Visit the Microscopic Colitis Foundation Website
Ren
New here but not to colitis
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
New here but not to colitis
I just found this site it is great so far.. i have has mc for about 2.5 years and just new officially diagnosed .. I also have a paralized stomach along with the mc. It has been a rough road but I just take one day at a time..
Ren
Ren
Hi Ren,
Welcome to our internet family. Sorry to hear that you have MC, but I'm glad you found us. No one truly understands MC, unless they have it, but on this site, we all definitely understand what you're going through.
By paralyzed stomach, I assume you're referring to gastroparesis, (delayed emptying of the stomach contents after a meal). Did your stomach issues begin about the same time as the MC symptoms or later, or have you had that problem longer? Several of us here have gastroparesis, including myself, and in my case, at least, it began to show up after my other symptoms. Fortunately for me, mine only shows up occasionally, when I am having an MC reaction, but when it does, it causes instant nausea.
Though this hasn't been documented by medical research, it seems very likely that the gastroparesis that we experience is triggered by the same genes that trigger MC, and it is an integral part of our MC reactions, for those of us who have it. By way of explanation, I don't believe that I have ever experienced gastroparesis outside of an MC reaction.
One day at a time is definitely the way to go, with MC, until you're able to achieve remission. I hope that you can develop a treatment plan from what you learn here, so that you can accomplish remission sooner, rather than later. Please feel free to ask anything - we've all been there, done that.
Again, welcome aboard.
Tex (Wayne)
P S You'll find that there are a lot of other cat lovers here, also.
Welcome to our internet family. Sorry to hear that you have MC, but I'm glad you found us. No one truly understands MC, unless they have it, but on this site, we all definitely understand what you're going through.
By paralyzed stomach, I assume you're referring to gastroparesis, (delayed emptying of the stomach contents after a meal). Did your stomach issues begin about the same time as the MC symptoms or later, or have you had that problem longer? Several of us here have gastroparesis, including myself, and in my case, at least, it began to show up after my other symptoms. Fortunately for me, mine only shows up occasionally, when I am having an MC reaction, but when it does, it causes instant nausea.
Though this hasn't been documented by medical research, it seems very likely that the gastroparesis that we experience is triggered by the same genes that trigger MC, and it is an integral part of our MC reactions, for those of us who have it. By way of explanation, I don't believe that I have ever experienced gastroparesis outside of an MC reaction.
One day at a time is definitely the way to go, with MC, until you're able to achieve remission. I hope that you can develop a treatment plan from what you learn here, so that you can accomplish remission sooner, rather than later. Please feel free to ask anything - we've all been there, done that.
Again, welcome aboard.
Tex (Wayne)
P S You'll find that there are a lot of other cat lovers here, also.
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Ren, I'm very happy you found us. You'll find a wealth of information and support here.
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tamijoy2000
- Adélie Penguin
- Posts: 67
- Joined: Wed Oct 01, 2008 12:17 am
- Location: JACKSONVILLE, FLORIDA
- Contact:
Welcome Ren,
I was diagnosed at the end of 2002, having just lost my thyroid. With the M.C. newly diagnosed, I immediately googled it, and began reading some things on an older board that, I think, is now defunct. I'd had too many physical symptoms to mention here through several decades, but the M.C. diagnosis put a name to it.
I was leary of the internet, particularly joining anything at that time, but during the entire next year, I quit reading those posts, having only seen an occasional mention of the gf diet back then that I more or less disregarded at that time.
The following November, after having my feet swell so much in the mornings that I sometimes couldn't get my house shoes on, and having instability of the arthritic type in my feet causing me to fall, among other symptoms worsening that were already bad enough, I suddenly remembered that the person/s I'd read the year before in that group seemed to be the only ones finding any relief. At that point, I asked myself that therapeutic question -- "Is what you're doing NOW working for you?" and my answer was an unequivocal "No!"
Anyway, that lead to the turning point in my life -- actually joining that old group and posting for "HELP!" Along came Polly and the old gf gang to my rescue, and they explained EVERYTHING to me then. At that time, it was about Thanksgiving, so we did a very unusual thing that year and ate at a gf restaurant near our house. Even before that, I quit eating all the obvious things, but on that Thanksgiving evening of November 2003, I ate ONE tiny piece of their delicious homemade bread (like the size of a crouton), and that's the last gluten containing bread that I've eaten. It's now officially five years since I've been off gluten, and I NEVER cheat when it comes to gluten. This diet gave me my life back! I eventually (over perhaps six months) had to eliminate several other common allergens to get rid of reactions that were tiny by comparison, but for me, at least, in the very early stages of this steep learning curve, as soon as the obvious gluten was gone, I was well on the road to recovery. It took about three days of just the gluten free diet without cheating to feel like a new person. The fatigue part took about 6 months, but the people here assured me that that would take months. Sure enough, I just put that worry out of my mind, and one day, I just noticed that I wasn't all that fatigued anymore. I'm sure that I was beginning to absorb more of both the fat soluble and water soluble nutrients at that point. I still need some supplementation, probably due to my age as older people's guts don't heal as completely as, say, a younger person diagnosed and dieting in the case of celiac disease.
