Visit the Microscopic Colitis Foundation Website
Hello,
Researchers at the University of Alberta, Augustana Campus, are studying how people with Inflammatory Bowel Disease (IBD) manage employment, access healthcare and if they have ever experienced stigma, such as perceived prejudice or discrimination.
If you have any form of IBD, we would like to invite you to participate in this online survey.
The survey is short, and takes about 15-30 minutes to complete, depending on how much you choose to write. We have tried to make the content of the survey as meaningful as possible. We hope that by completing this survey you will learn something about yourself too.
The survey can be completed online at:
https://webapp.augustana.ca/adaptation
Your help and input is valued! Thank you.
University of Alberta Research
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
If anyone wishes to participate in this survey, and has trouble accessing the site, please let me know, and I will try to resolve any issues you might be having. You will have to cut and paste the URL into your browser, in order to go there. Be sure to pick the correct survey that you want to participate in.
The reason why the system does not automatically display that URL as a live link, is because the site uses HTTPS protocol, rather than HTTP protocol. HTTPS, (HyperText Transfer Protocol Secure), is a combination of the HyperText Transfer Protocol, and a cryptographic protocol, in order to create a secure connection over an insecure network. (HTTPS connections are often used for payment transactions, for example).
Tex
The reason why the system does not automatically display that URL as a live link, is because the site uses HTTPS protocol, rather than HTTP protocol. HTTPS, (HyperText Transfer Protocol Secure), is a combination of the HyperText Transfer Protocol, and a cryptographic protocol, in order to create a secure connection over an insecure network. (HTTPS connections are often used for payment transactions, for example).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
hi,
I just took this survey. Interesting.
I noted that Crohns and UC are listed as IBDs and that MC has to be named by the respondent in the "others" column. Anyway, if they get enough of us responding, MC sufferers will hopefully form a significant statistical subset in the research findings.
I also found the question on diet interesting (well a little simplistic actually).... the survey asks (amongst other "alternative therapies") if "diet" has been tried in the past year and later asks "did it help" with "yes", "no" and "uncertain" boxes to choose from. It strikes me that there are so many ups and downs with this illness, the permutations of diet so complicated and the length of time for healing often so long that "uncertain" will be what many will answer. Also I would guess that quite a few respondents will answer "no" because they have not done the diet thoroughly or given it enough time.
A large % of "uncertain" and "no" will support arguments that there is no "evidence based" data
to show that diet works for MCers and this will support the current conventional medical thinking on the subject.
Of course, I imagine that many people from this board, who understand that diet is not an easy or quick fix, may answer "yes".
Let me be honest about how I responded to this question. I answered "yes" but was very close to answering "uncertain". Here is why...
I went GF, DF, SF at the same time I went onto Entocort (so, with both diet and medication as variables, any improvement could have been due to either or both). I did improve (better BMs and calmer gut) I then went OFF the diet. After about a week back on diary and about 2 days back on Gluten and Soy things started going down hill. That would be evidence that diet does "help" or more correctly the wrong diet messes you up big time.
This would suggest that I answer "yes" to the diet question... BUT...
The next day I went back GF, DF, SF. and now 2 weeks back into the diet I am still not great. This would suggest I answer "uncertain" to the question.
BUT....
I know I must give it more time and get stricter too. (A couple of days ago I stupidly had a mild coconut Thai chicken curry and steamed rice with some tofu as well).
Next day, my stomach paid me back with 5 watery Ds. Obviously, I need to avoid even the mildest of spices (duh!). Also, I suspect I may need to give up egg and other foods. Soooo.....
I answered unequivocally "yes" since, even though I am not 100% certain diet helps me, I sure know it hinders - which is good enough evidence for me.
I do not mean to be critical of the survey, I think it is great that academia is paying attention to IBD. I just wanted to point out that they may get a bum steer - pun intended - on this question of diet. Also I hope that they get to see how big a subset MC sufferers are in the IBD category.
All best Ant
I just took this survey. Interesting.
