Whatever are we going to do with you? Did you really think that my memory is so bad that I wouldn't notice that you edited your earlier post to make it match your last response? That's exactly why most discussion board administrators do not allow editing of posts, after a certain amount of time, or after someone has responded, but I thought that we were above that sort of thing, on this board. Members of this board have privileges that they wouldn't have on most other discussion boards, because we consider ourselves to be a family, here. I also removed the ability of the system to post that annoying message that appears on most php boards, announcing when someone has edited a post, and how often they have edited it, because I consider that to be unnecessary clutter, which detracts from the information available in the posts. Unfortunately, that casual policy has a downside, also, which you have just demonstrated, so I have reluctantly removed the option to edit "prior" posts.
That's technically true, of course, because what you actually said, (before you edited it), was that if you stop eating gluten, you get sick - you didn't mention a flare, ("flare" was my word choice, not yours). I fail to see any difference in the basic meaning, though. That's pretty strong language on a forum where hundred's of other members have found the opposite to be true. There is no medical precedent for the GF diet to cause someone to become ill, so obviously you have some other very unusual overriding issues, or you have an agenda to promote. Either way, promoting such a concept as "advice" to someone else who is seeking help here, can hardly be viewed as constructive.Karen wrote:No, I did not say that if I stop eating gluten that I have a flare.
Sourdough breads are usually low-gluten breads, so it's certainly possible that you might have a higher threshold for gluten tolerance than many of us, which might allow you to eat low-gluten products without triggering a reaction. As I mentioned in another post, this amounts to eating a little bit of poison, while keeping it under the "lethal" level. A celiac who does that, will never see the damage to their small intestine heal, even though they may not be having any clinical symptoms. In the case of MC, it's the colon that receives the most damage, though the small intestine is also involved, in many cases. Since that is a very unhealthy practice, if you wish to do that to your health, that is your own business, but making such off-the-wall recommendations to someone else on this board, who is diligently trying to follow the best options, in an effort to achieve remission, is a very disingenuous attempt on your part, to undermine their recovery, and certainly not offered in a sincere attempt to help.
Another comment that illustrates that you clearly have an agenda, is your lead statement in that post:
Well if you're not trying to "dampen her plan", you're doing a mighty good job of keeping it a secret, because that statement is about as "plan-dampening" as it could possibly be.Karen wrote:I am not trying to dampen your plan, but Gluten free products do not work for me at all.
Please don't misunderstand me, I realize that we are all different, and we all have to develop our own treatment program that works best for us, individually, and as far as I am concerned, anything is fair game, so long as it works, and works safely. Accordingly, if you are happy with your treatment plan, than I am happy for you, too. However, when offering advice to others, we have a responsibility to be cautious about making one-in-a-million, long shot suggestions that are the exact opposite of what most of us here have found to be true, (and proven to be true by hundreds of us, in our own recovery), especially if that advice might compromise someone's journey back to health, or otherwise jeopardize their health and well-being. It is an established fact that gluten is not essential to anyone's diet, but more than that, gluten is extremely detrimental to anyone who is sensitive to it, and according to our collective experience here, that applies to the vast majority of people who have MC. IOW, when you recommend the addition of gluten to someone's diet, as an aid in the treatment of MC, then you are clearly overstepping the bounds of good judgment to such an extreme, that it puts your future on this board in jeopardy.
Tex

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