My first G.I. doc visit.....for what it's worth.....
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
My first G.I. doc visit.....for what it's worth.....
Went to the big city G.I. doc last week. He said I absolutely have GERD, so I should take Omeprezole and 2 Tums daily, but to stop Asacol because I do not have colitis since my biopsies were “beautiful”. He thinks I might have IBS, and said the only treatment he can offer me for that is Lotronex ($$$). I told him I was very concerned about the blood in my stool and he said as long as it’s bright red it’s fine, instructing me to use Preparation H or Analpram, and that the purple stuff is from food. He is concerned that I’ve given up dairy and wants me to have a lactose intolerance test to make sure that I really can’t eat dairy because, as he put it, people with IBS eat weird diets and he does not want that to happen to me. Also, he wants my gallbladder tested, but I think that’s only because he allowed my mother to go through 6 years of throwing up bile at least once a month (sometimes more often) without ever ordering gallbladder testing. (She finally went to a local doctor to ask for testing (she was too sick to go out of town), had it out, and is much improved.) Oh, and he ordered a blood test because tissue biopsies simply are not reliable - according to him the only reliable test for Celiac disease is TTG.
My mother said I probably should not go to him because she’s not too fond of him (she did not mention that till the day before), but my local doctor is looking to leave town so my pea-brained logic thought it would be good to get a second opinion and see the same doctor as my mother, since all I want to do is get my medicine (as does my mother). That way, since an out of town trip must be made (no local GI docs) we could go together (I don’t have a car - at least not one that works). Now, because of how it went with me she won’t be seeing him again, and, obviously, I won’t be either. Not that I mind the diagnosis, but who’s correct - the local doctor here (he diagnosed ulcerative colitis, because he saw ulceration), the local NP here that he referred me to (she said LC), the pathologist (who came up with “mild, chronic colitis”, but thought maybe it could be LC) or the big city G.I. doc? Now I question everything - even more than I did before. Was the polyp really benign? Better yet - was the polyp really a polyp? And so on.
Some of the other things that he said weirded me out, too. Lots of them, but I will try to keep this kinda short. He started right out by saying “Oh, you’re from X - that IS a WEIRD little town”. I think so, too, but it seems a strange thing to say to someone you don’t even know. I asked about a mast cell stain, which you all had suggested and I could not accomplish here in town. He said it is absolutely not indicated and would not order it. Also, I am going to get a vision exam soon because my vision has changed so drastically in the last few months. I blame a lot of it on stress, plus when my vision changes it changes quite a bit and very quickly so it might be normal for me. However, I had been hoping to get off Asacol and wondered if my vision might correct itself a bit when I do. Medications always mess with my vision. I’d wait on the vision exam, but my doctor is firing my insurance company at the end of this month, so I planned to go in while I’m still covered, even though my vision might change again (get worse, especially at the rate it’s going, or improve). I asked “Do you think my vision might improve after I go off Asacol”? He said “Everything will improve when you get off a medication you never should have been put on in the first place”. Great.
I am in shock by the whole thing. I will blame myself for going to him, but I never expected what I got and I'm sure the same thing could have happened with another doctor. I have no plans to get my gallbladder checked, unless it’s dirt cheap, which I doubt. I am disabled and unemployed. So far I have burned up a huge chunk of my life’s saving. I buy my own insurance and have a $5,000 deductible, but I am into it much, much further than that. Even though I only have to pay 20% till the end of the year, I have been going through money like it’s water. And for what? I am no better off than I was when I first found blood all over the dining room chair last May.
-------------------------------
I typed up one of my biopsy results for my intro post - here it is in case anyone wants to read it.
http://www.perskyfarms.com/phpBB2/viewt ... ght=#80845
"PS This is what my doctor said indicates LC -- MUCOSA, SIGMOID COLON, BIOPSY: MILD CHRONIC COLITIS WITH FOCAL INTRAMUCOSAL HEMORRHAGE AND LYMPHOID FOLLICLE, WITHOUT OTHER DISTINGUISHING FEATURES. Sections reveal a biopsy of colonic mucosa. A lymphoid follicle is present producing nodular configuration. A well formed germinal center is present, with an asymmetric cap of bland appearing lymphocytes. A small amount of intramucosal hemorrhage is present. Other areas of the mucosa composed of simple tubular glands which reach all the way to the muscularis mucosa. There is a small area of intramucosal hemorrhage associated with refractile granules suggestive of hemosiderin, this suggesting previous a small area of intramucosal hemorrhage. In a couple of areas is mildly expanded also by plasma cells, lymphocytes and occasional eosinophils. No crypt abscesses, areas of fibrosis, granulomas, or pseudeomembranes are present."
