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Hi - I'm wondering if there has been any published research on the proportion of people with Microscopic Collagenous Colitis who also test positive for gluten insensitivity? I'm about to embark on a gluten free diet, since entocort hasn't cut out the diarrhea, and my boss is really upset with the amount of work I'm missing.
I'm feeling pretty discouraged, and could use both information and inspiration. Thanks,
Stephanie W.
Prevalence of Gluten Insensitivity among Microscopic CC?
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Prevalence of Gluten Insensitivity among Microscopic CC?
Stephanie W.
Maryland, USA
Maryland, USA
Welcome Stephanie! You've found the right place. I'm sure Tex will give you a very good answer soon. Spend some time reading this site. And then read some more. Each person seems to have different experiences with Entocort. I have found it works best for me when I also adhere to a very strict diet. I tried to do it with just diet alone as many here have done but I just needed the extra help from the drug.
Pat
Pat
Hi Stephanie,
Welcome to our internet family. I apologize for taking so long to find the statistic you asked for. I was thinking that it was about 80%, and I finally found an actual quote from some of Dr. Fine's published research.
http://celiac-disease.com/gluten-sensit ... c-disease/
or:
http://wholehealthsource.blogspot.com/2 ... se-is.html
Bear in mind that some people are not capable of producing IgA antibodies, so the actual number is probably higher than the percentage shown.
I agree with Pat, that in the most severe cases, a combination of Entocort and the diet may be necessary, in order to achieve remission within a reasonable amount of time, and then the Entocort can be phased out later, and remission maintained by diet alone. Be aware that most of us who are gluten-sensitive, are also sensitive to casein, (the primary protein in all dairy products), and about half of us are very sensitive to soy. I see that you have dairy products listed as one of your intolerances, so I assume that you are already avoiding casein. You may have to consider eliminating soy, though, especially if you do not see improvement within a few weeks or so.
Good luck with your treatment program, and please don't hesitate to ask any questions that come to mind. Remember that we see the most difficult cases on this board - the GI docs can usually handle the "easy" cases.
Any time that you need support, inspiration, or just feel the need to vent your frustrations, please don't hesitate to post. That's why we're here, because we have all felt the same frustrations, and hopelessness, but we're here as proof that you can definitely get your life back. Also, please don't forget to keep us updated on your progress. We learn from each other, here, and we always enjoy reading success stories.
Tex (Wayne)
Welcome to our internet family. I apologize for taking so long to find the statistic you asked for. I was thinking that it was about 80%, and I finally found an actual quote from some of Dr. Fine's published research.
From:Gliadin is one of the problematic proteins in gluten that is implicated in gluten sensitivity. Dr. Fine has been conducting informal research using his fecal anti-gliadin IgA test (data here). He has found that:
* 100% of untreated celiac patients are antigliadin IgA positive by fecal test, compared to only 76% by blood (n= 17).
* 76% of microscopic colitis (a type of chronic diarrhea) patients are positive by the fecal test, compared to 9% by blood (n= 57).
http://celiac-disease.com/gluten-sensit ... c-disease/
or:
http://wholehealthsource.blogspot.com/2 ... se-is.html
Bear in mind that some people are not capable of producing IgA antibodies, so the actual number is probably higher than the percentage shown.
I agree with Pat, that in the most severe cases, a combination of Entocort and the diet may be necessary, in order to achieve remission within a reasonable amount of time, and then the Entocort can be phased out later, and remission maintained by diet alone. Be aware that most of us who are gluten-sensitive, are also sensitive to casein, (the primary protein in all dairy products), and about half of us are very sensitive to soy. I see that you have dairy products listed as one of your intolerances, so I assume that you are already avoiding casein. You may have to consider eliminating soy, though, especially if you do not see improvement within a few weeks or so.
Good luck with your treatment program, and please don't hesitate to ask any questions that come to mind. Remember that we see the most difficult cases on this board - the GI docs can usually handle the "easy" cases.
Any time that you need support, inspiration, or just feel the need to vent your frustrations, please don't hesitate to post. That's why we're here, because we have all felt the same frustrations, and hopelessness, but we're here as proof that you can definitely get your life back. Also, please don't forget to keep us updated on your progress. We learn from each other, here, and we always enjoy reading success stories.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.