Entocort EC price something must be done

crystal552000 · Post by **crystal552000** » Mon May 10, 2010 9:06 am

I have started a facebook page titled Entocort EC the road to poverty. I know alot of us have problems affording the drug insurance or not. Almost everyother drug is obtainable through some kind of assistance. My hopes is to get the attention of Asta zeneca along with promethus laboratories so that a program will be initiated. Please stop by there and leave comments of what you go through on getting your medication. Thank You so much for the support

crystal552000 · Post by **crystal552000** » Mon May 10, 2010 2:19 pm

oh and in addition to that Im not sure if you all know what the cost is since being diagnosed with cc I went to the pharmacy to fill my script and the cost was 1400 for a months supply that is outrageous

Post by **tex** » Mon May 10, 2010 3:16 pm

The drug manufacturers and pharmacies are really ramping up their profits, since the advent of "Plan D", and now with the new "Health Care Reform". Walgreens sells a 30-day supply of Entocort EC for a little under $1200. About a year and a half ago, their price was $525, for that same amount.

They're trying to gouge us while they can. The patent on budesonide, (the active ingredient in Entocort EC), expires next year on May 15, so generics for budesonide will probably be available then, (even here in the U. S.). The patent on Entocort EC, however, will remain in effect until January 1, 2015. That means that if some other manufacturer offers a delayed-delivery form of budesonide, it will have to have a legal workaround of the AstraZeneca delivery package, (IOW, it will have to have a significantly altered version of the enteric encapsulation method used for Entocort EC.

Tex

crystal552000 · Post by **crystal552000** » Mon May 10, 2010 5:49 pm

thank you for the input tex, I would greatly appreciate it if you could post that on the facebook page that I have started most people aren't aware about these costs and I think that if enough people can come together that they may start a program to help those of us who are unfortunate. And I also have a question for you about the gluten free diet, I tried it for about 2 weeks and didn't notice any change but I was wondering how long should it take before you see a difference?

Post by **tex** » Mon May 10, 2010 6:14 pm

I'm sorry, but I'm not a member of Facebook, Twitter, or any of those sites, and I really would rather not join them. Not that there's anything wrong with them - they just don't appeal to me.

A few members have responded to the GF diet in a couple of weeks or so, but it usually takes months for most of us to show any significant response, unless we're also taking Entocort EC. It took me a year and a half, but I wasn't taking any meds. That's the beauty of Entocort, it greatly speeds up the remission process, and helps to control the symptoms, while the diet is slowly healing the gut.

Also, most of us are casein-sensitive, (dairy), and half of us are also soy sensitive, and if any of these other food intolerances remain in the diet, it is virtually impossible to attain remission by diet alone, by removing only gluten.

That said, many people can see significant improvement within a couple of months, if they remove gluten and dairy from their diet. At that point, if some symptoms remain, or if symptoms return, then soy, (or some other suspect food), may have to be removed from the diet, in order to bring continued improvement.

Generally speaking, the longer we react to gluten and/or casein, before starting treatment, the longer it takes to attain remission. For those who are quickly diagnosed, (soon after symptoms start), the diet can sometimes bring very fast results. Most of us aren't that lucky, though.

Tex

Gabes-Apg · Post by **Gabes-Apg** » Mon May 10, 2010 6:36 pm

as someone who has been 'diligently' gluten free (and yeast free and lactose free) for almost 6 months. it is a bit like a roller coaster. you have slight improvement and then slight set back.

during this elimination process i realised that i could only have minimal soy, as you take away the main triggers, there is still reaction to the minor triggers.....
and i have also realised other ingredients that are not my friend.

for me there is definately improvement as i am taking 1/8th of the meds i was 6 months ago.
mindful there is no cure, there is just coming up with the magic potion that allows managment of the demon D

starfire · Post by **starfire** » Tue May 11, 2010 4:29 am

I posted on your facebook site but I soon won't be going there (facebook) anymore. I tried it out due to pressure from my aunt to play one of the games they have but I really don't care for the social sites much and will stop using it when I return to Pa and my "antique" computer there. Anyway, I just thought I should let you know that I won't be doing much more posting, etc.

Good Luck with what you are trying to do and I'm really sorry this is happening to you.

Love, Shirley

wonderwoman · Post by **wonderwoman** » Wed May 12, 2010 8:34 am

I went to my Facebook page, searched on Entocort EC the road to poverty read the comments there, and posted my own comment. Now my picture and complete name is there with my comment. Also, on my own Facebook page I received a message from some guy I don't know telling me to open U-Tube and listen to the song he wrote about Ulcerative Colitis. I rarely visit Facebook, my daughter insisted I sign up for it. Has anyone else received this???

starfire · Post by **starfire** » Wed May 12, 2010 9:39 am

Thats a good reason why I don't really care for facebook. Someone is constantly bombarding you with links to click on and some of them are not what they claim to be. I don't plan on using it at all once I'm in PA.

I did notice that there is a link to the Entocort page now on my homepage but I haven't received any invitations like you described.

Love, Shirley

teagirl · Post by **teagirl** » Wed May 12, 2010 1:12 pm

Wonderwoman, have you set your profile settings so anyone can see your page? Don't. Set it so only approved friends can see you.

wonderwoman · Post by **wonderwoman** » Wed May 12, 2010 11:23 pm

I reviewed my Facebook settings again and only friends can see my info.
I went to Entocort EC the road to poverty and deleted my comment there. Hopefully that should take care of it. Shirley's post as well as others showed up on my Facebook page.

Gabes-Apg · Post by **Gabes-Apg** » Thu May 13, 2010 12:34 am

too funny - i will suss out the u-tube clip about UC