I explained in this post how I tried really hard to get a mast cell stain done locally with no luck.
http://www.perskyfarms.com/phpBB2/viewt ... ght=#82640
"I do not have a second opinion for my biopsies, and don't know if I will at the rate I'm going. A few weeks ago, I spoke with a doctor at the lab when I called to ask about a mast cell stain (because you and a couple of others suggested it after you read "my story") and he offered to do it, along with a free in office second opinion of my biopsies. All my doctor had to do was call or send a letter to request it. My doctor finally got in touch with a lab doctor, but by the time she got to it she forgot who I had spoken with and talked to another one. This particular doctor told my doctor that they would never do a mast cell stain because there was no indication that it was needed and because the insurance company would not pay for it. Also, when my doctor told her it was offered to me when I spoke with someone in their office this very rude doctor said "Impossible! We don't speak with patients!". My doctor took this call during my appointment with her yesterday and she was quite shaken by the conversation. Then when she told me what was said I left there in shock. The doctor I talked with was wonderful and she got just the opposite. Now I don't think I would want them involved even if I only had dealings with the "nice" doctor."
My mother said I probably should not go to him because she’s not too fond of him (she did not mention that till the day before), but my local doctor is looking to leave town so my pea-brained logic thought it would be good to get a second opinion and see the same doctor as my mother, since all I want to do is get my medicine (as does my mother). That way, since an out of town trip must be made (no local GI docs) we could go together (I don’t have a car - at least not one that works). Now, because of how it went with me she won’t be seeing him again, and, obviously, I won’t be either. Not that I mind the diagnosis, but who’s correct - the local doctor here (he diagnosed ulcerative colitis, because he saw ulceration), the local NP here that he referred me to (she said LC), the pathologist (who came up with “mild, chronic colitis”, but thought maybe it could be LC) or the big city G.I. doc? Now I question everything - even more than I did before. Was the polyp really benign? Better yet - was the polyp really a polyp? And so on.
Some of the other things that he said weirded me out, too. Lots of them, but I will try to keep this kinda short. He started right out by saying “Oh, you’re from X - that IS a WEIRD little town”. I think so, too, but it seems a strange thing to say to someone you don’t even know. I asked about a mast cell stain, which you all had suggested and I could not accomplish here in town. He said it is absolutely not indicated and would not order it. Also, I am going to get a vision exam soon because my vision has changed so drastically in the last few months. I blame a lot of it on stress, plus when my vision changes it changes quite a bit and very quickly so it might be normal for me. However, I had been hoping to get off Asacol and wondered if my vision might correct itself a bit when I do. Medications always mess with my vision. I’d wait on the vision exam, but my doctor is firing my insurance company at the end of this month, so I planned to go in while I’m still covered, even though my vision might change again (get worse, especially at the rate it’s going, or improve). I asked “Do you think my vision might improve after I go off Asacol”? He said “Everything will improve when you get off a medication you never should have been put on in the first place”. Great.
I am in shock by the whole thing. I will blame myself for going to him, but I never expected what I got and I'm sure the same thing could have happened with another doctor. I have no plans to get my gallbladder checked, unless it’s dirt cheap, which I doubt. I am disabled and unemployed. So far I have burned up a huge chunk of my life’s saving. I buy my own insurance and have a $5,000 deductible, but I am into it much, much further than that. Even though I only have to pay 20% till the end of the year, I have been going through money like it’s water. And for what? I am no better off than I was when I first found blood all over the dining room chair last May.
