Visit the Microscopic Colitis Foundation Website
Seriously, it is good to think you may not have PD.
Do keep looking after yourself.
Lyn
Here's Why I Believe That I Don't Have Parkinson's Disease
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Tex,
I'm pleased to hear of your not having Parkinsons Disease but concerned about your BP!!! Oh My! I have problems with mine and it is nothing to play around with. I had my meds increased a few months ago but am back down to my original dose. I think mine actually raises with stress and then I get the most terrible headache. I can actually tell the difference between a "regular" headache and one that is BP related and sometimes experience migraines because of it.
You need to take care of yourself and rest when your body says it is time to do so. Sometimes other people and chores just need to wait! Believe me - they will be there when you feel better!
Love and hugs!
Mars
I'm pleased to hear of your not having Parkinsons Disease but concerned about your BP!!! Oh My! I have problems with mine and it is nothing to play around with. I had my meds increased a few months ago but am back down to my original dose. I think mine actually raises with stress and then I get the most terrible headache. I can actually tell the difference between a "regular" headache and one that is BP related and sometimes experience migraines because of it.
You need to take care of yourself and rest when your body says it is time to do so. Sometimes other people and chores just need to wait! Believe me - they will be there when you feel better!
Love and hugs!
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
Mars,
I'm sure that some of my BP increases were due to stress, too, and it's pretty hard not to feel stressed, when your BP seems to be going through the roof. I noticed that I didn't even feel like doing anything, while that was going on.
My BP is continuing to slowly go down, and today, I'm beginning to feel like doing a few things, for the first time this week. My GP gave me some good advice on Wednesday, when I saw him. He told me to stop checking it so often - twice a day is plenty. LOL. I'm sure he's right, because when you check it, and see that it's up, you think, "OMG!, I'm going to have a stroke if it goes any higher", and sure enough, the next time you check it, it will be higher.
I'll bet that when you get all the current stressful issues sorted out and settled, you may be able to lower your medication dosage rate some more.
Love and hugs,
Tex
I'm sure that some of my BP increases were due to stress, too, and it's pretty hard not to feel stressed, when your BP seems to be going through the roof. I noticed that I didn't even feel like doing anything, while that was going on.
My BP is continuing to slowly go down, and today, I'm beginning to feel like doing a few things, for the first time this week. My GP gave me some good advice on Wednesday, when I saw him. He told me to stop checking it so often - twice a day is plenty. LOL. I'm sure he's right, because when you check it, and see that it's up, you think, "OMG!, I'm going to have a stroke if it goes any higher", and sure enough, the next time you check it, it will be higher.
I'll bet that when you get all the current stressful issues sorted out and settled, you may be able to lower your medication dosage rate some more.
Love and hugs,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Well, isn't this just THE BEST news!!!! 
Tex, your reasoning certainly makes sense to me. WAHOO!
But what about this BP problem? Is this a new problem (I mean since your ER visit for the TIA symptoms)? You are correct that worry about it alone can send it soaring. Agree with checking X2/day. At least this is a problem that can be easily treated. Are you taking any meds for BP at this point? How is your salt intake? Most Americans eat around 4000 mg a day (much of it from processed/fast food). A study of 170,000 people showed that decreasing the sodium intake to 2000 mg. a day could lead to 23% fewer strokes and 17% less cardiovascular disease from lowering the BP. Might be interesting to add up you gms of sodium/day to see what it is.
Anyway, Great news about the PD, good friend.
Love,
Polly
Tex, your reasoning certainly makes sense to me. WAHOO!
But what about this BP problem? Is this a new problem (I mean since your ER visit for the TIA symptoms)? You are correct that worry about it alone can send it soaring. Agree with checking X2/day. At least this is a problem that can be easily treated. Are you taking any meds for BP at this point? How is your salt intake? Most Americans eat around 4000 mg a day (much of it from processed/fast food). A study of 170,000 people showed that decreasing the sodium intake to 2000 mg. a day could lead to 23% fewer strokes and 17% less cardiovascular disease from lowering the BP. Might be interesting to add up you gms of sodium/day to see what it is.
Anyway, Great news about the PD, good friend.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Glad to hear that your BP issues are improving, Tex.
My daughters FIL was treated for Parkinsons for years. He now has been diagnosed as NEVER having had it, the diagnosis was made because of symptoms he had because of drug interactions but in the meantime they sold their house, moved into an adult community and prepared for the worst.
You, above all rest, should trust your instincts, you have certainly done your homework.
C
My daughters FIL was treated for Parkinsons for years. He now has been diagnosed as NEVER having had it, the diagnosis was made because of symptoms he had because of drug interactions but in the meantime they sold their house, moved into an adult community and prepared for the worst.
You, above all rest, should trust your instincts, you have certainly done your homework.
C
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Hi Polly,
Did you have a chance to read the "Tex-" thread? It explains what seems to have happened, (as best I can tell). IOW, I believe that my recent BP excursions were caused by a drug interaction.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=11011
Basically, after last July's "TIA thang", in a few days, my BP settled down to the 120 to 130-something range, and by September, (a few weeks after I started taking the rasagiline), it was averaging in the 110-120 range, (with diastolic pressures in the 60s). After I had been taking the rasagiline for a few more weeks, (and fall hay fever season rolled around), my BP began averaging higher again, (120s to 130 somethings,with occasional systolic pressures in the upper 140s), but once I was sure that the rasagiline was "safe", then after a while, I only checked my BP occasionally. I attributed the higher readings to either chance, or possibly the antihistamines that I occasionally took for hay fever.
