Another Update In The Non-Celiac Gluten Sensitivity Fiasco

[tex]

Hi All,

Linda (d'liberian) sent me this link, and asked for my thoughts on it. It appears to me to be another installment in the game plan by which the top researchers in the celiac branch of the medical community are slowly admitting that they were wrong about non-celiac gluten sensitivity, but they are doing it in little bits and pieces, over an extended period (of years). My guess is that by doing it in relatively small installments (rather than dropping a bombshell), they are hoping that no will notice that they were completely wrong to begin with, so that they might be able to save face.

Spectrum of gluten-related disorders: consensus on new nomenclature and classification

They're slowly coming around, and eventually they'll be in agreement with us (though they would never admit that).

Tex

[humbird753]

Thank you for posting this. It's about time!

I had been meaning to ask here if MC caused behavioral changes. From reading this, I believe that to be the case.

I know many take Entocort EC to aide in healing, and I have often read posts where others have questioned this as a possible side effect from the drug. In my case, not having ever taken drugs, there has been a noticeable change in my behavior (i.e., irritability, very short fuse). I was never like that before and typically found it easy to just let things roll off my back, but not anymore.

Anyway, I have found this very interesting.

Paula

[fatbuster205]

Hi Tex,
What a really great post - I am taking this to my next consultation!! You have to remember I was a school teacher for 16 years; now I am still involved in education in my day job - so is it that surprising my hobby now is teaching my doctors!!!!
Anne

[Leah]

Well. there it is! All doctors should be reading this!

Leah

[jessica329]

Great article!

[tex]

Here is where they still fail to acknowledge the real facts:

GS patients are unable to tolerate gluten and develop an adverse reaction when eating gluten that usually, and differently from CD, does not lead to damage in the small intestine. While the gastrointestinal symptoms in GS may resemble those associated with CD, the overall clinical picture is not accompanied by the concurrence of tTG autoantibodies or other specific celiac-related antibodies. Currently the diagnosis is made by exclusion, and an elimination diet and 'open challenge' (that is, the monitored reintroduction of gluten-containing foods) are most often used to evaluate whether health improves with the elimination of or reduction in gluten from the diet. However, this approach lacks specificity and is subject to the risk of a placebo effect of the elimination diet in improving symptoms.

Despite their continued denial, non-celiac gluten sensitivity does indeed cause damage in the small intestine. While it doesn't typically cause villus atrophy, it does almost always involve inflammation due to lymphocytic infiltration at the villus tips. This is still very real damage, just on a microscopic scale.

Also, their denial of the existence of a specific way to diagnose non-celiac gluten sensitivity is a slap in the face of Dr. Fine's work and EnteroLab, because Dr. Fine has clearly shown that non-celiac gluten sensitivity can be easily and reliably diagnosed by means of stool tests. A stool test that results in a positive anti-gliadin antibody result, together with the absence of a celiac gene, appears to constitute an accurate and reliable way to diagnose non-celiac gluten sensitivity. IMO, when they admit this, they will finally become honest researchers.

Tex