-------------------------------
I typed up one of my biopsy results for my intro post - here it is in case anyone wants to read it.
http://www.perskyfarms.com/phpBB2/viewt ... ght=#80845
"PS This is what my doctor said indicates LC -- MUCOSA, SIGMOID COLON, BIOPSY: MILD CHRONIC COLITIS WITH FOCAL INTRAMUCOSAL HEMORRHAGE AND LYMPHOID FOLLICLE, WITHOUT OTHER DISTINGUISHING FEATURES. Sections reveal a biopsy of colonic mucosa. A lymphoid follicle is present producing nodular configuration. A well formed germinal center is present, with an asymmetric cap of bland appearing lymphocytes. A small amount of intramucosal hemorrhage is present. Other areas of the mucosa composed of simple tubular glands which reach all the way to the muscularis mucosa. There is a small area of intramucosal hemorrhage associated with refractile granules suggestive of hemosiderin, this suggesting previous a small area of intramucosal hemorrhage. In a couple of areas is mildly expanded also by plasma cells, lymphocytes and occasional eosinophils. No crypt abscesses, areas of fibrosis, granulomas, or pseudeomembranes are present."
I explained in this post how I tried really hard to get a mast cell stain done locally with no luck.
http://www.perskyfarms.com/phpBB2/viewt ... ght=#82640
"I do not have a second opinion for my biopsies, and don't know if I will at the rate I'm going. A few weeks ago, I spoke with a doctor at the lab when I called to ask about a mast cell stain (because you and a couple of others suggested it after you read "my story") and he offered to do it, along with a free in office second opinion of my biopsies. All my doctor had to do was call or send a letter to request it. My doctor finally got in touch with a lab doctor, but by the time she got to it she forgot who I had spoken with and talked to another one. This particular doctor told my doctor that they would never do a mast cell stain because there was no indication that it was needed and because the insurance company would not pay for it. Also, when my doctor told her it was offered to me when I spoke with someone in their office this very rude doctor said "Impossible! We don't speak with patients!". My doctor took this call during my appointment with her yesterday and she was quite shaken by the conversation. Then when she told me what was said I left there in shock. The doctor I talked with was wonderful and she got just the opposite. Now I don't think I would want them involved even if I only had dealings with the "nice" doctor."
Robbie
Robbie,
What a disappointment, and what a convoluted mystery. Your biopsy results definitely show more than "IBS", but the markers are not clear cut. The lymphocytes noted are probably associated with MC, but the intramucosal hemorrhage is puzzling. It might be iatrogenic, (that is, damaged caused by the colonoscope), but since it seems to be present at other times, it probably has another cause. NSAIDs can cause intramucosal hemorrhage - you haven't been taking any NSAIDs, have you? Since the pathologist's report shows, "No crypt abscesses, areas of fibrosis, granulomas, or pseudeomembranes are present", that sort of rules out UC.
Something is obviously wrong, but no one knows what.
And to add insult to injury, Prilosec, (omeprezole), has been documented to cause MC. Prescribing a PPI to a patient who shows some of the markers of MC, indicates either ignorance, or a total disregard for the patient's welfare. Also, Preparation H is not likely to stop intramucosal hemorrhaging. Intramucosal hemorrhaging is not hemorrhoids, and can occur just about anywhere in the GI tract - out of reach of Preparation H.
Tex
And to add insult to injury, Prilosec, (omeprezole), has been documented to cause MC. Prescribing a PPI to a patient who shows some of the markers of MC, indicates either ignorance, or a total disregard for the patient's welfare. Also, Preparation H is not likely to stop intramucosal hemorrhaging. Intramucosal hemorrhaging is not hemorrhoids, and can occur just about anywhere in the GI tract - out of reach of Preparation H.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex, I figured I do not have UC (however, my pics look like some pics online that are supposed to be UC - never know if they are legit or not, though). The NP seems to be the smartest of the bunch, claiming what you said - the "ulceration" was a result of the scope or the prep. She (and I) think everything stems from having E. coli four years ago, which could explain past stuff, but I don't know if it explains the current stuff. One doctor thinks it's worms, which I have medicine for but have not started yet. The random colon biopsies show "intramucosal hemorrhage", too, just like the sigmoid biopsy.
