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Polly,
Yes, the colonoscopy was meant to be diagnostic. I also have a family hx of colon cancer and need to go every 5 years, but it has only been 4 and no polyps or other abnormalities in the last one. I suppose I can't avoid it forever, but we definitely need to work on the bowel prep issue.
At this pint I don't need scientific proof about my restrictions - my body tells me I can't handle them and that's enough for me, but it may not be enough for a doctor. I don't think I have UC or Crohn's and neither did my GI, but it would be good to rule those out I suppose. I have no desire to get back on any foods I restrict, and I have come to believe that gluten, dairy and soy are really not meant to be in our diet. Even if Dr. Fasano's pill is approved, I would not be interested. I miss the ease and convenience of how I used to eat, but the switch has been flipped in my brain and I view these things differently now - no going back for me. I feel so much better in so many ways that I can never imagine going back.
Thanks for your thoughts on this.
Mary Beth
Reaction to prep; colonoscopy cancelled
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
MB,
I agree with you about gluten, dairy, and soy. So how are you eating nowadays? Have you tried paleo or are you modifying the old recipes? It probably is a good idea to have an actual diagnosis in your chart at some point, although most docs really don't know what to do about that diagnosis anyway. Sad but true.
I am so happy that someone with your background/training is learning about the importance of food intolerances (although I am sorry you've been sick, of course!). Maybe you can write the definitive book for nutrition professionals. One of my fears is being in the hospital (or nursing home someday) and having no one there to understand how critical it is for me to eat a certain way. Folks here who have had to be the the hospital usually end up having friends/relatives bring in appropriate foods. I think CA Mary did that when she was hospitalized during her pregnancy. I recall Tex calling me once when he was hospitalized to brainstorm about appropriate foods he could request from the hospital dietitian. It shouldn't be that difficult.........
Love,
Polly
I agree with you about gluten, dairy, and soy. So how are you eating nowadays? Have you tried paleo or are you modifying the old recipes? It probably is a good idea to have an actual diagnosis in your chart at some point, although most docs really don't know what to do about that diagnosis anyway. Sad but true.
I am so happy that someone with your background/training is learning about the importance of food intolerances (although I am sorry you've been sick, of course!). Maybe you can write the definitive book for nutrition professionals. One of my fears is being in the hospital (or nursing home someday) and having no one there to understand how critical it is for me to eat a certain way. Folks here who have had to be the the hospital usually end up having friends/relatives bring in appropriate foods. I think CA Mary did that when she was hospitalized during her pregnancy. I recall Tex calling me once when he was hospitalized to brainstorm about appropriate foods he could request from the hospital dietitian. It shouldn't be that difficult.........
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Polly,
Right you are, (of course). Unbelievably, the hospital didn't even have a menu for celiacs, let alone someone who is multi-intolerant. At the time, I was avoiding gluten, dairy, soy, corn, all artificial sweeteners, many veggies, fruit, and fruit juices, (since citric acid practically turned me inside out), and all but minimal amounts of all types of sugar. The resident told me that they would try to restart my digestive system, (it was stopped by the surgery), by starting out with mostly liquid foods, such as milk, fruit juice, soup, cream of wheat, etc., and then slowly add more difficult to digest foods, with each passing day. When I told him everything that I was intolerant of, his eyes kind of glazed over, (
), and he finally told me that he would send the chief dietitian around, and I could discuss the options with her, and just pick what I wanted to eat, each day. The chief dietitian at the hospital was very accommodating, and she did come by my room early each day, to help me decide what I wanted, but she didn't really have any suggestions. All I could do was to scan the options, and ask her what was in any item that looked to me like a possibility, and I picked the ones that sounded safe. Good nutrition was never even mentioned. LOL. I think that she was thrilled that I was at least able to find something to eat. I can't remember exactly what I ate that first day, but their soup options were full of gluten, and obviously milk, fruit juice,and cream of wheat were out of the questiom, so I believe I started with eggs and bacon for breakfast, chicken and rice, for lunch, etc. - not exactly what they had in mind originally, but it worked just fine.
