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Does entocort STOP/GET IT UNDER CONTROL?
Entocort users. If you flare how long does it take for entocort to stop/control it?
I didn't mean to "yell". I just noticed I did it. Sorry!
Entocort and flaring
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Entocort has been shown in trials to be as effective as prednisone for treating Crohn's disease, but like most meds, it has about a 65% success rate at bringing remission, the first time, and a declining success rate for each subsequent treatment. also, like all meds except Pepto-Bismol, it has never been trialed for treating MC.
Typically, it brings significant improvement in 2 to 4 weeks, but some cases take much longer.
I'm not a user, but I can tell you that the time to remission is widely variable, by the individual, and each subsequent treatment takes longer to achieve remission, (if it works at all, for subsequent treatments).
Tex
Typically, it brings significant improvement in 2 to 4 weeks, but some cases take much longer.
I'm not a user, but I can tell you that the time to remission is widely variable, by the individual, and each subsequent treatment takes longer to achieve remission, (if it works at all, for subsequent treatments).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Lesley,
I was on Entocort from June to mid November. Entocort worked pretty quickly for me. within a few days. I missed a couple of doses here and there in the beginning and the D would return the next day. As soon as I took the next dose the D would disappear pretty quickly. I have been off of Entocort for about 1 month and so far I'm doing okay except for a few episodes of C.
From reading other posts, I guess I did pretty good with it. Hopefully I will continue to do ok.
Good luck,
Susanne
I was on Entocort from June to mid November. Entocort worked pretty quickly for me. within a few days. I missed a couple of doses here and there in the beginning and the D would return the next day. As soon as I took the next dose the D would disappear pretty quickly. I have been off of Entocort for about 1 month and so far I'm doing okay except for a few episodes of C.
From reading other posts, I guess I did pretty good with it. Hopefully I will continue to do ok.
Good luck,
Susanne
You are very lucky Suzanne. I hope you manage to stay off it for a long time. Do you know what sets you off.
I battle with constant C, so D is not the problem. I am taking entocort to try to get control the inflammation. I was going to cut down, but this flare prevented me.
When I have C I don't know if I am flaring or not. I haven't felt WELL for so long I have forgotten what it feels like. But when I eat something really bad I have an attack like the one I am having now. The good thing is finally moving the C out, but I feel so horrible.
I battle with constant C, so D is not the problem. I am taking entocort to try to get control the inflammation. I was going to cut down, but this flare prevented me.
When I have C I don't know if I am flaring or not. I haven't felt WELL for so long I have forgotten what it feels like. But when I eat something really bad I have an attack like the one I am having now. The good thing is finally moving the C out, but I feel so horrible.
Lesley,
When I first took Entocort four years ago, it took about 3-4 weeks to begin seeing formed BMs. When I reduced it and deteriorated, it took just a few days to get Norman back once I increased the dosage again.
I've gotten completely off of it and reduced it several times over the past four years. Last year was the first time that going back on it wasn't effective within a few days. It took about 3 months, and only after I had eliminated additional foods.
This year after I went off of it, my symptoms slowly returned. After 20 weeks, I went back on the full dosage. I've been on it nearly 4 months, and haven't seen a perfect Norman yet, though I've had Norman pieces. The only way I've been able to see better BMs is to eliminate additional foods. As you know, I don't have many foods left to eliminate, so I'm not as successful. It has stopped being extremely effective for me, though it has eliminated the need to rush to the bathroom. Getting rid of the urgency is a major help, however.
Gloria
When I first took Entocort four years ago, it took about 3-4 weeks to begin seeing formed BMs. When I reduced it and deteriorated, it took just a few days to get Norman back once I increased the dosage again.
I've gotten completely off of it and reduced it several times over the past four years. Last year was the first time that going back on it wasn't effective within a few days. It took about 3 months, and only after I had eliminated additional foods.
This year after I went off of it, my symptoms slowly returned. After 20 weeks, I went back on the full dosage. I've been on it nearly 4 months, and haven't seen a perfect Norman yet, though I've had Norman pieces. The only way I've been able to see better BMs is to eliminate additional foods. As you know, I don't have many foods left to eliminate, so I'm not as successful. It has stopped being extremely effective for me, though it has eliminated the need to rush to the bathroom. Getting rid of the urgency is a major help, however.
Gloria
You never know what you can do until you have to do it.
when I first started entocort in sept 2009is worked within hours, the D was over in day. Although in my first flare up, after being diagnosed, I came back despite I was still taking entocort. A higher dosage is not an option for me since I am to many site effects. That was this year may, I got through by sticking to my entocort and an extreme basic diet: rice, meat, fish, tea and olive oil. Not even juice, apple sauce, banana's or any vegetables. It worked almost instantly (from d to c). All in all it took me about three months to get back to normal.
But as we all have different food issues, so do many of us have different reactions to entocort.
But as we all have different food issues, so do many of us have different reactions to entocort.
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
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Perhaps Entocort is a medication that works best for those with D, rather than C?
Among many others, I fall into the D category and had very good results with the med and diet combination.
Sorry your having such a hard time Lesley.
Keep the faith, and due diligence.
Love,
Joanna
Among many others, I fall into the D category and had very good results with the med and diet combination.
Sorry your having such a hard time Lesley.
Keep the faith, and due diligence.
Love,
Joanna
THE GLUTEN FILES
http://jccglutenfree.googlepages.com/
http://jccglutenfree.googlepages.com/
I certainly can't argue against that point, but on the other hand, remember that the inflammation is always there, regardless of whether D or C prevails, and there are no anti-inflammatory meds designed to work with C. Entocort, and the 5-ASA meds, are the only anti-inflammatories available.Joanna wrote:Perhaps Entocort is a medication that works best for those with D, rather than C?
There doesn't seem to be any way to win.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes I am still on it, on an extremely low dosage, I open the capsules and take about a third out, so I am on only 2 mg a day. According to my GI it is not doing anything in that low dosage. Finally last week I had the courage to try and stop taking the medication. Day 1 ok, day 2 ok, day 3 tada my MC is back!!! D including undigested food, a sour feeling in my gut. As soon as I started taking it again, it recovered very quick.
I really don't know why I only need such a low dosage of entocort, but I do know I still need it to control my MC (including the strict diet).
I really don't know why I only need such a low dosage of entocort, but I do know I still need it to control my MC (including the strict diet).
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
GI specialists love to make dumb statements like that, just to prove that they really don't know what they're doing, in some situations.Harma wrote:According to my GI it is not doing anything in that low dosage.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
for me it was more a comment of my GI in the category, one size fits all. Like the majority needs at least 2 or 3 capsules to see result, it must be impossible a minority or maybe just an individual gets great results with a much lower dosage. I am sure the diet plays an important role too.
Stupid thing is, I just know I need this low dosage, but I start to believe him and thought well maybe he is right.... well unfortunately he is not.
Stupid thing is, I just know I need this low dosage, but I start to believe him and thought well maybe he is right.... well unfortunately he is not.
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"