I took Aleve about three times last spring, but I have not taken much of that sort of thing for ten years (I've taken Aleve about two to six times a year for about 10-12 years). I discovered Excedrin Migraine about ten years ago and took one or two a day about once or twice a week off and on for a couple of years, but realized it was not a good thing and quit. Thirty years ago I tried to take Motrin (when it was still prescription) but my tummy would not allow it. Same with Celebrex and Viox - took a few pills and realized it was not for me. So---is that enough to cause the kind of problems I'm having? I had not had any NSAID for several months by the time I was scoped. And I can't think of anything else that I've taken that would cause it. Oh, I did take Pepsid AC off and on - maybe one pill a week when I took it hot and heavy. It was prescribed the first time I was diagnosed with GERD (ten years ago), but I was never good about taking it.
I did not want to take Omeprezole, but did not know it was bad till I found this board. Well, IMHO, most medicines are bad for us, but I did not know about the MC connection. I stopped taking it about a month ago.
The G.I. doc did not mention the hemorrhage - he said the biopsies looked "beautiful". On the list he gave me of things to do (take Tums, etc.) he said "colon biopsies were OK". Are they okay? They sure don't seem normal to me, but maybe I am just being paranoid.
I would feel better about the situation if the blood would go away. The D, too, of course, but the blood is scary. I went through four tubes of Analpram, using it internally four times a day for over a month. I saw a slight amount of improvement, but there is still blood. I might blame the purple/mauve stuff on the Asacol. I started on Asacol July 8th and I can't remember if I saw purple/mauve before then or not. I have often wondered if it was the red coating on the pills mixed with mucus resulting in the purple/mauve stuff. I think I also read that blood will mix with mucus and turn a lighter color. I am off of it now so if it goes away I'll know it was the Asacol (if it is the Asacol I should think the G.I. doc might have suggested it). I've have seen tiny amounts of blood on the tissue off and on for years, but nothing like I am seeing now. And the biopsy results are what freaked me out. I just don't know what to think. It's nothing compared to E. coli (that was nothing but solid red in the toilet), but it's still blood.
I took Aleve about three times last spring, but I have not taken much of that sort of thing for ten years (I've taken Aleve about two to six times a year for about 10-12 years). I discovered Excedrin Migraine about ten years ago and took one or two a day about once or twice a week off and on for a couple of years, but realized it was not a good thing and quit. Thirty years ago I tried to take Motrin (when it was still prescription) but my tummy would not allow it. Same with Celebrex and Viox - took a few pills and realized it was not for me. So---is that enough to cause the kind of problems I'm having? I had not had any NSAID for several months by the time I was scoped. And I can't think of anything else that I've taken that would cause it. Oh, I did take Pepsid AC off and on - maybe one pill a week when I took it hot and heavy. It was prescribed the first time I was diagnosed with GERD (ten years ago), but I was never good about taking it.
I did not want to take Omeprezole, but did not know it was bad till I found this board. Well, IMHO, most medicines are bad for us, but I did not know about the MC connection. I stopped taking it about a month ago.
The G.I. doc did not mention the hemorrhage - he said the biopsies looked "beautiful". On the list he gave me of things to do (take Tums, etc.) he said "colon biopsies were OK". Are they okay? They sure don't seem normal to me, but maybe I am just being paranoid.
I would feel better about the situation if the blood would go away. The D, too, of course, but the blood is scary. I went through four tubes of Analpram, using it internally four times a day for over a month. I saw a slight amount of improvement, but there is still blood. I might blame the purple/mauve stuff on the Asacol. I started on Asacol July 8th and I can't remember if I saw purple/mauve before then or not. I have often wondered if it was the red coating on the pills mixed with mucus resulting in the purple/mauve stuff. I think I also read that blood will mix with mucus and turn a lighter color. I am off of it now so if it goes away I'll know it was the Asacol (if it is the Asacol I should think the G.I. doc might have suggested it). I've have seen tiny amounts of blood on the tissue off and on for years, but nothing like I am seeing now. And the biopsy results are what freaked me out. I just don't know what to think. It's nothing compared to E. coli (that was nothing but solid red in the toilet), but it's still blood.
Robbie
-
NicolesMom
- Posts: 9
- Joined: Thu Nov 04, 2010 11:39 pm
- Location: Sterling Heights, Michigan
Robbie,
I understand how you feel. One Dr says one thing. The other disagrees and then sets another course. Through it all, at least in my daughter's case the inconsistency and uncertainty is "scary" at best. My daughter is set to go back to her Gastro Dr in January and is being followed by her internal med doctor on a regular basis.
