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I am just starting to notice that my symptoms for different foods I eat are different. Soy gave me bad cramps and bloating and D. Gluten (and I am starting to think GF oats) give me nausea and anxiety (as well as cramps).
Do you notice that you react differently to different foods? I guess this is a blessing really because it makes it easier to pinpoint what the offending food was.
Has anyone had any success with traditional allergy testing? There is a reference lab that my Ins. will pay for, at least 80%. I have an appt. to talk to my Dr. tomorrow and see if he'll order some food allergen IgG tests. You may or may not remember that my enterolab tests all came back negative (gluten 6, soy 9, casein 8, yeast 6 and egg 2). Dr. Wangen talks about other reactions to wheat and I am thinking I'd like to have the wheat checked out, as well as an IgG for gluten, and a bunch of other things (oats too). Is this type of allergy testing even helpful? Should I bother? I know that something has been making me sick off and on and I don't think it is gluten. I have been very strict with my diet and while it is possible, I don't think it is likely. I have been eating GF oats a little and I am suspicious of that.
Different foods, different symptoms? and Allergy testing
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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no-more-muffins
- Adélie Penguin
- Posts: 90
- Joined: Wed Jun 24, 2009 5:37 pm
Medicare would only pay for 20 allergy prick tests. Not one allergy showed up at all....
I saw a father allergist and he consulted with his allergist son. They had nothing good to say about EnteroLab testing.
I told them how I did really well when I eliminated gluten but then had more problems. I told them that Tex had said that when the gluten is eliminated another intolerance may show up. They said it doesn't work like that. WRONG, IT DID.
I saw a father allergist and he consulted with his allergist son. They had nothing good to say about EnteroLab testing.
I told them how I did really well when I eliminated gluten but then had more problems. I told them that Tex had said that when the gluten is eliminated another intolerance may show up. They said it doesn't work like that. WRONG, IT DID.
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
NMM,
I have had a smorgasbord of symptoms, ranging from itchy throat, coughing after meals, heartburn, tachycardia, panic/impending doom, nausea, bloating, swallowing troubles, breathing troubles . . . This is why I think I have a mast cell issue, not just MC. All of my symptoms have lessened in severity over the last few weeks, for a variety of reasons.
I had some traditional allergy testing (for wheat, soy, peanut and dairy). ALL food allergy testing should be done by blood test. DO NOT let a doctor convince you to do skin testing- highly inaccurate, with many false positives. All of my tests were negative and the allergist just said I probably had oral allergy syndrome, which is a type 4 hypersensitivity reaction not involving antibody production. My guess is you don't have a true allergy - you would know it if you did. It sounds like you have sensitivities.
IgG testing is also not the best route to go because it doesn't give you enough information. There are 100s of immune mediators released in a food sensitivity reaction, not just IgG. If you want to do a food sensitivty test I recommend Mediator Release Testing through Signet Lab. I did this test and believe it helped to see improvement in my symptoms. MRT measures immune mediator respionse to 150 foods and chemicals. The dietitians who work with them then put you on a specialized Immunocalm Diet specifically designed for you. I really beleive the test is of value for people struggling with ongoing symptoms. If you want more info on the test PM me and I can help you. Signet will check to see if your insurance will cover the test.
Mary Beth
I have had a smorgasbord of symptoms, ranging from itchy throat, coughing after meals, heartburn, tachycardia, panic/impending doom, nausea, bloating, swallowing troubles, breathing troubles . . . This is why I think I have a mast cell issue, not just MC. All of my symptoms have lessened in severity over the last few weeks, for a variety of reasons.
I had some traditional allergy testing (for wheat, soy, peanut and dairy). ALL food allergy testing should be done by blood test. DO NOT let a doctor convince you to do skin testing- highly inaccurate, with many false positives. All of my tests were negative and the allergist just said I probably had oral allergy syndrome, which is a type 4 hypersensitivity reaction not involving antibody production. My guess is you don't have a true allergy - you would know it if you did. It sounds like you have sensitivities.
IgG testing is also not the best route to go because it doesn't give you enough information. There are 100s of immune mediators released in a food sensitivity reaction, not just IgG. If you want to do a food sensitivty test I recommend Mediator Release Testing through Signet Lab. I did this test and believe it helped to see improvement in my symptoms. MRT measures immune mediator respionse to 150 foods and chemicals. The dietitians who work with them then put you on a specialized Immunocalm Diet specifically designed for you. I really beleive the test is of value for people struggling with ongoing symptoms. If you want more info on the test PM me and I can help you. Signet will check to see if your insurance will cover the test.
Mary Beth
NMM,
I must have missed seeing your Enterolab results earlier. Do you mind if I add them to our list here?
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10089
Tex
I must have missed seeing your Enterolab results earlier. Do you mind if I add them to our list here?
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10089
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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no-more-muffins
- Adélie Penguin
- Posts: 90
- Joined: Wed Jun 24, 2009 5:37 pm
Tex,
You can go ahead and add my results if you want, but I don't have MC so I don't know if you want to count me or not. I found this board awhile ago after I thought I had MC and I liked it so much for all the nice people and just the general info that I keep posting :) My sigmoidoscopy report said I had "minimally active colitis" but not MC.