Hospitals, nursing homes, and various other such institutions, (as Polly mentioned), could definitely use some serious training on feeding patients with various food intolerances. They really should have a menu available, that MI patients could choose from. Mary Beth, maybe you could become rich and famous, by developing and promoting such a program.
Love,
Tex
Right you are, (of course). Unbelievably, the hospital didn't even have a menu for celiacs, let alone someone who is multi-intolerant. At the time, I was avoiding gluten, dairy, soy, corn, all artificial sweeteners, many veggies, fruit, and fruit juices, (since citric acid practically turned me inside out), and all but minimal amounts of all types of sugar. The resident told me that they would try to restart my digestive system, (it was stopped by the surgery), by starting out with mostly liquid foods, such as milk, fruit juice, soup, cream of wheat, etc., and then slowly add more difficult to digest foods, with each passing day. When I told him everything that I was intolerant of, his eyes kind of glazed over, (
), and he finally told me that he would send the chief dietitian around, and I could discuss the options with her, and just pick what I wanted to eat, each day. The chief dietitian at the hospital was very accommodating, and she did come by my room early each day, to help me decide what I wanted, but she didn't really have any suggestions. All I could do was to scan the options, and ask her what was in any item that looked to me like a possibility, and I picked the ones that sounded safe. Good nutrition was never even mentioned. LOL. I think that she was thrilled that I was at least able to find something to eat. I can't remember exactly what I ate that first day, but their soup options were full of gluten, and obviously milk, fruit juice,and cream of wheat were out of the questiom, so I believe I started with eggs and bacon for breakfast, chicken and rice, for lunch, etc. - not exactly what they had in mind originally, but it worked just fine.Hospitals, nursing homes, and various other such institutions, (as Polly mentioned), could definitely use some serious training on feeding patients with various food intolerances. They really should have a menu available, that MI patients could choose from. Mary Beth, maybe you could become rich and famous, by developing and promoting such a program.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Polly,
I am eating more paleo with each passing day. Some recipes I have modified but really think about cooking in a whole new light. I got my MRT results today and they are VERY interesting - look for a separate post soon - I need a minute to think about them.
Polly and Tex and Any Other Victim of Hospital Food:
Bring your own food!!!!!! I previously managed a hospital kitchen and there is now way they will get all of our restrictions right all of the time. Even if the dietitian "gets it", the diet order and food pass through many other hands . . diet clerks, cooks, tray assembly workers etc . . . It was a good day if we got 80% of the orders right. Polly, if you end up in a nursing home, beg for a tube feeding!
Mary Beth
I am eating more paleo with each passing day. Some recipes I have modified but really think about cooking in a whole new light. I got my MRT results today and they are VERY interesting - look for a separate post soon - I need a minute to think about them.
Polly and Tex and Any Other Victim of Hospital Food:
Bring your own food!!!!!! I previously managed a hospital kitchen and there is now way they will get all of our restrictions right all of the time. Even if the dietitian "gets it", the diet order and food pass through many other hands . . diet clerks, cooks, tray assembly workers etc . . . It was a good day if we got 80% of the orders right. Polly, if you end up in a nursing home, beg for a tube feeding!
Mary Beth
That doesn't sound very promising. Certainly you will be able to order some things that will be safe, and they should be able to provide some pre-packaged food. But the more intolerances you have, the trickier it is with the prepared food. Just think about it, who do you trust now to make food for you - aren't you always a little skeptical. I also envision contamination with spoons and scoops and knives etc -they might get the order right, but might be a bit sloppy with the prep - hospital kitchens are chaotic, fixing hundreds of meals at a time. Don't count on a dedicated toaster etc, but that probably depends on where you are. If you talk to the dietitian, all of these points need to be brought up, because as you know dietitian's who are not celiac don't really understand. Bring her some chocolate - dietitians love chocolate. With that said, I do believe that children's hospitals do a far better job since so many kids have allergies.
MB
MB