She is learning to take every day as it comes, though it is hard for her and me too!
I understand how you feel. One Dr says one thing. The other disagrees and then sets another course. Through it all, at least in my daughter's case the inconsistency and uncertainty is "scary" at best. My daughter is set to go back to her Gastro Dr in January and is being followed by her internal med doctor on a regular basis.
She is learning to take every day as it comes, though it is hard for her and me too!
One thing I have learned about having children, they never stop needing you and you never stop worrying about them!
Yes, the conflicting answers can be very frustrating! I don't think I've ever had any doctors that agreed on anything in my life 
Don't get me wrong. I am very, very happy to not have UC (duh). But I do NOT appreciate being rolled out of the surgery room after my scopes and being told "You have ulcerative colitis. There is medication for it and you probably won't need to have your colon removed".
I dunno....maybe I should not be so upset......regardless, I don't know who to believe. I know who I want to believe, but how can I trust anyone or anything with stuff like this going on?
Don't get me wrong. I am very, very happy to not have UC (duh). But I do NOT appreciate being rolled out of the surgery room after my scopes and being told "You have ulcerative colitis. There is medication for it and you probably won't need to have your colon removed".
I dunno....maybe I should not be so upset......regardless, I don't know who to believe. I know who I want to believe, but how can I trust anyone or anything with stuff like this going on?
Robbie
Dear Robbie,
That certainly was an unsatisfactory meeting. Lets hope coming off Asacol helps.
Are you gluten free? If not you might want to try going gluten free since gluten seems to be at the root of so many difficult to diagnose conditions.
Dear NicolesMom,
I agree that it is worrying when different doctors contradict each other. I too have experienced this and it makes me even more thankful to have found this board where open discussion and real knowledge abound. I keep wishing the best for your daughter.
All best, Ant
That certainly was an unsatisfactory meeting. Lets hope coming off Asacol helps.
That comment obviously suggests your GI has a closed mind, not useful when trying to work out a complicated diagnosis. Also, it could be casein, not lactose, intolerance from the dairy that is causing a problem. To me what is "weird" is grown human's drinking the mother's milk of another animal that was meant by nature to be for her calf.He is concerned that I’ve given up dairy and wants me to have a lactose intolerance test to make sure that I really can’t eat dairy because, as he put it, people with IBS eat weird diets
Are you gluten free? If not you might want to try going gluten free since gluten seems to be at the root of so many difficult to diagnose conditions.
Dear NicolesMom,
I agree that it is worrying when different doctors contradict each other. I too have experienced this and it makes me even more thankful to have found this board where open discussion and real knowledge abound. I keep wishing the best for your daughter.
All best, Ant
Robbie, it took me a year to find the right medical people to be involved in my care. It was a confusing horrible time and I wondered if anyone would ever figure out what was wrong with me. The doctor I had seen for 20 years was totally useless when I really got sick. She was fine when I was healthy.
I went through a series of doctors until I finally ended up with a nurse practitioner who is more compassionate and knowledgeable than any doctor I've seen. My gi started me on the entocort but my nurse practioner (integrative medicine practice) took over my care and has been a great support in my healing. This board has better advice and help than any doctor's office you'll visit. Good luck on finding the right people to help you, JoAnn
Courage is being scared to death, but saddling up anyway. John Wayne
Ant, he was very closed minded, no doubt about it. He took his time - asked a million questions - but from what he was saying I could tell he was not following me. I don't explain myself very well most of the time (too tired and in too much pain to function well at all) so it's probably not all his fault. We went around in circles on most stuff. I have pretty much decided he's hard of hearing because much of the time he was not going by the words that were coming out of my mouth. That combined with my difficulties left me sitting there with my head spinning during most of the visit.
I am not gluten free. I am everything else free, but it's one I'm afraid of. I could not figure out why I've been dragging my feet till about a month ago. I am afraid I will get glutenized! Especially when I least expect it. However, I have been finding replacement foods so I can start as soon as I get back from my next out of town doctor visit (for the arthritis). I really don't mind giving it up. I have very little appetite and have never been a foodie. I gave up dairy and soy in a heart beat, no problem. A lot of other stuff, too, like chocolate, all fruit except apples and all veggies except zucchini and green beans. Veggies are the only thing I truly miss. But---I am doing better without. Of course the G.I. doc was not pleased to hear that at all - it was written all over his face.
