Visit the Microscopic Colitis Foundation Website
). The good news is Enetolab's testing was accurate.I asked if futher testing was indicated, and she repeated what Dr. Fasano said during my appt - not unless I want to endure a gluten challenge of several weeks. I asked her what they do for patients with celiac and MC. She said they often do a small intestine biopsy at the same time as the scheduled colonoscopies, to make sure the celiac is under control. I asked if they prescribe meds for MC and she said they only do for cases where the symptoms are really making life difficult, or for patients who simply won't comply with an elimination diet. She gave an example of nursing home patients having D multiple times a day and how that's just not feasible for them or their caregivers, so they prescribe meds. She mentioned that it's important to get all the inflammation under control, so I asked if she felt the drugs were curative. She said no, they only deal with the symptoms. I explained that I was GF/DF/SF and I declined meds, and I was still not 100% but much better. She commended me for going the diet route and said that is always preferable when a patient is willing to stick with it.
She said they refer their celiac patients back to their GIs for medication management for MC.
I told her I knew Dr. Fasano was now doing research on gluten intolerance, not just celiac, and I said I would be willing to be a test subject. She immediately emailed my name to their clinical trials coordinator.