You can go ahead and add my results if you want, but I don't have MC so I don't know if you want to count me or not. I found this board awhile ago after I thought I had MC and I liked it so much for all the nice people and just the general info that I keep posting :) My sigmoidoscopy report said I had "minimally active colitis" but not MC.
NMM
NMM,
Thanks, I'll add a statement about you not having MC. Your test data show a marked contrast to everyone elses' test results. I don't recall anyone else here ever receiving a negative test for gluten sensitivity, but maybe I'm overlooking someone. Your data is additional proof that the test works correctly.
Please don't feel that you're out of place, just because you might not have a diagnosis of MC - we're all here for the same reason, namely, to try to resolve our digestive system issues, in the best way possible. We're very glad you've joined us, and we appreciate your input, so please continue to post, as much as you wish.
Your report said, "minimally active colitis"? Did it actually also say, "not MC"? You know, the description, "minimally active colitis", means that you do indeed have some degree of colitis, (albeit it, a low level of activity, but still, a positive determination of colitis. There are several possibilities, that fit that description - early stages of Crohn's disease, (unlikely), a light case of ulcerative colitis, (maybe), or microscopic colitis, (the most likely possibility). Any "minimally active colitis", referred to as non-specific, is probably most often, some form of MC.
Now I'm curious as to whether or not you actually might have MC. Did the GI doc take biopsy samples when he did the sigmoidoscopy exam? If he did, and you have a copy of the pathologist's report on the biopsy samples, exactly how did the pathologist describe his findings? If you've already posted that information, I apologize for not remembering it.
Tex
Thanks, I'll add a statement about you not having MC. Your test data show a marked contrast to everyone elses' test results. I don't recall anyone else here ever receiving a negative test for gluten sensitivity, but maybe I'm overlooking someone. Your data is additional proof that the test works correctly.
Please don't feel that you're out of place, just because you might not have a diagnosis of MC - we're all here for the same reason, namely, to try to resolve our digestive system issues, in the best way possible. We're very glad you've joined us, and we appreciate your input, so please continue to post, as much as you wish.
Your report said, "minimally active colitis"? Did it actually also say, "not MC"? You know, the description, "minimally active colitis", means that you do indeed have some degree of colitis, (albeit it, a low level of activity, but still, a positive determination of colitis. There are several possibilities, that fit that description - early stages of Crohn's disease, (unlikely), a light case of ulcerative colitis, (maybe), or microscopic colitis, (the most likely possibility). Any "minimally active colitis", referred to as non-specific, is probably most often, some form of MC.
Now I'm curious as to whether or not you actually might have MC. Did the GI doc take biopsy samples when he did the sigmoidoscopy exam? If he did, and you have a copy of the pathologist's report on the biopsy samples, exactly how did the pathologist describe his findings? If you've already posted that information, I apologize for not remembering it.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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no-more-muffins
- Adélie Penguin
- Posts: 90
- Joined: Wed Jun 24, 2009 5:37 pm
Tex, I did actually post the report, awhile ago. I certainly don't expect you or anyone else to remember the specifics of my results so don't worry about it! Here's the link to my threads about my results:
http://www.perskyfarms.com/phpBB2/viewt ... 3716#63716
http://www.perskyfarms.com/phpBB2/viewt ... highlight=
If you or anyone else has any thoughts about my situation, please share.
http://www.perskyfarms.com/phpBB2/viewt ... 3716#63716
http://www.perskyfarms.com/phpBB2/viewt ... highlight=
If you or anyone else has any thoughts about my situation, please share.
NMM
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kscolorado
- Adélie Penguin
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- Joined: Sun Jul 05, 2009 2:17 pm
Just wanted to mention that I was surprised when enterolab said I had a negative casein test. My doctor said for me to keep in mind that there are other aspects that enterolab does not test. They do IgA only not IgG for instance and that if dairy bothers me, don't do it. Personally, I think that keeping a food diary is better than doing elisa testing ect because there are so many variables to those types of testing. We turn into our own food detectives 
Kathy
NMM,
How could I have forgotten that? I apologize. I guess I've had too much going on, lately. Thanks for posting the links - it's good to reread that, to get it all reorganized in my memory, again.
Okay, clearly, you do not have either LC or CC, nor do you have celiac disease, (though obviously, that doesn't mean that you can't still be sensitive to gluten, casein, soy, or whatever).
Kathy is quite correct, of course - the tests offered by Enterolab only cover certain proteins, so it's always possible that you might react to certain other proteins in those foods, that are not tested for. Sooooooo, the mystery continues.
Tex
How could I have forgotten that? I apologize. I guess I've had too much going on, lately. Thanks for posting the links - it's good to reread that, to get it all reorganized in my memory, again.Okay, clearly, you do not have either LC or CC, nor do you have celiac disease, (though obviously, that doesn't mean that you can't still be sensitive to gluten, casein, soy, or whatever).
Kathy is quite correct, of course - the tests offered by Enterolab only cover certain proteins, so it's always possible that you might react to certain other proteins in those foods, that are not tested for. Sooooooo, the mystery continues.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.