I am not gluten free. I am everything else free, but it's one I'm afraid of. I could not figure out why I've been dragging my feet till about a month ago. I am afraid I will get glutenized! Especially when I least expect it. However, I have been finding replacement foods so I can start as soon as I get back from my next out of town doctor visit (for the arthritis). I really don't mind giving it up. I have very little appetite and have never been a foodie. I gave up dairy and soy in a heart beat, no problem. A lot of other stuff, too, like chocolate, all fruit except apples and all veggies except zucchini and green beans. Veggies are the only thing I truly miss. But---I am doing better without. Of course the G.I. doc was not pleased to hear that at all - it was written all over his face.
Robbie
JoAnn,
I've had a few doctors over the years who have tried to help. My current NP has been great, but she's in the process of leaving the area, as have my local doctors before her (three have left town, two retired). They just don't wanna stay here, and I do not blame them. I left my current town for six years and found a good integrative medicine doctor in the new town, but was forced to come back due to finances. I think other than leaving some family behind, leaving my "good" doctor was the worst thing about moving for me. Even though I never got well, he sure tried. Money is a big part of the problem now. Finding a doctor who can help me will have to go on the back burner till my finances turn around. Which will happen, eventually. I don't know how, but I have faith
I've had a few doctors over the years who have tried to help. My current NP has been great, but she's in the process of leaving the area, as have my local doctors before her (three have left town, two retired). They just don't wanna stay here, and I do not blame them. I left my current town for six years and found a good integrative medicine doctor in the new town, but was forced to come back due to finances. I think other than leaving some family behind, leaving my "good" doctor was the worst thing about moving for me. Even though I never got well, he sure tried. Money is a big part of the problem now. Finding a doctor who can help me will have to go on the back burner till my finances turn around. Which will happen, eventually. I don't know how, but I have faith
Robbie
- natythingycolbery
- Rockhopper Penguin

- Posts: 590
- Joined: Tue Aug 31, 2010 5:23 pm
- Location: York, United Kingdom
I think you have a right to be upset about your GI's attitude Robbie, from reading what you have said, it almost sounds as if he doesn't really care about your illness!Robbie wrote:I dunno....maybe I should not be so upset......
'The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be.' Horace Bushnell
Diagnosed with MC (LC) Aug 2010
Diagnosed with MC (LC) Aug 2010
Robbie,
I would assume that drug-induced bleeding, (such as with NSAIDs), would stop when the drug use is discontinued, but I don't know that for a fact.
One of the listed possible side effects of Asacol is thrombocytopenia. Has your platelet count been checked lately? Thrombocytopenia refers to a low platelet count.
Thrombocytopenia can cause purpura, (bruises), and petechiae, which are purple-colored spots and patches that occur on the skin, organs, and in mucus membranes, including the lining of the mouth, (due to bleeding from small capillaries). Have you noticed anything of that sort? This is what it looks like on the skin, for example:
http://www.nhlbi.nih.gov/health/dci/Dis ... hatIs.html
Tex
I would assume that drug-induced bleeding, (such as with NSAIDs), would stop when the drug use is discontinued, but I don't know that for a fact.
Well, no, they aren't OK, they just don't show the markers of an obvious IBD. His remarks are simply his way of saying, "I don't see anything in the biopsy report that I recognize as a known disease", meaning that he doesn't understand what's going on.The G.I. doc did not mention the hemorrhage - he said the biopsies looked "beautiful". On the list he gave me of things to do (take Tums, etc.) he said "colon biopsies were OK". Are they okay? They sure don't seem normal to me, but maybe I am just being paranoid.
One of the listed possible side effects of Asacol is thrombocytopenia. Has your platelet count been checked lately? Thrombocytopenia refers to a low platelet count.
Thrombocytopenia can cause purpura, (bruises), and petechiae, which are purple-colored spots and patches that occur on the skin, organs, and in mucus membranes, including the lining of the mouth, (due to bleeding from small capillaries). Have you noticed anything of that sort? This is what it looks like on the skin, for example:
http://www.nhlbi.nih.gov/health/dci/Dis ... hatIs.html
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Robbie,
Sounds like all of the doctors I have experienced. Do you live in Indiana :) ?
