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I think it's time to find a doctor. I have a list of questions, not too grueling for a first visit, but would very much like to increase my odds of choosing an MC-aware GI doc without too many false starts.
Does anyone have recommendations for the New York area for a doctor? And/or, any suggestions for how to embark on this search?
Many thanks,
Sara
Finding a doctor
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TooManyHats
- Rockhopper Penguin
- Posts: 550
- Joined: Fri Jan 14, 2011 9:30 pm
- Location: New Jersey
It will be interesting to see where you wind up as a friend of mine keeps nagging me to go and see a doctor in the city. In the NY Metro area, we're all programed to believe that the best docs are in NYC. In this case, it will be interesting to see of "best" means MC aware-cooperative-open minded. Please keep us updated on where you wind up.
This is posted in the "Helpful Doctors" section:
This is posted in the "Helpful Doctors" section:
if we get any New Yorkers joining---I would suggest Dr. CHAPMAN---naturally in the city connected with Mount Sinai Hospital----
he gave me back my life----
Arlene
Progress, not perfection.
Progress, not perfection.
Arlene,
Thanks - I forgot there even was such a thing as a 'helpful doctors' section... and now I'm blushing, which is perhaps another MC symptom :)
Even more embarrassingly, I might have seen Dr. Chapman in '97. I saw someone on E. 86th St. It was a very traumatic time, and then I had a mysterious lack of symptoms, and was very glad to forget a lot of my medical life back then.
I know what you mean - people really think their doctors walk on water. The longer the waits, the posher the waiting room, and the fewer insurance options the doc will take, the better NYers consider the care. My mother saw a wonderful doctor in a horrible clinic in a distant, not-great neighborhood for years. SO THERE, Upper East Side!!!
But I think Dr. Chapman's a good place to start. Maybe he even has my records. I have every cholesterol result I ever got, but sadly, none of my CC records at all.
I will be interested to see whether his first priority is scheduling me for my overdue 50yo colonoscopy. That is, let us say, not first on my list, though I know I am overdue and will be glad to get it behind me, if I can first get the current flare behind me.
And I will keep you posted. If he's wonderful, and you decide to come into the city to see him, I will bring you a care package cooked entirely out of your safe ingredients list, no matter how limited that may be at the time. Promise.
Sara
Thanks - I forgot there even was such a thing as a 'helpful doctors' section... and now I'm blushing, which is perhaps another MC symptom :)
Even more embarrassingly, I might have seen Dr. Chapman in '97. I saw someone on E. 86th St. It was a very traumatic time, and then I had a mysterious lack of symptoms, and was very glad to forget a lot of my medical life back then.
I know what you mean - people really think their doctors walk on water. The longer the waits, the posher the waiting room, and the fewer insurance options the doc will take, the better NYers consider the care. My mother saw a wonderful doctor in a horrible clinic in a distant, not-great neighborhood for years. SO THERE, Upper East Side!!!
But I think Dr. Chapman's a good place to start. Maybe he even has my records. I have every cholesterol result I ever got, but sadly, none of my CC records at all.
I will be interested to see whether his first priority is scheduling me for my overdue 50yo colonoscopy. That is, let us say, not first on my list, though I know I am overdue and will be glad to get it behind me, if I can first get the current flare behind me.
And I will keep you posted. If he's wonderful, and you decide to come into the city to see him, I will bring you a care package cooked entirely out of your safe ingredients list, no matter how limited that may be at the time. Promise.
Sara
Sara,
I was just reading an article about Elizabeth Hasselbeck (she is on "The View") and has written a book about gluten free diet. She went to Peter Green, M.D., head of the Celiac Center at Columbia University in New York City. He wrote the Forward in her book.
Good luck in your search. I am going to a new one myself next month that was recommended by Joe. Finding a good doctor that will really listen to you isn't easy.
Nancy
I was just reading an article about Elizabeth Hasselbeck (she is on "The View") and has written a book about gluten free diet. She went to Peter Green, M.D., head of the Celiac Center at Columbia University in New York City. He wrote the Forward in her book.
Good luck in your search. I am going to a new one myself next month that was recommended by Joe. Finding a good doctor that will really listen to you isn't easy.
