Reflecting back (and forth) after 2 months here

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Gabes-Apg
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Post by Gabes-Apg »

I am giggling at
(Tomorrow, I have to figure out what to have for breakfast, so I can leave bright and early, do my thing, and come home still energized and well... one thing at a time.)
in the same context
right now, i am juggling a reciepe to make a lemon meringue pie so that it is 'gabe safe' as the desert for my friends birthday tonight
i am also boiling veges so i will have a my bubble and squeak for breakfast tomorrow.....

once the menu is sorted, then i think about what to wear!

I am sure you will get great evals - as you will smiling and pouting that you are wearing lipstick! please send me the link to where you got them....i need to make the most of the "joe aussie-usa courier service" before it finishes in July!
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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sarkin
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Post by sarkin »

Gabes,

We are clearly having the same brain-waves... because I just thought - what am I wearing tomorrow to teach??

Jumping on that... but promise a lipstick/resource update after class ;)

That dessert sounds fabulous... hope you'll share in Dee's Kitchen.

xox/S
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Post by starfire »

sarkin wrote: That dessert sounds fabulous... hope you'll share in Dee's Kitchen.
I second that!!!

Love, Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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jme22
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Post by jme22 »

Sara,

As you described, this is indeed a journey. I just passed the two year anniversary for receiving my diagnosis of mastocytic enterocolitis and shortly thereafter finding this great group of people. I've made much progress in those two years (in large part to the folks here) but I certainly have more ground to travel. It is a learning process and I applaud your understanding and acceptance of that so early on. Embracing that fact will help you in what is a long distance run, not a sprint when it comes to dealing with your GI issues.

You mentioned drinking wine so I did want to note, as someone whose GI issues are mast cell driven, that alcohol is a mast cell degranulator. Simply put, this means that drinking alcohol will result in release of histamine and potentially ensuing symptoms. I don't know if you have read up on what can trigger mast cells to degranulate (release histamine and other mediators) but it might be worth checking it out. Here's a "Q and A" from Mayo Clinic that is a quick read that you might find helpful:
http://www.mayoclinic.org/medical-edge- ... ar13b.html
(The reference is for systemic mastocytosis issues, but it does a nice job of discussing mast cells in general.)
You'll also notice the reference to facial flushing in the same piece which is interesting given your description about flushing after eating.

Determining the changes you need to make in your diet will take time and patience but it sounds like you are well on your way. In the end the payoff is well worth it!

Wishing you good health,

Julie
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sarkin
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Post by sarkin »

Thanks, Julie - that's helpful. I wish it were easier to know whether I have mast cell issues... but it sure isn't hard to cut the wine and see whether that helps. In addition (instead?) of mast cells, I do think I'm having some hypoglycemia after eating (after a steak breakfast!), so adding 'wine-free' to my list is clearly a good idea, even if I don't know exactly what's happening on the cellular level ;) Not sure whether it's truly blood sugar or something else, but a neighbor is going to lend me a spare glucometer. At least that's something I can measure myself, and see if it's an issue I need to address urgently.

I think I'll also cut all/most of my supplements for a few days, just in case something there is causing an issue.

Thank you again,

Sara
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hoosier1
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Post by hoosier1 »

Sara,

Great answer. What a nice attitude you have. Can you bottle that up that so the rest of us can take it too?

Rich :lol:
"It's not what I believe. It's what I can prove." - A Few Good Men
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sarkin
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Post by sarkin »

Rich,

Thanks... and - I wish! Even better if I could put it on tap ;) Of course, the dog helps - but you knew that...

I just ate dinner at the home of friends - I had mentioned but not made a big deal about my eating, and they wished I had told them more, because of course they wanted to accommodate. Funny how easy it is to guess wrong about the balance (and of course, I could give them a whole new food list in a month). It was a great evening, I just see how hard it is to imagine that 'no dairy' really means not even a little parmesan in the salad. The hostess had actually saved some of the strawberry-rhubarb for me before she put it into the crust, but it had cornstarch (which I might be able to eat, but neither of us really wanted to find out). I ate a few fresh strawberries, they were lovely. It bothered her more than me, which made me realize that of course I'd want to accommodate anyone who came to eat at my house. Interesting perspective change.

The whole moving target nature of things is definitely a challenge. I definitely have my moments where I'm less up for that challenge than others - like any work in progress.

Thanks again for that - made me smile.

Love,
Sara
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