I have chased this problem around the moon for about 7 years. Spent a ton of time and money. And only recently got some answers from colo-rectal surgeon who actually listens to me.
So more prima donna doctors. Just what the world needs.
Thinking about you.
Rich
Sounds like all of the doctors I have experienced. Do you live in Indiana :) ?
I have chased this problem around the moon for about 7 years. Spent a ton of time and money. And only recently got some answers from colo-rectal surgeon who actually listens to me.
So more prima donna doctors. Just what the world needs.
Thinking about you.
Rich
"It's not what I believe. It's what I can prove." - A Few Good Men
Tex, my platelet count was checked in June and then again three months later. Both times it was within the normal range. However, I have very small purple dots on my face, which I blamed on the Asacol since that's when I started seeing them. I noticed it right away because I had them once before, years ago, only worse, from a hormone pill. They vanished when I went off the hormones. I don't have the bruising - just the tiny red/purple spots. And only on my face and a bit on my chest (as far as I know).
I had the last Asacol last Friday morning but the weird stuff is still showing up so it probably can't be from the Asacol coating. I am not eating anything with food coloring or any red foods, so I don't think it's my diet. I can't think of any supplements or, well, anything else I'm ingesting that could cause it. So, maybe it is from the Asacol since I have the purple/red dots and will eventually go away.
I know that my vision is improving quite a bit since last Friday, and I was starting to get very frightened by how bad it was getting. I had an eye exam yesterday and he said my eyes are fine and that it was probably the medication.
Rich, he must have been trying to be dramatic when he verbally stated the biopsies were "beautiful!", yet put "biopsies are OK" in writing. But, yeah, I often get doctors with a chip on their shoulder.....or something.....not always, but often. LOL - once I had a doctor throw his hands in the air (literally) and say "I don't know why I try to help you people!" before stomping out of the room after becoming frustrated when I reported to him I could not tolerate the medication he had put me on. Obviously he did not cope well --- he actually ended up having a nervous breakdown a few months later. Still, I walked out of his office at the time just as dumbfounded as I am now, wondering what in the heck was going on. It made more sense after I learned of his breakdown. I was glad I had decided to make that visit my last because as far as I was concerned he was a screwball. Ironically, he is still in practice so he must be able to help some people.
I had the last Asacol last Friday morning but the weird stuff is still showing up so it probably can't be from the Asacol coating. I am not eating anything with food coloring or any red foods, so I don't think it's my diet. I can't think of any supplements or, well, anything else I'm ingesting that could cause it. So, maybe it is from the Asacol since I have the purple/red dots and will eventually go away.
I know that my vision is improving quite a bit since last Friday, and I was starting to get very frightened by how bad it was getting. I had an eye exam yesterday and he said my eyes are fine and that it was probably the medication.
Rich, he must have been trying to be dramatic when he verbally stated the biopsies were "beautiful!", yet put "biopsies are OK" in writing. But, yeah, I often get doctors with a chip on their shoulder.....or something.....not always, but often. LOL - once I had a doctor throw his hands in the air (literally) and say "I don't know why I try to help you people!" before stomping out of the room after becoming frustrated when I reported to him I could not tolerate the medication he had put me on. Obviously he did not cope well --- he actually ended up having a nervous breakdown a few months later. Still, I walked out of his office at the time just as dumbfounded as I am now, wondering what in the heck was going on. It made more sense after I learned of his breakdown. I was glad I had decided to make that visit my last because as far as I was concerned he was a screwball. Ironically, he is still in practice so he must be able to help some people.
Robbie
It probably takes a couple of weeks, at least, to get all of the Asacol out of your system, so maybe your skin will clear up afterward.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I hope the purple/mauve stuff goes away soon. I could only see one spot on my forehead today. Yesterday there were about five on my face (did not look past my face), but there have been more at times. Never like the photo in the link you posted, tho.....Maybe it's not the exact same thing, but whatever it is I did not have it before the Asacol, I'm sure of that.
Thanks for all the input
Thanks for all the input
Robbie

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