can be stopped because it doesn't work anyway. Even when told it WORKS, some docs say to stop it. I will never understand that line of thinking.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Deb wrote:I had some pretty severe acid reflux for a year or two before the MC. I did notice that it got much better when I ate a lower carb diet (lightbulb goes off ) and is essentially a non-issue since I went gluten free.
That makes me wonder how many people with undiagnosed MC might be taking PPIs, and watching their symptoms get worse, instead of better.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Great post Tex. As i have talked about before, I believe I was dealing with MC symptoms for a number of years. Mostly they were some unexplained D, but mostly it was fatigue with muscle and joint pain from eating gluten.
I had some pretty severe acid reflux for a year or two before the MC. I did notice that it got much better when I ate a lower carb diet (lightbulb goes off Idea ) and is essentially a non-issue since I went gluten free.
That is sure what happened to me. Acid reflux, which I had pre MC dx and GF diet, is now gone.
Ant wrote:That is sure what happened to me. Acid reflux, which I had pre MC dx and GF diet, is now gone.
So, in a perfect world, whenever a patient reported chronic and severe acid reflex issues, instead of reaching for the prescription pad, to write out a prescription for a PPI, a doctor would start thinking about the best ways to screen the patient for a possible diagnosis of MC, before the disease becomes fully developed, and the other symptoms present.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
They did not think of Celiac or MC back then..... and never did a gene test nor endoscopy/colonoscopy. If they had been able just to do the genes that would have been a big red flag.
But, (for the sake of accuracy) they prescribed Gaviscon, which I believe (??) is not a PPI.