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When I was first diagnosed (one month ago) my Dr. wanted me on 9mg of Entocort and after the month was over ween me off. It's been a month and I am still having my symptoms. So I just spoke to him and he wants to continue me on the 9mg for another month. He did mention Asacol but believed that the Entocort was better for my LC and the Asacol better for ulcerative colitis. He said I could take either pepto or immodium to help with the D, which do you guys prefer? Does one work better than the other for LC?
He was also not surprised that I tested positive for ANA. I do already have a bunch of auto immune disorders... I am seeing a specialist on Thursday so i am keeping my fingers crossed that I don't have ANOTHER thing to deal with!
Jenny
finally spoke to my GI....
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Jenny,
I'm very glad your Dr. said to stay on the Entocort at least for another month. Due to the experiences of many others on this board, one month, two months, three months, and more is not enough time to heal. Why bother taking the med at all if you are not going to take it long enough to do some lasting good.
Most people who have had some success with Entocort take it for at least 6 months. Also, alter their diet.
Just my opinion. My best wishes to you.
Love, Shirley
I'm very glad your Dr. said to stay on the Entocort at least for another month. Due to the experiences of many others on this board, one month, two months, three months, and more is not enough time to heal. Why bother taking the med at all if you are not going to take it long enough to do some lasting good.
Most people who have had some success with Entocort take it for at least 6 months. Also, alter their diet.
Just my opinion. My best wishes to you.
Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Jenny
That’s more like it. You really do need to stay the course with the Entocort for a while longer. If you read back thru this site, you will learn here, that there have been several people who took quite a while to see results with the Entocort. And even then, the course of improvement can be an up and down thing -- one can expect to back-slide occasionally. Impatience is truly NOT a VIRTUE when trying to deal with this condition. And IMHO, impatience can be your enemy, by making things more difficult to manage.
By more reading here on this site’s pages, you should be able to develop a good list of questions to take along next time you have a in-person visit and discussion with your Doc.
If your Doc is hesitant about the Entocort, it just might be because he/she has not dealt with a significant number of MC patients. Also, your Doc will probably say that what you eat has no bearing on this condition. But he does not tell you what to eat either, so you are free to follow some dietary precautions -- as you find helpful.
AND -- BE
1. read these pages to learn what kind of diet modifications have helped people.
2. avoid NSAIDs.
3. stay well hydrated.
4. get your exercise.
5. enjoy life.
MC is a manageable condition. The trick is in learning the ropes (and how they affect you). Everyone here has had to learn (or is leaning) this.
As to the Pepto or Immodium question. You could use either.
And either one will probably give you some help. Pepto was for a long time recommended to treat this disease but there is something of a time limit to using it. You should be careful of the Immodium as occasioally it really "grabs" -- and stops all movement for 3-4 days. 
Gayle
That’s more like it. You really do need to stay the course with the Entocort for a while longer. If you read back thru this site, you will learn here, that there have been several people who took quite a while to see results with the Entocort. And even then, the course of improvement can be an up and down thing -- one can expect to back-slide occasionally. Impatience is truly NOT a VIRTUE when trying to deal with this condition. And IMHO, impatience can be your enemy, by making things more difficult to manage.
By more reading here on this site’s pages, you should be able to develop a good list of questions to take along next time you have a in-person visit and discussion with your Doc.
If your Doc is hesitant about the Entocort, it just might be because he/she has not dealt with a significant number of MC patients. Also, your Doc will probably say that what you eat has no bearing on this condition. But he does not tell you what to eat either, so you are free to follow some dietary precautions -- as you find helpful.
AND -- BE
1. read these pages to learn what kind of diet modifications have helped people.
2. avoid NSAIDs.
3. stay well hydrated.
4. get your exercise.
5. enjoy life.
MC is a manageable condition. The trick is in learning the ropes (and how they affect you). Everyone here has had to learn (or is leaning) this.
As to the Pepto or Immodium question. You could use either.
And either one will probably give you some help. Pepto was for a long time recommended to treat this disease but there is something of a time limit to using it. You should be careful of the Immodium as occasioally it really "grabs" -- and stops all movement for 3-4 days. Gayle
Jenny, I was on entocort for 7-8 months the first round, was off a few months, had a flare and went back on for about 5 months. I've been off since last June with diet changes of course. I'm gf, df, sf, and ef although I seem to tolerate eggs in baked goods and have been able to eat eggs my ducks lay for some reason. I've used immodium and pepto along the way as needed. I would use immodium as "insurance" if I needed to get through meetings, travel, etc. You can experiment and see what dosage you need. They break very easily and you can take small amounts if a whole tablet causes problems. I've used pepto for stomach distress or other intestinal pains. My course to remission was not an obvious continual progression towards improvement-it was filled with ups and owns, going forwards and backwards, sometimes never being able to figure out why one day was worse than another. But overall, I was going forward even when I didn't realize it at times. I think you really need to take the long view of this and not get too discouraged by the set backs that will surely come. As long as you are working on your diet, taking your meds, getting sleep, and managing stress as well as you can, you'll get there. This disease will teach you patience if nothing else. Good luck, JoAnn
Courage is being scared to death, but saddling up anyway. John Wayne