Statement on Myglutenfacts.com

[Zizzle]

After looking at the GF Easter candy list, I went to the page on Gluten Sensitivity, which states midway through:

It seems to also be the consensus among medical experts that once an individual has been diagnosed with gluten intolerance, continuing to consume gluten will likely lead to the development of Celiac Disease.

http://www.myglutenfacts.com/glut-infor ... nsitivity/

Really?? This is the first time I've seen such a suggestion. So in my case, being DQ2, I would be destined for full-blown celiac disease if I continued to eat gluten, now that I am clearly gluten intolerant? Are MCers on the spectrum headed for celiac if their diet doesn't change?

[MBombardier]

From my limited experience, I would say yes, Zizzle. With my fecal fat absorption number of 1444, indicating severe small-intestine damage, I would say that I have celiac disease already. I have the DQ2, and also another gluten-sensitivity gene. My girls are also gluten-free so that if/when whichever gene they each inherited from me is triggered, there will be little (if any) damage from gluten consumption.

I am also allergic to wheat. In rural Kansas, where I lived for several years, wheat harvest was a very difficult time for me. More recently, when I used to grind wheat in my grain mill, I would have a horrible allergic reaction unless I wore a bandana over my face to keep the wheat flour in the air away from my face. I have wondered what relation that may have to my gluten-intolerance issues.

[tex]

It seems to also be the consensus among medical experts that once an individual has been diagnosed with gluten intolerance, continuing to consume gluten will likely lead to the development of Celiac Disease.

Really?? This is the first time I've seen such a suggestion.

You're right, of course. The position quoted from that website denies the existence of non-celiac gluten-sensitivity, so it's obviously in error.

They're assuming that only people who have a celiac gene can be diagnosed with gluten-sensitivity, and that's absolutely incorrect.

Marliss is correct, too, of course. For someone who has a celiac gene, and who has been diagnosed with gluten-sensitivity, continuing to ingest gluten will virtually guarantee the development of classic celiac disease.

Tex

[sarkin]

Marliss,

I thought of you when I saw this today. You are definitely not alone in having reactions to grinding flour!

http://www.glutenfreesociety.org/gluten ... se-asthma/

The link had an interesting tidbit about Roman slaves covering their faces with cloth while working in bakeries. On the one hand, I'm sure any substance the consistency of flour would cause at least some irritation; on the other hand the IgE reference made me think of you, too.

Also interesting - symptoms develop after a latency period of months or years or decades. Our poor bodies are trying to deal with the gluten, but it just keeps coming...

Hope you're feeling good,

Sara

[MBombardier]

Thank you, Sara. Very informative article. My gut seems to be behaving at the moment. I hope you are feeling well, too.