I just wish someone had told me to look for gluten sensitivity before I lost my thyroid, developed osteoporosis, and lots of other autoimmune conditions.
The osteoporosis may just be an associated autoimmune condition, but I'm certain the malabsorption was a big contributor and probably the persisting damage plus my dairy sensitivity doesn't help. I'm a lousy calcium taker anyway -- that stuff makes me gag! OK, so nobody's perfect!! Ha!
Didn't mean to go into so much detail.
Wish you well.
Luce
I was diagnosed at the end of 2002, having just lost my thyroid. With the M.C. newly diagnosed, I immediately googled it, and began reading some things on an older board that, I think, is now defunct. I'd had too many physical symptoms to mention here through several decades, but the M.C. diagnosis put a name to it.
I was leary of the internet, particularly joining anything at that time, but during the entire next year, I quit reading those posts, having only seen an occasional mention of the gf diet back then that I more or less disregarded at that time.
The following November, after having my feet swell so much in the mornings that I sometimes couldn't get my house shoes on, and having instability of the arthritic type in my feet causing me to fall, among other symptoms worsening that were already bad enough, I suddenly remembered that the person/s I'd read the year before in that group seemed to be the only ones finding any relief. At that point, I asked myself that therapeutic question -- "Is what you're doing NOW working for you?" and my answer was an unequivocal "No!"
Anyway, that lead to the turning point in my life -- actually joining that old group and posting for "HELP!" Along came Polly and the old gf gang to my rescue, and they explained EVERYTHING to me then. At that time, it was about Thanksgiving, so we did a very unusual thing that year and ate at a gf restaurant near our house. Even before that, I quit eating all the obvious things, but on that Thanksgiving evening of November 2003, I ate ONE tiny piece of their delicious homemade bread (like the size of a crouton), and that's the last gluten containing bread that I've eaten. It's now officially five years since I've been off gluten, and I NEVER cheat when it comes to gluten. This diet gave me my life back! I eventually (over perhaps six months) had to eliminate several other common allergens to get rid of reactions that were tiny by comparison, but for me, at least, in the very early stages of this steep learning curve, as soon as the obvious gluten was gone, I was well on the road to recovery. It took about three days of just the gluten free diet without cheating to feel like a new person. The fatigue part took about 6 months, but the people here assured me that that would take months. Sure enough, I just put that worry out of my mind, and one day, I just noticed that I wasn't all that fatigued anymore. I'm sure that I was beginning to absorb more of both the fat soluble and water soluble nutrients at that point. I still need some supplementation, probably due to my age as older people's guts don't heal as completely as, say, a younger person diagnosed and dieting in the case of celiac disease.
I just wish someone had told me to look for gluten sensitivity before I lost my thyroid, developed osteoporosis, and lots of other autoimmune conditions.
The osteoporosis may just be an associated autoimmune condition, but I'm certain the malabsorption was a big contributor and probably the persisting damage plus my dairy sensitivity doesn't help. I'm a lousy calcium taker anyway -- that stuff makes me gag! OK, so nobody's perfect!! Ha!
Didn't mean to go into so much detail.
Wish you well.
Luce
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Hi Ren,
This site is wonderful...full of lots of good info and great people. I developed MC in 2002 and found my trigger was ibuprofen. I stopped using NSAIDs for a while and the D went away. Then, for a host of reasons, I went on a gluten free diet. That helped clear up some aches and pains that I "thought" I was too young to have as normal aging but wasn't really sure.
Over this past summer, I had a flare. I finally broke down and had stool parasite testing done, and it turns out I had an intestinal staph infection. After 5 days on the antibiotic for it, the D went away. Apparently testing for staph in the stool is relatively new, so if nothing helps, or you haven't had these types of tests done, its another road and something to discuss with your doc. I didn't really have any other symptoms...just the constant D.
Katy
PS: I'm one of the cat lovers here...have 3 furballs running around the house trying to convince me that they are "starving" (if they'd just look in their dish...)
This site is wonderful...full of lots of good info and great people. I developed MC in 2002 and found my trigger was ibuprofen. I stopped using NSAIDs for a while and the D went away. Then, for a host of reasons, I went on a gluten free diet. That helped clear up some aches and pains that I "thought" I was too young to have as normal aging but wasn't really sure.
Over this past summer, I had a flare. I finally broke down and had stool parasite testing done, and it turns out I had an intestinal staph infection. After 5 days on the antibiotic for it, the D went away. Apparently testing for staph in the stool is relatively new, so if nothing helps, or you haven't had these types of tests done, its another road and something to discuss with your doc. I didn't really have any other symptoms...just the constant D.
Katy
PS: I'm one of the cat lovers here...have 3 furballs running around the house trying to convince me that they are "starving" (if they'd just look in their dish...)
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RUBYREDDOG
- Adélie Penguin
- Posts: 158
- Joined: Tue Jun 10, 2008 4:45 pm
- Location: Glendale, Ca.
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi Ren and a big welcome to our online family. You have come to the right place to find information and experienced people with this disease and we have no qualms on any questions you might ask or situations you may incur. Believe me, we have all been there. Look forward to talking more in the future.
Maggie
Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!
