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Hi,
I want to introduce myself at some point. But since it is getting late, I wondered if anyone has had a SIBO (small intestine bacterial overgrowth) breath test. I have CC and was diagnosed August of 2009, after 3 yrs. of D. I am having this test tomorrow as I attempt to determine if I can find some origins or exacerbating reasons for the CC.
Tex, I live in Austin and since you said you are from central Texas, I wondered if you live nearby.
I have been reading the site all weekend. You have accumulated such a wealth of info. It is very heartwarming to have found such a site along with a group of really caring people.
Thanks for any help you can offer.
Sue
I am very grateful to have found this site
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Sue,
We're glad you found us, too. Welcome to our internet family.
Several members have had that test. There are many known triggers for MC, (we usually refer to both CC and LC, as MC, since the treatment is the same). These triggers include, (but are not limited to), just about any type of enteritis, (including, but not limited to: viruses, parasites, bacterial infections, SIBO, food intolerances), many medications, (including, but not limited to: NSAIDs, PPIs, SSRIs, statins, antibiotics), stopping a long-term smoking habit, etc., and probably some that I can't think of at the moment. In some cases, where a medication is the cause, stopping the use of it will bring remission, with no other requirements. Most of us, though, are not so lucky. There's no cure for MC, but the symptoms can be controlled, by several means, and most of us are able to get our lives back, by working out a treatment program that fits our own personal situation.
I live about 50 miles north of Austin, about 10 miles east of the little town of Jarrell, (which is located at the 275 mile marker on I35). We have several members in Austin, (unless they've moved away, recently), though none of them seem to post regularly, anymore.
Yes, we've accumulated a lot of data, over the years, by sharing experiences, and insight, and by researching the internet. We've learned a lot from each other - things that cannot be learned in a doctor's office, because no one truly understands this disease, unless they have it. When you have to live with it every day, you see the disease in a totally different light than the doctors do, obviously. Many GI docs view MC as "just a little diarrhea", while we view it as a debilitating disease.
Again, welcome aboard, and please feel free to ask anything that comes to mind - we'll do our best to help.
Tex (Wayne)
We're glad you found us, too. Welcome to our internet family.
Several members have had that test. There are many known triggers for MC, (we usually refer to both CC and LC, as MC, since the treatment is the same). These triggers include, (but are not limited to), just about any type of enteritis, (including, but not limited to: viruses, parasites, bacterial infections, SIBO, food intolerances), many medications, (including, but not limited to: NSAIDs, PPIs, SSRIs, statins, antibiotics), stopping a long-term smoking habit, etc., and probably some that I can't think of at the moment. In some cases, where a medication is the cause, stopping the use of it will bring remission, with no other requirements. Most of us, though, are not so lucky. There's no cure for MC, but the symptoms can be controlled, by several means, and most of us are able to get our lives back, by working out a treatment program that fits our own personal situation.
I live about 50 miles north of Austin, about 10 miles east of the little town of Jarrell, (which is located at the 275 mile marker on I35). We have several members in Austin, (unless they've moved away, recently), though none of them seem to post regularly, anymore.
Yes, we've accumulated a lot of data, over the years, by sharing experiences, and insight, and by researching the internet. We've learned a lot from each other - things that cannot be learned in a doctor's office, because no one truly understands this disease, unless they have it. When you have to live with it every day, you see the disease in a totally different light than the doctors do, obviously. Many GI docs view MC as "just a little diarrhea", while we view it as a debilitating disease.
Again, welcome aboard, and please feel free to ask anything that comes to mind - we'll do our best to help.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Dear Sue
from the "far side of the world". I am glad you found this family and that you have been reading all weekend. That's exactly what I did when I found the "potty people" and I am still learning ...... not just about this disease, but about how supportive people can be.
Wishing you all the best on your journey to better health, Ant
from the "far side of the world". I am glad you found this family and that you have been reading all weekend. That's exactly what I did when I found the "potty people" and I am still learning ...... not just about this disease, but about how supportive people can be.Wishing you all the best on your journey to better health, Ant
Hi again,
Thanks so much for your kind words of welcome. I did the SIBO test yesterday. After the breath tests every 15 min, the result I had after the designated hr. wait was 164 which means I do have a bacterial overgrowth. My questions to you who have had the breath test are.
1. For any of you did that test and the subsequent meds. you took cure the problem?
2. What medication was used, for how long, and were there any side affects from the meds.?
3. My test was completed at 3pm yesterday. They haven't called back with recommendations. I don't know if there is some testing they have to do first or if they are just bureaucratically slow. I couldn't get any info. from the person who administered the test.
4. Does anyone have a good recommendation for a gastroenterologist in Austin, Tx. I usually see his P.A. which tends to be a different person each time. When I call in, its hard to get to talk to a person other than the scheduler, who is a very nice person but not the one I need to talk with.
As you all know mostly more than I, this is a very challenging problem to address. Thank goodness for this group.
Sue
Thanks so much for your kind words of welcome. I did the SIBO test yesterday. After the breath tests every 15 min, the result I had after the designated hr. wait was 164 which means I do have a bacterial overgrowth. My questions to you who have had the breath test are.
1. For any of you did that test and the subsequent meds. you took cure the problem?
2. What medication was used, for how long, and were there any side affects from the meds.?
3. My test was completed at 3pm yesterday. They haven't called back with recommendations. I don't know if there is some testing they have to do first or if they are just bureaucratically slow. I couldn't get any info. from the person who administered the test.
4. Does anyone have a good recommendation for a gastroenterologist in Austin, Tx. I usually see his P.A. which tends to be a different person each time. When I call in, its hard to get to talk to a person other than the scheduler, who is a very nice person but not the one I need to talk with.
As you all know mostly more than I, this is a very challenging problem to address. Thank goodness for this group.
Sue
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
WELCOME SUE!
You have definitely found the right place to research information and get input on this disease. I am one of the old-timers here and can say that we are definitely a family and that you will get responses and information for mostly any question you have.
Maggie
You have definitely found the right place to research information and get input on this disease. I am one of the old-timers here and can say that we are definitely a family and that you will get responses and information for mostly any question you have.
Maggie
Maggie Scarpone
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Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!