As you can see by reading that thread, I had a few bad days, earlier in the week. Yesterday, for the first time this week, it stayed out of the stage 1 hypertension range, and it seems to be slowly but steadily receding. I've been watching my salt intake, and not adding any, in order to help out the "recovery", but last night, I guess I was half-asleep, 'cause I grabbed a bag of potato chips, without thinking, and ate a bunch of them before it dawned on me what I was doing.
My GP will review the BP averages in a couple of weeks, and we'll decide what to do, then. I just hope that this hasn't caused a permanent shift in my BP, because thinking back, I'll bet that I had been having occasional BP spikes previously, (due to occasional drug interactions), and I wasn't even aware of it. Interactions of this sort may become worse, with recurrences, (similar to allergies), but that's just speculation, on my part. Who knows?
Love,
Tex
Did you have a chance to read the "Tex-" thread? It explains what seems to have happened, (as best I can tell). IOW, I believe that my recent BP excursions were caused by a drug interaction.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=11011
Basically, after last July's "TIA thang", in a few days, my BP settled down to the 120 to 130-something range, and by September, (a few weeks after I started taking the rasagiline), it was averaging in the 110-120 range, (with diastolic pressures in the 60s). After I had been taking the rasagiline for a few more weeks, (and fall hay fever season rolled around), my BP began averaging higher again, (120s to 130 somethings,with occasional systolic pressures in the upper 140s), but once I was sure that the rasagiline was "safe", then after a while, I only checked my BP occasionally. I attributed the higher readings to either chance, or possibly the antihistamines that I occasionally took for hay fever.
As you can see by reading that thread, I had a few bad days, earlier in the week. Yesterday, for the first time this week, it stayed out of the stage 1 hypertension range, and it seems to be slowly but steadily receding. I've been watching my salt intake, and not adding any, in order to help out the "recovery", but last night, I guess I was half-asleep, 'cause I grabbed a bag of potato chips, without thinking, and ate a bunch of them before it dawned on me what I was doing.
My GP will review the BP averages in a couple of weeks, and we'll decide what to do, then. I just hope that this hasn't caused a permanent shift in my BP, because thinking back, I'll bet that I had been having occasional BP spikes previously, (due to occasional drug interactions), and I wasn't even aware of it. Interactions of this sort may become worse, with recurrences, (similar to allergies), but that's just speculation, on my part. Who knows?
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Connie,
That's a heck of a note, to spend that many years worrying, and waiting for the other shoe to fall, and then finding out the diagnosis was wrong, all along. At least they can finally relax, now, and begin to enjoy life again.
Thanks for the support,
Tex
That's a heck of a note, to spend that many years worrying, and waiting for the other shoe to fall, and then finding out the diagnosis was wrong, all along. At least they can finally relax, now, and begin to enjoy life again.Thanks for the support,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex
Ah - if it were only that simple. During the time he was over-medicated, he was angry and volatile. His wife came from an abusive childhood, so she is now afraid of him and is also showing signs of Alzheimers now. He is a pussycat, I cannot imagine him hurting anyone. You can't get the years back and both of them are in their 80's.
Just sucks, but you go Tex! live like you don't have it, cause it sure sounds like you don't.
C
Ah - if it were only that simple. During the time he was over-medicated, he was angry and volatile. His wife came from an abusive childhood, so she is now afraid of him and is also showing signs of Alzheimers now. He is a pussycat, I cannot imagine him hurting anyone. You can't get the years back and both of them are in their 80's.
Just sucks, but you go Tex! live like you don't have it, cause it sure sounds like you don't.
C
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
Connie,
Damn! That does suck. That was one of the reasons why I jumped right on the rasagiline, because it has a much lower likelihood of causing such symptoms, so I was hoping that it would allow me to postpone having to take any of the other drugs. Unfortunately, though, as we all know, there are no free lunches, especially when it comes to drugs.
I hear you. I'm going to at least pretend that I don't have it. If it turns out that I'm wrong, I'm sure that it will let me know, soon enough, and I'll worry about it then.
Tex
Damn! That does suck. That was one of the reasons why I jumped right on the rasagiline, because it has a much lower likelihood of causing such symptoms, so I was hoping that it would allow me to postpone having to take any of the other drugs. Unfortunately, though, as we all know, there are no free lunches, especially when it comes to drugs.
I hear you. I'm going to at least pretend that I don't have it. If it turns out that I'm wrong, I'm sure that it will let me know, soon enough, and I'll worry about it then.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Connie,
What a frightening tale! I can't believe he spent years with an incorrect diagnosis and side effects from the medication, only to find that he was misdiagnosed.
It makes one realize that diseases which are diagnosed based on symptoms, but not test results, should be regarded with some suspicion. If anyone understands that, we MCers do. Look how many of us were told we had IBS based on our symptoms, but a biopsy finally gave the correct diagnosis.
Unfortunately, not all diseases can be determined by testing. Alzheimers and Parkinsons are good examples.
Gloria
What a frightening tale! I can't believe he spent years with an incorrect diagnosis and side effects from the medication, only to find that he was misdiagnosed.
It makes one realize that diseases which are diagnosed based on symptoms, but not test results, should be regarded with some suspicion. If anyone understands that, we MCers do. Look how many of us were told we had IBS based on our symptoms, but a biopsy finally gave the correct diagnosis.
Unfortunately, not all diseases can be determined by testing. Alzheimers and Parkinsons are good examples.
Gloria
You never know what you can do until you have to do it.
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barbaranoela
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