I noted that Crohns and UC are listed as IBDs and that MC has to be named by the respondent in the "others" column. Anyway, if they get enough of us responding, MC sufferers will hopefully form a significant statistical subset in the research findings.
I also found the question on diet interesting (well a little simplistic actually).... the survey asks (amongst other "alternative therapies") if "diet" has been tried in the past year and later asks "did it help" with "yes", "no" and "uncertain" boxes to choose from. It strikes me that there are so many ups and downs with this illness, the permutations of diet so complicated and the length of time for healing often so long that "uncertain" will be what many will answer. Also I would guess that quite a few respondents will answer "no" because they have not done the diet thoroughly or given it enough time.
A large % of "uncertain" and "no" will support arguments that there is no "evidence based" data
to show that diet works for MCers and this will support the current conventional medical thinking on the subject. Of course, I imagine that many people from this board, who understand that diet is not an easy or quick fix, may answer "yes".
Let me be honest about how I responded to this question. I answered "yes" but was very close to answering "uncertain". Here is why...
I went GF, DF, SF at the same time I went onto Entocort (so, with both diet and medication as variables, any improvement could have been due to either or both). I did improve (better BMs and calmer gut) I then went OFF the diet. After about a week back on diary and about 2 days back on Gluten and Soy things started going down hill. That would be evidence that diet does "help" or more correctly the wrong diet messes you up big time.
This would suggest that I answer "yes" to the diet question... BUT...The next day I went back GF, DF, SF. and now 2 weeks back into the diet I am still not great. This would suggest I answer "uncertain" to the question.
BUT....I know I must give it more time and get stricter too. (A couple of days ago I stupidly had a mild coconut Thai chicken curry and steamed rice with some tofu as well).
Next day, my stomach paid me back with 5 watery Ds. Obviously, I need to avoid even the mildest of spices (duh!). Also, I suspect I may need to give up egg and other foods. Soooo.....I answered unequivocally "yes" since, even though I am not 100% certain diet helps me, I sure know it hinders - which is good enough evidence for me.
I do not mean to be critical of the survey, I think it is great that academia is paying attention to IBD. I just wanted to point out that they may get a bum steer - pun intended - on this question of diet. Also I hope that they get to see how big a subset MC sufferers are in the IBD category.
All best Ant
Allow me Link to the survey
I am going to take it later when I have more time.
My thoughts on diet in regards to MC, in my case it seems when it flares up, then I have to watch what I eat, and let's face it, EVERYTHING bothers me, it doesn't matter what I try to eat, it runs right through me.
Deb
I am going to take it later when I have more time.
My thoughts on diet in regards to MC, in my case it seems when it flares up, then I have to watch what I eat, and let's face it, EVERYTHING bothers me, it doesn't matter what I try to eat, it runs right through me.
Deb
Hypothyroid 06/01
LC 12/06
Dwell on the positive.
Happiness is a result of a decision to be happy.
LC 12/06
Dwell on the positive.
Happiness is a result of a decision to be happy.
That's because the foods to which you are actually intolerant, cause your intestines to become inflamed, which makes your gut ultrasensitive, and when that happens, virtually any food can trigger D. If you eliminate the foods to which you are intolerant, and give your gut time to heal, the other foods won't run right through you, (which I'm sure you already knew, but for some reason or other, I felt obligated to spell it out.Deb wrote:and let's face it, EVERYTHING bothers me, it doesn't matter what I try to eat, it runs right through me.
).Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Ant,
You're right, of course. The way a survey is written, determines the outcome. Many/most medical surveys are doomed to present confounded results, simply because they're not properly worded, even if the survey writer had the best of intentions. MC continues to be an orphan in the medical world. It's so poorly understood, that I wonder if it will ever be taken out of the "Other" category.
Tex
You're right, of course. The way a survey is written, determines the outcome. Many/most medical surveys are doomed to present confounded results, simply because they're not properly worded, even if the survey writer had the best of intentions. MC continues to be an orphan in the medical world. It's so poorly understood, that I wonder if it will ever be taken out of the "Other" category.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.