LDN use for MC.. final report (I hope)

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Stanz
Rockhopper Penguin
Rockhopper Penguin
Posts: 948
Joined: Fri Oct 16, 2009 2:35 pm
Location: Oregon

Post by Stanz »

I think we can all agree that the very first thing someone w/MC needs to do is to be tested to see what their intolerances are and go from there. I know it takes time to order the tests via Enterolab, I know that at best there is about a 5 wk period that it takes to get your results from the time you order them.

In the meantime, what protocol do you think would be best to treat the symptoms?
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
User avatar
tex
Site Admin
Site Admin
Posts: 35349
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Looking at the cumulative experience of members here, I agree with Gloria's estimate of the typical time frame for success with Entocort or Entocort plus the diet. Response for a combination treatment is usually within a month - that relatively short treatment response time is why it's a preferred way to control the symptoms.

The body continues to accrue damage every day that MC is active, and most doctors don't have the foggiest idea how significant that damage can be, nor how long it can take to heal. With each passing day, malabsorption also causes additional problems, due to nutrient deficiencies. Every day that the D continues, increases the risk of a critical electrolyte deficiency, or dehydration.

Because of that, IMO, one should do whatever is necessary to control the symptoms as quickly as possible, as there is nothing to be gained by delaying remission. A balanced diet, and all the minor details can be worked out later, after remission is at hand, but the first priority is to get the symptoms under control, ASAP, in order to minimize the damage to the body, and to improve the quality of life.

To date, the best way to do that, (according to the accumulated experience of board members), is to adopt the GF diet, (along with avoiding any other suspected food intolerances and food irritants). The fastest way to gain remission, though, is to also take Entocort EC, along with the diet. When test results from Enterolab become available, then the diet should be adjusted, (if necessary), to reflect those results. This combination treatment brings the best results, for the maximum number of patients, in the shortest amount of time.

At least, that's the way I see it.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Post Reply

Return to “Main Message Board”