Nancy
Yes, Dr. Green is one of the "enlightened" doctors.
I think this response to the blog at the following link, says it best, about pioneers in the field of non-celaic gluten-sensitivity:
Dr. Osborne is another, who is carrying on the tradition, but unfortunately, he practices near Houston, TX, (in Sugar Land).
http://www.celiac.com/authors/1021/Dr.-Peter-Osborne
Tex
I think this response to the blog at the following link, says it best, about pioneers in the field of non-celaic gluten-sensitivity:
http://www.drozfans.com/dr-ozs-advice/d ... -epidemic/Dr. Peter Osborne says:
September 1, 2010 at 9:14 pm
Credit for non celiac gluten sensitivity needs to go to pioneer researchers and educators like Dr. Kenneth Fine, Dr. Rodney Ford, and Marios Hadjivassiliou. These men sparked much of the research in to the extraintestinal manifestations of gluten sensitivity.
All the best,
Dr. Osborne
Dr. Osborne is another, who is carrying on the tradition, but unfortunately, he practices near Houston, TX, (in Sugar Land).
http://www.celiac.com/authors/1021/Dr.-Peter-Osborne
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you all so much - this is incredibly helpful.
Nancy - I'm a Mass. native, and though I've been in NYC for 25 years, I think the health care options, and general openness, has been better there for a long, long time. Hopefully, we'll catch up here.
I had seen the Celiac Center online, but wasn't sure if they were "our" people. I will start there. They're having an event this Saturday, but I'm not registered in time (a phone call is in order).
And Tex - I did some reading on Dr. Osborne's site, having followed a link you posted on another topic. I'm still amazed at some of what I learned from him in that one brief visit. Is he near you? (You know how we northeastern gals have a confused sense of "near" when it comes to Texas.)
Many thanks,
Sara
Nancy - I'm a Mass. native, and though I've been in NYC for 25 years, I think the health care options, and general openness, has been better there for a long, long time. Hopefully, we'll catch up here.
I had seen the Celiac Center online, but wasn't sure if they were "our" people. I will start there. They're having an event this Saturday, but I'm not registered in time (a phone call is in order).
And Tex - I did some reading on Dr. Osborne's site, having followed a link you posted on another topic. I'm still amazed at some of what I learned from him in that one brief visit. Is he near you? (You know how we northeastern gals have a confused sense of "near" when it comes to Texas.)
Many thanks,
Sara
Sara,
Sugar Land is about 4 hours SE of here, (by auto - 3 to 4 days on horseback, [if you don't get run over before you get there]
), but it's not very far from Houston, where several of our members, (including Lucy, GrannyH, and Mary Beth), hang out. As far as I'm aware, though, none of them have ever met him.
Tex
Sugar Land is about 4 hours SE of here, (by auto - 3 to 4 days on horseback, [if you don't get run over before you get there]
), but it's not very far from Houston, where several of our members, (including Lucy, GrannyH, and Mary Beth), hang out. As far as I'm aware, though, none of them have ever met him.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Kari - it's far, but actually a straight shot from here by subway.
Thanks so much for another vote for Dr. Green. I just called, having seen on the celiac center's web site that they will want my blood tests and biopsy report, which I may have trouble extracting from whatever archival tomb they've been in all these years. Anyone can have my blood any time, but I am not up for any biopsying at the moment. So now I have an appointment for July 26th. That should give some time to find those dusty old records!
And meantime, I think I'll book a friendly weekend visit to a friend in Another State so I can get my Enterolab testing done. I had considered skipping it, but with 4 months to go, it seems like a good idea to drive out of my way to get any information that might clarify how and what I might want to try eating next!
Sara
Thanks so much for another vote for Dr. Green. I just called, having seen on the celiac center's web site that they will want my blood tests and biopsy report, which I may have trouble extracting from whatever archival tomb they've been in all these years. Anyone can have my blood any time, but I am not up for any biopsying at the moment. So now I have an appointment for July 26th. That should give some time to find those dusty old records!
And meantime, I think I'll book a friendly weekend visit to a friend in Another State so I can get my Enterolab testing done. I had considered skipping it, but with 4 months to go, it seems like a good idea to drive out of my way to get any information that might clarify how and what I might want to try eating next!
Sara