colonoscopy

[Savitri]

Dear all, and special Tex,

I hope you are doing well.
I posted some time ago about 'accidents'. I visited a gastroenterologist and she decided for a colonoscopy. I had it a week ago. No serious things there, but the pieces she took away, showed lymfocytaire colitis.
I really hoped that my mc should be away, because, besides the accidents, my intestines are calm and feel stable since I keep so strict to my diet. And avoid all food triggers. Since years and years.

My theorie is that the cause is the extreme stress I have since several years. Of course I know that stress is often the trigger by onset, but I know from at least one member that her mc was gone after years on diet.
Am I right: is stress still the trigger or is it more likely that it is something in my diet?
Are there more members with this experiences?
Love, Sonja

[tex]

Hello Sonja,

I'm sorry to hear that you are still having problems. Yes, stress is a very common trigger that can cause us to react. And the intestines heal very slowly because IBD's cause stem cell damage that prevents normal healing. Here is a link where you can download or read a copy of a newsletter the Microscopic Colitis Foundation published where the problem of slow intestinal healing is discussed in detail.

https://www.microscopiccolitisfoundatio ... 864178.pdf

Also, so many of us are having problems with chronic stress, that I've just finished writing an article, that will appear in the July 1 newsletter. I'll email you a copy of that article. If you don't receive it, or can't open it, please let me know, and I'll make other arrangements.

Tex

[Savitri]

Hoi Tex,

Thank you so much. I am going to study on the articles.
One day after the scopy I got a bladder infection, which I try to get under control without antibiotics. It proves how vulnerable my hole system is, I think.

Something else:
Since a month I changed my dinnertime from 18 to 16 o clock. My breakfast is rather late, between 11 and 12. So I have a long period of fasting, about 19 hours and this makes me feel very comfortable.
I remember that your pattern is quite similar to that.
Thank you once again!
Sonja

[Gabes-Apg]

Sonja

Sorry for bold question, what is your age?
reason I ask is that is a chance that hormone issues are a factor?

other possibilities that may not be diet related
have you noticed any histamine symptoms at all? running nose, itchy eyes, sore throat ?

Do you take Vit D3 and magnesium? both of these are key to help moderate and heal inflammation

Do you take Vit C and zinc? both of these are key for immune system moderation

I am one that stress was and remains a major trigger for MC. so you have my empathy for the current issues.

[Weepy1001]

Sonja
Tex recently sent me the stress article as I have stressed over having MLC for 3 years! Unfortunately getting diagnosed was a 6 month waiting process for appointments and wondering if I was going to die and the GI I had always seen (and the only GI group in our area) I wasn’t even sure what I was going to do??? Almost a year later I had survived the waiting for appointments and 40 pounds lost and getting the diagnosis- MLC- the treatment budesonide and the demeanor of the GI as though none of the year ordeal was any big deal. Every GI should have someone they love or themselves to get MC, as that appears to me to be the only way to get a GI to truly understand what people who end up getting MC will ever prove to a GI what a horrible disease MC is! (I don’t wish MC on ANYONE, I just hope that one day GIs will recognize MC for the culprit it is…..the LIFE CHANGER it is, even though it isn’t a terminal illness). After weaning from the budesonide, and having regular GI appointments for 4 months …. The diarrhea seemed in check although BAM was being treated with cholestyramine….. as I was leaving the GIs office that I had regularly seen at least once a month, the first month I saw him 2 times. Yet after the last weaning appointment on my way out of the exam room…I asked the GI …”oh, when do I come back?” He looked at me as though I was as dumb as he looked (while looking at me) he said “10 years”…. I was wowed!!!! I thought well….. when I was diagnosed he said this MLC is a lifetime diagnosis if a person develops it….BUT I must be cured!!!!! He did add if I happen to need anything for diarrhea I could take pepto bismol or Immodium and if needed I could take budesonide if needed. I was confused more than ever!
I felt MUCH better and MUCH thinner and way more confused!!!!!!!! After a while I realized this stuff is only better…..I started researching myself and eventually I came across THE MICROSCOPIC COLITIS FOUNDATION…… what a piece of GOLD…..but the CROWN JEWEL was a man who had this stuff when no GI knew how to diagnose it and this man is AMAZING!!!!!!!!! Wayne Persky!!!!!!!! Every GI in the world needs the books and research that they can get their hands and eyes on that Wayne Persky has devoted hisself to learn about MC….. Thank You Wayne Persky for learning all that you have learned to help us!!!! That you have MC and kept it in remission because you studied and studied, researched and researched!!!!!! Where would we who have learned of you and all you have learned be without you!!!! I refer any people on any MC support group to all you have learned and continue to do for us and share with us who have MC.
I’m still working on me and in particularly STRESS!!!!!!
Blessings to you Sonja
Teresa Dean

[Savitri]

Hi Gabes,

thank you for your reaction. I am 73, but I use HRT for almost 15 years. I can't do without.
And yes: running nose, itchy eyes, sore throat.

I use all the supplements on Tex' and your advice. But I stopped the zinc some months ago. You advised it because of reflux and I have this rather under control now.
I need now new zinc, but Solgar doesn't have plain zinc anymore, only picolinate zinc or chelated zinc. What do you think?
Thank you!
Sonja

[Savitri]

Hi Terrese,

Thanks for your reaction and good wishes. I am sorry that you had to go such a long way. And yes, I understand you have had a lot of stress because of the disease.
I agree with you about Tex! He is always a big help and very professional.
His stress article is very helpful for me.
I hope it helps you to! All the best for you

Sonja

[Weepy1001]

Sonja
You are so kind to respond…. I am having cramps so badly!
I have messaged with Tex and he feels the cramping is a sign my MC is very active. I am not having diarrhea and I do believe that the cramps are likely caused by stress causing my MC to be active. I am not having diarrhea but I have several bowel movements a day and 99% of the time even if I urinate, a small BM or 2 are always floating even then ……they now have form because I take Cholestyramine every night before bed so that I have formed bowel movements. I have Bile Acid Malabsorption….so thankful again to have the Cholestyramine to help the BAM symptoms (pale to yellowish bowel movements Do you have BAM? I feel sure that having my gallbladder removed in June 2020 likely caused me to have BAM. I had no gallstones BUT at that time I was sent to a surgeon because I was having IBS symptoms (likely could have been MC then??)
I am having cramps so badly right now….I hope when I go to bed I can sleep at least a few hours or hope the cramps subside…. Cramping only became an issue 2 -3 months ago.
I hope you have had a good day!
Teresa

[Savitri]

Hoi teresa
I am so sorry for you to have this problemen and cramps. I don’t have BAM.
Maybe I missed information, sorry for that, but have you got the diagnosis MC and are you on diet? Gluten, caseine, soy, etc? My problemen disappeared only after changing to my structuur diet. I followed the paleo autimuum protocol to discover all my intolerances. It is a long way, but I am still glad I did it. Diet is for me the only way to deal with the disease. And I know that is the case for a lot of members.
I wish you get well soon and find your oen solution.
Sonja

[Gabes-Apg]

the indication of histamine symptoms will trigger immune system/ increase inflammation

P5P (active form of B6) and magnesium are used to moderate histamine levels
as short term solution - try some anti-histamines to calm the inflammation

I use Thorne zinc picolinate (from herb)

Interestingly there are studies that show that HRT depletes B6 and magnesium - what is needed to moderate histamine.

[Savitri]

thank You, Gabes.
I already have P5P since 2022, because you advised me earlier, together with zinc because of my severe reflux.
Now under control! You are very helpful.
Sonja